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hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/1/2007 4:52 AM (GMT -7)   
Thanks to everyone for the supportive messages!  I had my f/u blood work and meeting with P.A. and surgeon on Wed.  It was a long day.  I was told to keep the wound open to the air.  That seemed to be fine until last night when I "sprung a leak."  I now have a dressing below the drainage site, to catch the fluid and keep the wound dry.
 
This was the mind-blower for the day:  Surgeon said that the cancer treatments had pretty much killed off the rt. lobe, as well as the cancer, and that he just finished off the job.  Prior to surgery, my left lobe had grown all the way across to the left side and had taken up the work of the non-viable right lobe.  They do NOT expect any regeneration of the right lobe (nothing to regenerate from, I guess), but the hope is that the left lobe will function well enough to keep me going for some time.  What a marvel the body is!  If not, I suppose a transplant would be the next step--but I hope it doesn't come to that.
 
I had lost 8 lbs. in 3 weeks.  I'm sure most of that was ascites.
 
I felt really ill yesterday.  Had to go to the bank, but came home afterwards.  I can rest for the next few days, before a primary care appt. on Mon.
 
Does anyone watch Rachel Ray?  Yesterday, she had on a doctor of some kind who was giving nutrition advice.  He said 1/4 of a fresh lemon in the morning will jump-start the liver.  He has a book out.  I'm having a glass of lemonade, does that count?   tongue

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 6/1/2007 8:01 PM (GMT -7)   
Hello Connie, did you have a chemoembulazation at some point before the surgery?. If not what did you have? I do watch Rachel Ray a couple of times a week. I like her the best of all the chefs on the food network. But I didn't see her show with that doctor on it. I do know that too much lemon can thin your blood though. I craved them when I was pregnant and my doc to me to stop eating so many. Good thing that I didn't have a bad liver or I would have bleed to death I was eating so many of them. Hope you start feeling better soon. :-) Pink Grandma

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/2/2007 3:37 PM (GMT -7)   
PinkGrandma, remember he said 1/4 of a lemon--not a bushel! LOL!

Yes, I had chemoembolization prior to surgery--actually, a year ago in March. A couple of months later I had the TheraSphere treatment as part of a Mayo study (I was #2; criteria were stringent.) I saw film after both treatments and feel that the chemoembolization did the most, especially in killing the metastasis to the superior vena cava. Without that, I could not have had the TheraSphere or the surgery.

I'm still draining a lot. My stomach has decreased in size by about half. No more lower extremity edema since being put on Lasix.

We have been getting a good amount of rain from the tropical storm, and we needed it badly. A good weekend to stay in and watch movies.

Hope everyone is having a good weekend.

Connie

frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 6/3/2007 7:10 AM (GMT -7)   
Connie

So glad that you are feeling well and that the ascites is going down. Will keep my fingers crossed that things continue to progress and a transplant is not needed. The fact that you are out and about after surgery and all the things that you have been through recently is so wonderful. Hope you had a relaxing weekend and keep us posted.

Lucy

Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 6/9/2007 5:29 PM (GMT -7)   
Hi Connie,
I have missed a lot of HealingWell news as a result of being busy at work. I'm glad things are going well. hope you continue to improve.

The Sandra Cabot book "Liver Cleansing Diet" recommends lemon juice as the first thing in the morning, followed by celery, carrot and parsley juice about fifteen minutes later. I have been doing this for a couple of years now. Lately my retired husband who rises much earlier than I do, has been preparing the juice each morning and has decided to combine the lemon with the celery/carrot and any other fruit he finds in the refrigerator. So I guess I'm no longer really following Dr. Cabot''s instructions.

Take care Connie. Enjoy that healthy liver.
Marg
 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/10/2007 8:25 AM (GMT -7)   
Thanks, Marg! Good to hear from you!

C.

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 6/11/2007 8:29 PM (GMT -7)   
Connie it's been 10 days since your last update. How are you doing now. I hope your feeling alot better. Has your drainage subsided any? :-) Thoughts and prayers Pink Grandma

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 6/12/2007 5:50 AM (GMT -7)   
Connie, I am glad your l. side seems to be picking up the slack for the r. Make sure you let the dr. know if your not feeling good, post surgery always scares me,,,,,,,,stupid infections n such. take care Connie :hugs:
Trish 
Moderator for Hepatitis Forum  
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!"
Life may not be the party we hoped for, but while we are here, we might as well dance:)


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/12/2007 6:58 AM (GMT -7)   
Thanks, Trish. Actually, I'm feeling quite well. Just have to build up my stamina a little. I am not as tired as I was pre-surgery. The Mayo docs are following me closely, and always return my calls quickly. I have some redness in the area where my rt. liver lobe was, but don't think it's infection. I will be checked on Fri.

Hugs,
Connie

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/20/2007 12:11 AM (GMT -7)   
Last Friday, I had blood work done, saw the surgeon to check the incision site (he says it looks good. No infection.  No more drainage.) The redness I have is normal after this kind of surgery, as I'm still healing on the inside. I was supposed to meet with the new hepatologist at 11 AM, but he didn't get to me until 11:45, and the van was coming for me at noon. This doc was very "pokey." He said my potassium was dangerously low, and he wanted me to go to the ER for an infusion. I told him I couldn't--had the van coming. I don't think he understood that I can't just tell them to come back later. Anyway, he gave me an Rx for Aladactone and said to stop Lasix. He also wanted me to increase my potassium to 40 mEq daily, over the weekend. I promised to go to the lab Mon. AM for repeat blood work, which I did. He had called me at 8:30 AM asking about the meds. I told him I was just about to leave to go to the lab. He asked me to call back at 1 PM, for results of blood work. When I called, he told me that my potassium is now "well within the normal range." So I was told to stop taking the potassium and Aldactone. He wanted me to have blood work again on Fri., and to see him. However, I don't expect to be available on Fri., so will call and see if I can make it for Mon.

I'm doing well, with only part of a liver left. However, I was told that there is mild cirrhosis in the left lobe, and if I go into liver failure, then transplant would be next. So I'm not out of the woods yet. I need to ask about trying the combo treatment for hep C, if I'm eligible. He said if the left lobe fails, then transplant would be the next step.

Hugs,
Connie

Post Edited (hep93) : 6/20/2007 1:13:45 AM (GMT-6)


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 6/20/2007 3:49 AM (GMT -7)   
Connie

So glad to hear there is no infection and that your potasium levels are now in the normal range. I too take Aldactone (although it is combined with the lasix) and it is not suppose to hurt potasium levels as much as the lasix does.

Will keep my fingers crossed that things continue to progress well for you.

Keep us posted

Lucy

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 6/20/2007 6:49 AM (GMT -7)   
Connie, you may not be out of the woods,but your standing at the edge of them looking at all the beautiful fields that you havent crossed yet;) You are such a strong and brave woman, Connie! I am so proud of you for going through all you have! I am glad you levels are normal now,,,,,,,,,and mild cirrhosis is NOT terrible,,,,take care Connie :hugs:
Trish 
Moderator for Hepatitis Forum  
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!"
Life may not be the party we hoped for, but while we are here, we might as well dance:)


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/20/2007 10:28 AM (GMT -7)   
Thanks, everyone, for the support and praise! I am waiting to hear from my hepatologist this afternoon as to when I should get blood work and have a visit with him (same day, I hope.)

Lucy, you are right about the Aldactone not depleting the potassium. That's why he changed me from Lasix, and I'm sure that helped me to get back in the normal range. I am just so glad not to be taking the potassium now. Of course, that will change if my potassium level starts to drop too low.

Hugs to all,
Connie
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