Have not posted for a while but have logged on everyday to follow how everyone is doing. I have been doing good my levels have been completely normal for 13 weeks and stable for 17. My doctor in the Center for Liver Disease in Miami, however, still does not want to reduce my prednsione below 20 mg until my levels are normal for 6 months. Then wants to repeat liver biopsy if no inflammation will begin to wean me down. I was unable to take Imuran had a very bad reaction and she does not want to use cellcept since she feels it also has side effects. She did said if I insisted she would consider going down to 15mg but no lower. My question is has anyone noticed a difference in prednsione symptoms going from 20 to 15 in weight or sleep or anything. If not, I guess it is not worth taking the chance since 20 seems to finally be working. I have now been on prednsione for over a year and ready to jump out of my skin.
I am also worried about having another liver biopsy but my doctor said it is the only way she can be sure the inflammation is gone before she starts to wean me off the prednsione. She feels sometimes the prednsione can masked the inflammation in the liver tests and does not want me to relapse. Said a relapse of AIH would mean starting all over again with higher doses of prednsione. Has anyone experienced any of this.