End stage liver disease is very frightening and unpredictable. It's one thing after another and vigilence becomes imperitive.
Yes, a durable power of attorney for medical decisions is necessary with the HIPPA regulations. Even a spouse cannot be given information without it. Some doctors or hospitals find ways to get around this but I wouldn't take a chance. Even with consent, I've had problems getting information or appointments over the phone for my husband.
Currently Gene is receiving home hospice care so I am allowed to make decisions and talk with the team regarding concerns, needs and prognosis.
Hang in there; we are there for you.
Post Edited (hep93) : 8/28/2007 2:52:07 PM (GMT-6)
For what it's worth, ascites and edema were ongoing problems for me. I think the docs may have felt it was temporary, as it wasn't until after my liver surgery that I was finally placed on Lasix and Aldactone. When I recently had the hernia repair (12/14/07) and blew up again, my Lasix and Aldactone were doubled. I will see the liver surgery P.A. on the 3rd of Jan., and the surgeon on the 14th. They will probably reduce the dosage again, but it does seem that I need to be on some form of "water pill" as an ongoing part of my treatment regimen.