dkgkck3....in reference to the MELD score for your sister.
I know at Johns Hopkins, if your MELD was above a 21 you were on what our family referred to as "THE" list. Anything below a 21 they would not actually perform a transplant. That is, unless everyone in the region that was in need above you had received one. Her score is a calculation of several lab tests including a PT (prothrombin time..clotting ability) and I think her creatinine and bilirubin. The score can vary from week to week as new blood test results come in. If you haven't already, you can read about the MELD score and what it tells you. Just google it.
My father in law had several near death experiences before he finally got a transplant. He had a will to live that the doctors couldn't believe. Once, he went into septic shock and 2 out of 3 doctors said he would not make it through the night. (it was our local hospital) They could not stabilize him enough to transfer him to Johns hopkins. His ammonia level was through the roof. One of the doc's, a young foreign guy that was ready and willing to try anything to save him....tried "one last thing" ( some controversial drug) He pulled through and the other 2 doc's the next morning were pleasantly surprised.
The post-surgery regimend of drugs and doc visits is relentless. Unbelievable perscription costs. Thank god for insurance. I picked up 8 pills of one perscription a week after he was home and it was over $1200.....FOR 8 PILLS! Insurance covered it. Of course, we are not complaining.
Johns Hopkins does partial living donor-transplants.....meaning, a relative or a stranger/friend could be tested to give a portion of their healthy liver. My husband was in end stages of the long process of being tested to give a portion of his liver to his father.
One other thing, every patient is different. Certain drug combinations will work for you that would not work for me even if we had the same symptoms with liver failure.
Some patients are hindered by ascites, (fluid on the abdomen that would have to be drained 3x week for my father-in-law) Some get very yellow sclera, (jaundice) my father in law did not.
Just when we thought there was not hope and no time left, we got the call.
I hope everything works out for your sister.