chrisnc-autoimmune hep

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 4/8/2007 3:02 PM (GMT -7)   
Jerry,
this is what I am being told. I have been seen by hepatologist at Duke U. Medical Center
Even though the augmentin is what "triggered" the AIH I supposedly have genetic predisposition to autoimmune diseases
as I am hypothyroid.  Of course none of my previous docs told me I had this predisposition or to be careful of drugs, foods,
supplements which can trigger a reaction.
My LFT's were approaching 3000.  Prednisone has brought me into remission according to hep but they will not leave me on it
for long term.  I started cellcept which is much better tolerated than azathioprine. It also comes in an ENTERIC pill but of course
no one tells us that either.  so far I am tolerating it with some minor dizziness.
Any of the immunosuppressants can cause LFT's to go up!  this is why sometimes they don't know if your levels are raising because
of disease or medication!  it is crazy.  also the dosage they recommend come from studies done on TRANSPLANT patients
not us having AIH for other reasons.  therefore could we get by with less???? I wonder? 
The hepatologist was treating 100 AIH patients.  they recommend azathiorprine first but he had 20 patients who were also
on cellcept due to not tolerating it.  Please read Melissa Palmers book on liver disease - great resource.
also website called UP TO DATE that physicians use.  If you buy a membership for a week you can get even More detailed info
that physicians get.  Lipitor is toxic to the liver as are ALL statins.  I now have high cholesterol due to prednisone, (LDL jumped
100 points) and was given welchol which works in the intestine to remove cholesterol.  Hepatologist thought is was fine for liver.
It is just SOOOOO many pills.  My life is revolving around when to take all of them! 
stay in touch, best of health,
Chris
I have moved this topic to a new thread,this is the last post on that thread. the old thread will be locked soon but feel free to continue the discussion here:) have a good day

trish 
Moderator for Hepatitis Forum 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 4/8/2007 3:05 PM (GMT -7)   
Thank you Marg:

Yes it is so great to have people to discuss this dieases with, since it is so rare, there is people in the medical field that never heard about it. Amazing!!!!!!!!!!!

Joanne

actually this is the last post on the second thread,sorry yall
trish 
Moderator for Hepatitis Forum 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 9:09 PM (GMT -7)
There are a total of 2,736,192 posts in 301,359 threads.
View Active Threads


Who's Online
This forum has 151449 registered members. Please welcome our newest member, iwanttocry.
234 Guest(s), 5 Registered Member(s) are currently online.  Details
Mews2much, PDL17, Redwing57, Mister Mike, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer