dear pink grandma, thank you for the post can i ask how long from diagnosis to the end? my ex literally drank every day for the past 9 years since our divorce and i told him this would happen someday??? we got divorced because of his drinking problem and i feel helpless beacuse we have a 15 yr old daughter together who is left to dwell and think about her father suffering...since diagnosed in just 2 weeks he has been in and out of the hospital about 6 times?? he went in because he was vomitting blood, then they sedated him for 4 days because something is wrong with his throat? he came home and was swelled up like 2x his normal size and has been in and out since? Yesterday i spoke with him and his skin was leaking fluid? what a nightmare this has been for him, and there is nothing they do for him besides water pills????? this is insane
Paula, I am very sorry that you have to go through this. It is so hard to just stand by and not be able to help.
Pink Grandma, Thank you so much for you replies. I am also very sorry that you had to go through this. It is very helpful to hear your experience.
My dad just went back into the hospital yesterday. His lab work came back that he also has a tick-borne disease, babesiosis. His doctor made it seem imperative that he be in the hospital. Much to his dismay. This disease causes a lot of the same symptoms that he is already having, fatigue, loss of appetite, jaundice, etc. They admitted him I think mostly because his liver is so decompansated they want to watch how he handles the antibiotics. I just hope that they have started to treat it in time. I believe he had someone watching for him. It was an eagle-eyed lab tech that noticed that he might have it.
Can anyone explain to me the reason for the low sodium diet. Yesterday they said that he was anemic and his sodium was very low. When he got out of the hospital the first time he was told to go on a low sodium diet and he was on a strict fluid intake. So if his sodium is so low why the low sodium diet? Sorry I forgot to ask his gastroenterologist on weds. when we saw him and you can never get the hospital dr.
Hope everyone has a safe weekend!
Thank you Connie, that makes sense about the sodium. I just couldn't seem to get it.
Paula~I am so sorry that your brother had to go through that. His poor children too. I am glad that he is finally getting his social security.
I just got back from visiting my dad at the hospital. He doesn't look or sound to great. They have him on azithromycin and an anti-parasite drug for the babesiosis. He started having a lot of diarreah today. Which we believe is from the azithromycin but he has also been having it off and on for a long while now. We asked the nurse about his ammonia levels and she said that they were on the high side yesterday but didn't think that they were checked today. He is having his blood drawn 4 times a day. His stomach is still very distended. On a good note he is not having any confusion and still has a bit of a sense of humor.
Post Edited (hep93) : 8/18/2007 2:52:50 PM (GMT-6)
keep on top of everything for your dad--we are human and its sad we need to have people "looking out for us" i know what you mean about not seeing the doctors, because even when they do come you feel like you have to jump on them to keep them in the room more than a few minutes? but thats our family and we wait for hours and days just to cram all the questions in that little visit. i hope dad is doing better, i do know that antibiotic you spoke of does make people have diarrhea--imagine how someone who is already sick must feel on it? keep strong, hope he has better days. with these privacy issues its impossible to get accurate information-thats why when my brother was sick he gave permission for me to ask questions-my ex with the cirrhosis is different, i have to rely on him, and this liver disease makes him forget from 1 minute to the next somedays.
thank you connie,pink grandma and amy
Paula, once a person is approved for disability benefits, there is a 2-year wait from the time he applied, to be automatically covered by Medicare. So he should have less than a year's wait at this point. It took SS over 2 years to approve me for disability benefits, so I actually got Medicare immediately, and I was covered retroactively for a couple of months. Has he applied for Medicaid?
Post Edited (hep93) : 8/18/2007 2:56:40 PM (GMT-6)
Post Edited (paula1965) : 8/16/2007 9:12:31 PM (GMT-6)