Hi all, I'm new to the forum. I was looking for information online about end stage liver disease and found this site it looks like it could be very helpful.
8 years ago my mom was diagnosed with NASH (nonalcoholicstepohepatitis) (sp). Their was already cirrhosis present so she was immedietley put on the transplant list. Her MELD score as of 3 weeks ago was 18, and we were told that she is now number one on the list in our region. I've done all the research I can on NASH so I know more then I ever thought I would, however, as I anxiously await the phone call and am watching my mom go progressively down hill I'm plagued with questions about end stage liver disease, and exactly what is happening to my mom as we wait.
I just don't know what is normal for the progression, and what might be signs of other problems that need to be addressed. Recently she has had severe (lasting days at a time) diarrhea. Is that part of the progression of the disease? If so what do we do to treat it? We're not sure about over the counter drugs like Immodium or Pepto-Bismol and our local liver specialist isn't much help.
In the last month and a half we've had her in for 4 pericentesis to remove fluid from her abdomen each one taking about 3 liters off. We've also had her in for one thorocentesis where they took just over a liter off her left lung. Doctors won't say one way or another if this is a really bad thing, or how soon we need to find a liver before our worse fears are realized. I recently found out I am a blood type match, but mom doesn't want me to go any further with the tissue typing and cross matching, because she is afraid for my safety, but I'm not ready to loose my mom, and would be willing to do anything to save her.
Any advice on any of my questions would be greatly appreciated.