Auto Immune Hepatitis

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foxytobycat
New Member


Date Joined Jul 2007
Total Posts : 1
   Posted 7/11/2007 10:13 PM (GMT -7)   
I also am new to this type of forum.I am so glad I found it though.I was diagnosed in Sept. 2003 after severe flu like systems and turning a wonderful shade of lemon yellow.I was in hospital for about two weeks as they could not get my fever down.Since that time I was put on Prednisone and reacted with every side effect going with that medication.Finally,in December 2006,I was put on what is called a super drug called Cellcep.Since that time I have felt 100% beter.I still have bad days,but they occur vaery rarely now.If you have been diagnosed with this desease and are not having very good results from the Prednisone,ask your docyor about Cellcep.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/11/2007 10:34 PM (GMT -7)   
Welcome to the forum, Foxy! I just wanted to mention that the correct spelling of the drug is Cellcept, for anyone wanting to look it up or ask for info. ;)

Wishing you well,
Connie

Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 7/20/2007 12:43 AM (GMT -7)   
Hi foxytobycat,
I too take PRednisone and CellCept. I've had great success with this combination.
Marg
 


ABSMUM
New Member


Date Joined Feb 2007
Total Posts : 10
   Posted 7/20/2007 4:09 PM (GMT -7)   
Hi everyone
I too have had great results with Cellcept and prednisolone. You are very lucky to be able to manage on the Cellcept alone. I flared again when I tried to get of the prednisolone so have to take a maintenance dose of 10ml a day along with the Cellcept. In fact my consultant was so please with my progress she has told me to come down to 9ml for six weeks and then if my blood tests are Ok 8ml for another six week (blood test) and then 7 ml. But sadly she has said it is unlikely that I will ever come down any lower than that. Still after starting on 40 ml a day I am very please with this.

I hop you carry on keeping so well.

All the best.

Shirley

Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 7/26/2007 5:53 AM (GMT -7)   
Hi Shirley,
I too am on the "down" slope of my Prednisone, or at least I hope that is the case. I'm on 8mg per day now. (Was on 15mg May last year and have been much higher like you). My heptologist is planning 7.5mg next visit if things continue to go well. I have been as low as 7.5 before but flared at this dose. Flared the first time when the decrease got to 10mg. But on both occasions I was combining Prednisone with Imuran. Hope it's the CellCept / Prednisone combination that's working for us!!

Take care. Marg
 


bubbleshea
New Member


Date Joined Aug 2007
Total Posts : 1
   Posted 8/22/2007 3:42 PM (GMT -7)   
i am new to this forum, but wa just diagnosed (although waiting for biopsy confirmation). My LFTs were about 11 times what they should have been and Billiruben through the roof. I too was a golden yellow with all the other great affects. I thought I was sick from my gall bladder, and although it till does have to come out ASAP, it was not at all the root of my illness. Autoimmune disposition is in my family. My GM died of sarcoid, and my 19 year old daughter has had all 11 signes of Lupus, with no blood test consistancies to firmly conclude, so she just continues in and out of illness.

After 12 days in the hospital, a positive ANA a P-ANCA, the docs put me on IV solumedrol. THe 40 mg of Pred for 7 days, 30 for 7 and I am now on 20. It is hard to tell the difference in symptoms betwen the AIH and the meds. I ws very confused before the med, and still I am forgetful and have issues finding words. My joint pain had subsided, but is back even though my numbers reflect about a 5X out of range at this point. My ankle is swollen as if there is an injury, and it aches and burns, but there hs been no injury to it. the plan is to do the biopsy once my numbers are safe enough, and take the GB at the same time. They did recently advise that they may have to do the biopsy sooner than the GB can come out. I am 50, have hypothyroid (which I now think my be AI), osteopenia, lupus anticoagulatn and anticardiolipid. Maybe through my final diagnosis, my daughter will find an answer as well.

Can someone tell me if the pain is associated with the meds and the illness?
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