Hep C/liver cancer update

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hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/7/2007 9:08 PM (GMT -7)   
Saw a top Mayo hepatologist today in consult, in follow-up of my mid-May surgery to remove the rt. lobe of my liver, due to cancer.  I developed a hiatal hernia several weeks ago, and have to wait a while to have it repaired...until I am fully healed from the cancer surgery.  It is causing me to feel slightly nauseous and affects my appetite.  However, this has been a good thing in terms of my weight.  After being put on Lasix and Aldactone, I lost 10 lbs. in a week--ascites.  I have gone on to lose another 5 lbs., and will try for another 6 or 7.  That will bring me to my normal weight.  I was told to keep the diuretic doses the same, or even cut them in half--but if I start swelling up again, to increase the dosages.
 
I asked about hep C treatment and was told it would be considered after the hernia repair.  At the time I was diagnosed in '93, they didn't do genotypes...so I don't know what kind I have.  I mentioned this, and was sent to the lab for special blood work today.  I've been extremely fatigued lately, as I was prior to surgery.  For the 2 mos. post-op I felt a lot better than I do now.  I feel it is the hep C causing this.
 
Unless I hear otherwise, I do not have another Mayo appt. until Oct.  At that time, I will be put through all the testing I had prior to the rt. hepatectomy.  This will determine if I am still cancer free. and how well the left lobe is functioning.
 
I was reading one of Mayo's in-house publications today, in which it was mentioned that they have the shortest wait time for transplant of any medical facility in the country.  The wait time is just over one month!  I'm assuming that is after all the pretesting, and being put on the transplant list.
 
Connie
 

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 8/7/2007 10:37 PM (GMT -7)   
sorry to hear your having another problem connie, but glad to hear your taking the weight off,,,,,must feel more comfortable, at least it will when the hernia is taken care of..take care
Trish 
Moderator for Hepatitis Forum  
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!"
Life may not be the party we hoped for, but while we are here, we might as well dance:)


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 8/8/2007 9:39 PM (GMT -7)   
Connie I wish you were feeling better.((hugs)) But you know you are a tough cookie. I can't imagine going through what you have been through. I'll be praying for your recovery from everything. Take care of yourself..........Pink Grandma

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/8/2007 10:41 PM (GMT -7)   

Thank you both!

EVERYONE take care during this awful heat wave!  Also, those of us on diuretics need to make sure we don't get dehydrated.

Connie

 

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