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stephanie2482
New Member


Date Joined Jul 2007
Total Posts : 1
   Posted 7/11/2007 8:52 AM (GMT -7)   
Hello!  I just found this board today and thought I would post to see if anyone else has gone through was my husband is going through.  I will try to make this story short.
 
He was diagnosed with autoimmune hepatitis at the age of 12.  He is now 25.  Since he was first diagnosed, he has been on about 6 prescriptions he takes daily (imuran, prednisone, prilosec, mephyton, urso forte, etc).  A couple of years back, he fell off of a roof.  No broken bones or anything like that but we did find out that he spleen was enlarged.  Fast Forward to present day.  This year, he has been seeing his doctor at the U or I regularly.  He recently had an ultrasound done.  His bloodwork came back better than ever but it showed that his spleen is more or less twice the enlarged size it was before.  Supposedly they put in the notes that if that was ever to burst, there would be little chance of him being able to survive.  (Note:  My mother in law had to find this information out by looking at his charts secretly-she also works at the U-they never called to tell us the results).  Also, about 3 months ago, he was diagnosed with ulcerative colitis.  That has been getting better and then getting worse as the change in the week.  It's not getting better and staying better. 
 
So anyway, finding that out, scares the you know what out of me...especially since we have a 10 month old daughter AND he's a racecar driver (hobby).   
 
I'm mad and upset because it seems like this is a pretty big deal with the possibility of his spleen rupturing and it doesn't seem like anyone gives a darn.  I want some answers (which my husband is supposed to be calling the doctor about today).
 
I was wondering...has anyone been through this or a similar situation?

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 7/13/2007 9:57 AM (GMT -7)   
Hi Stephanie and welcome, I am sorry I dont know anything about your husbands situation,but wanted to welcome you. Maybe someone else will have some info for you,,good luck and take care
Trish 
Moderator for Hepatitis Forum  
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!"
Life may not be the party we hoped for, but while we are here, we might as well dance:)


wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 7/13/2007 9:57 AM (GMT -7)   
Hi Stephanie and welcome, I am sorry I dont know anything about your husbands situation,but wanted to welcome you. Maybe someone else will have some info for you,,good luck and take care
Trish 
Moderator for Hepatitis Forum  
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!"
Life may not be the party we hoped for, but while we are here, we might as well dance:)

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