I kind of figured that a transplant is expensive. I believe my dad has medicaid. the next step is for him to be given the okay to be on a list. I sure do hope that will happen or his life will not have much in length or quality.
today my dad learned that he has a blood clot on his liver. In addition he has a polyp in his pancreas. Hopefully, those two things will not interfere with his changes to be accepted to a list for a donor. Does anyone know anything in regards to how serious a blood clot is on the liver?
Just thought I would ask.
I am hanging in while my dad is having many tests to find out if he is eligible to get on a list for a transplant.
My dad is going back to the hospital for more tests on Wednesday. I guess this is the way it is supposed to be with going for tests each week.
I am being strong for both of my parents. My sister and I are trying to go by their house at least 1-2 times a week and have them over for dinner.
I have some difficult moments and then I think I am okay. Not only is my dad sick, my father in law has myeloma. We are pulled to the extremes a lot.
I hope that we will get some good news for my dad, but am prepared as best as I can be for whatever I here.
Thank you for your sweet note.
Thank you very much for that email. I have been trying to give breaks when I can and will do more as I need to.
Poptart, welcome to the forum! Unfortunately, you picked up on an old thread from last summer. I'm not sure what has happened to Shven or her dad.
But I must tell you--we could be twins! I also was diagnosed with hep C in '93 and developed liver cancer in '95. At the time, I was going to Shands Jacksonville, as I had no insurance. They just said, "We are so sorry." In other words, nothing they could do. I contacted Mayo Jax (I live here in Jax) to see about a transplant. I fortunately got Medicare right around that time. I wasn't a candidate for a transplant, but Mayo did save my life. I had a study drug, plus chemoembolization, plus surgery to remove the entire right lobe of my liver. I also had my left hip replacement revised there. Their entire staff couldn't be more skilled and knowledgeable, or more motivated to help the patient. I even have financial assistance from their charity fund, for anything that Medicare doesn't cover. The only reason I am staying here, rather than moving to the Gulf Coast, which I prefer, is to be close to Mayo. They continue to follow me with scans every 3-4 mos., as well as blood work. If the left lobe of my liver becomes cancerous, I would then need a transplant.
Please start a new topic to introduce yourself, so you don't get lost in the cracks of an old thread. You have so much personal experience and knowledge to share with others here.
Post Edited (hep93) : 11/13/2008 10:28:11 PM (GMT-7)
Jason, I am so sorry for the loss of your mother unexpectedly. From what you've told me, it sounds as though she was still drinking although she obviously had end-stage liver disease. It also sounds as though she didn't have any previous treatment for her high ammonia or the liver disease. If this is the situation, I doubt that anything they could do at that point would've made any difference. Yes, sometimes people come through and live longer than expected, but they have been fighting the disease and getting various treatments (Lactulose for high ammonia levels, special diet with elimination of red meat, paracentesis (draining of the fluid in the belly), etc., for some time. I have never heard of anyone as far gone as your mom apparently was be treated and do a complete turnaround. There comes a point of no return. While every individual's case is different, it doesn't sound like she was getting proper medical attention, eating nutritious food, or getting help with her alcohol problem prior to the trip to the ER.
Do you know if she had a DNR order? If so, they could not have performed any extraordinary measures to keep her alive.
It is very natural for you to be angry and try to place blame somewhere, but I will tell you that if her condition was caused by alcoholism and she had not tried to stop drinking or to seek medical treatment for her deteriorating condition, the ER docs are not likely to be jumping through hoops for her. Until you get those reports, you won't know exactly what they did, though.
I hope that you can feel better in the knowledge that your mom is no longer suffering and is finally at peace.