I am new to this forum, but not healingwell. I have crohn's.
My GI has been very concerned about swelling in my legs, feet and colon. I saw one GP who called it just fluid retention, after no relief with lasix, the other GP called it vascular insufficiency.
I figured that was that, but with the colon swelling, that she saw during my colonscopy, the GI strongly asked me to see the new internist in town.
Nice guy and he ran tests on heart/liver/kidney. After two weeks, he calls 5pm on friday, right before a weekend and holiday. He tells me, heart/kidney is fine. Vitamin D level is undetectable (oops! I am very lactose intolerant)
The liver he says shows inflammation and he thinks it is not synthesizing proteins. So I am to come in for the hepatitis bloodwork and he is scheduling an ultrasound and calling my GI for a specialist recommendation.
My questions are:
1) Does it seem hasty to be making a specialist appt now, before the hep test and ultrasound?
2) I am going to request a copy of the labs, what could I look for that would be a flag of something serious?
3) Does a regular GI normally handle a biopsy if I then need that, which I assume I probably will after reading up on things?
4) The availability of hepatologists seems low, I live in a rural area. The closest seems to be Winston Salem according to a site I found for american liver disease.
I really wish they had called earlier friday, I would of went in for the test. asked for results and called my GI myself.
Thanks in advance!
Diagnosed with Crohn's August 2006
Asthma, Rosacea, Venous Insufficiency, Malabsorption and Excessive Bile production
Questran 1 package per day
Colocort Enema 2 per day
Advair 100, 2 per day