My husband is 35 and was diagnosed with cirrhosis 2 months ago with end stage liver disease.

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sjsharrisburg
New Member


Date Joined Sep 2007
Total Posts : 2
   Posted 9/27/2007 8:31 AM (GMT -7)   
He has ascites (fluid in his abdomen, legs and feet) and is taking 2 diuretics.  He is taking lactulose for his amonia levels, and is on Oxycontin for pain.  The biggest problem he is currently facing is the quality of his blood.  It is very thin. He was in the hospital and given several blood transfusions, fresh frozen plasma, albumin, and vitamin K.  Nothing has brought his INR down (he started at 3.4 and his best number was 2.4).  He fell in the hospital and it required stitches.  The doctors are so concerned about his thin blood, that they are hesitant to remove the stitches in fear of him bleeding out.  Is there anything else that can be done to improve his blood levels?  I fear that if this issue is not corrected, he will never be healthy enough to receive a liver transplant.  Since they believe his cirrhosis was caused by alcohol (they have ruled out everything else), I understand that there is a long waiting list for a transplant in addition to many hoops to jump through.  Any advice would be helpful.

okielady
Regular Member


Date Joined Sep 2007
Total Posts : 77
   Posted 9/27/2007 11:28 AM (GMT -7)   

My husband (53) was diagnosed on Aug 15/16 with Hep C induced Cirrohsis at End Stage Liver Disease.  When his MELD score went to 25, which was Sept 10, they admitted him and started his evaluation work up immeaditly once the insurance cleared him.  They can do the workup as quickly as they want.  We still have the surgical evaluation, which is scheduled on Tues, and then be presented to a board that has to approve him to be put on the transplant list.  With your husband having alcohol related, they may make him go to AA.  I hope everything works out.  The blood thing is scary.  My husband has frequent nose bleeds that are becoming more frequint and longer and I know that scares me to death.  Good luck and my prayers are with you.

H


sjsharrisburg
New Member


Date Joined Sep 2007
Total Posts : 2
   Posted 9/27/2007 2:08 PM (GMT -7)   
Okielady, thanks for your reply.  I appreciate all the informaiton and prayers we can get.

frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 9/27/2007 6:09 PM (GMT -7)   
sjsharrisburg

Welcome to the forum.

I hope you find the information and support here that I have. There are many people here that are williing to listen and that have walked in your shoes. Please keep us posted and I will keep you and your family in my thoughts and prayers.

Lucy

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 9/27/2007 10:58 PM (GMT -7)   
Hello sjsharrisburg and welcome to HealingWell. Sorry to hear about your husband. You're right about the many hoops to jump through. But it depends on what transplant hospital you're in on how long the wait will be. Some are long and some are short. The thin blood is very scary. If he is being evaluated for transplantation he should have a dietician. Ask the dietician what foods may help thicken the blood. My husband was advised by his hepatoligists to take multivitamins without iron. He also had to take Zinc Sufate, Magnesium, Vitamin A, and a doctor prescribed Calcium. He also took Milk Thistle. Hopes this helps. :-) Pink Grandma

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/28/2007 6:58 AM (GMT -7)   
Sjs, welcome to the forum! I just wanted to mention the issue of discrimination against those who drink (or drank) alcohol: I believe that does not make a difference in who gets approved for transplant or placed on the transplant list. However, he would have to go to AA for 6 months and have that amount of sobriety before being placed on the list. Where one is placed on the list is based on need, with the sickest being placed at the top. In your husband's case, it certainly sounds like he would not be approved right now, based on the thin blood. I suggest you get with his GI doc or hepatologist to learn how you may improve this.

Good luck!

Connie

Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 10/1/2007 6:10 PM (GMT -7)   
Welcome SJS, and okielady,

Sorry to hear about you husbands. It is a scary time for you both and I hope and pray everything works out well for you both.

I had platelet transfusions for the thin blood, prior to my "jugular" vein liver biopsy. With further medication my INR is now 1. But I was not end stage liver disease - AIH induced cirrhosis - the AIH under control with meds and hopefully the cirrhosis not getting any worse.

Can't give any advice but can lend support and prayers.
Take care.
Marg
 

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