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Regular Member

Date Joined Apr 2007
Total Posts : 24
   Posted 8/1/2007 12:04 PM (GMT -6)   

I was wondering if any one has experience EXTREME water retention while on Cellept. I have been on Cellept for about 4 months now (500 mg twice a day but I can only remember to take it once, I know that’s not good) & I am tapering my prednisone (Im down to 12.5) and my enzymes levels are pretty much normal even though I still feel ill a couple times a week (nauseous and headaches and skin tenderness) but I have more energy then I use to, so thank god for that. But I am still having a hard time losing weight and I retain ALOT of water to the point of serious discomfort. I don’t know for sure if the cellept is the cause but I can’t think of anything else. Has any one else experienced this?


Thanks!! :-)

Strength, Patience, & Confidence

Elite Member

Date Joined Jul 2005
Total Posts : 12014
   Posted 8/1/2007 2:55 PM (GMT -6)   

Hi, Lilacluv!  Have you mentioned the fluid retention to your prescribing physician?  (By the way, the medication is spelled Cellcept.)  Perhaps he will prescribe a diuretic.

Keep us posted!


Regular Member

Date Joined Apr 2007
Total Posts : 24
   Posted 8/1/2007 6:29 PM (GMT -6)   

Thanks for the spelling correction (i think i knew :-)  ) I mentioned it to my general physician and he prescribed me a diuretic and they have helped, but we were unable to pin-point a cause. I was just wondering if anyone else had this problem.

Strength, Patience, & Confidence

Veteran Member

Date Joined Dec 2005
Total Posts : 1944
   Posted 8/15/2007 9:59 PM (GMT -6)   
Hi LilacLuv--
If you don't get many answers, you might try posting in the lupus forum of healing well, there are many people there on cellcept or who have been on it and can tell you loads about it and pred. Pred will cause water retention. I agree that if you aren't on a diuretic,you should talk to the doc about it.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

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