How can I make them see him as a liver transplant canidate?

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Ruth Ann
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/3/2007 8:51 AM (GMT -7)   
Hello all - I have been reading your posts for a while now - I learned about lactalose from your site. But this is my first post. My family is weary and tired although I'm sure that none of it compares to the suffering that my father is going through. I've tried to ask the doctors if he has end stage liver disease, but they say that is not a technical term. He does have chronic (possibly acute-on-chronic liver disease). He has kidney failure. He has been on a ventilator (now of yesterday he has a "trache"). He is having dialisis. He has recovered from sepsis and amonia (the old man's disease) with the quick help of ICU antiobiotics. He is confused (due to the the toxins from liver and kidney). He bleeds easily (although they can find no internal bleading). His blood is thin. He barely opens his eyes and just squeezes my hand (maybe I think). We can't seem to kickstart his kidneys, but the kidney doctors refer us to the liver doctors. I want him to have a transplant (liver) because our family think thats the only way. They say his MELD score is high, but inflated b/c of kidneys. But his kidneys would work if the liver wasn't making them do overtime.... Anyway they have quietly said no to a liver transplant. (He was a hard worker, a hard drinker a good man and a loving father - and he's been sober for 2 years). Doctors say he is not healthy enough to get on the list and the transplant team doesn't seem to want to talk to us anymore. How can I make them see us as a canidate for liver transplantation? He's been in the hospital for 5 weeks and ICU for the past 2. Now they are saying there is nothing else they can do. We'll have to see if he can breathe on his own or take him to a ventilator hospital. What else can I do? Is he really not elligible or do I need to push harder? How can I make them see him as a canidate? Is this our only option? How can we make him better! or am I asking the wrong questions? - Ruth

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/3/2007 1:33 PM (GMT -7)   
Ruth, due to all that your dad has going on, I can see that he would not be considered a good candidate for transplant. His age might also factor into it. For transplant, they want a patient that is well enough to go through surgery. I have never heard of anyone having kidney failure getting a liver transplant.

What did you mean by saying amonia (high) is an old man's disease? It is not. Anyone who has high amonia can be in the confused state. Same with sepsis, which is an infection of the blood.

Just do whatever is best for him, and see that he is kept comfortable and free from pain. And pray for a miracle.

Hugs,
Connie

Ruth Ann
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/3/2007 2:38 PM (GMT -7)   
Sorry, I meant pneunomia is a type of infection that can really get a hold of an older person (I know that ammonia is the level of toxin). I don't really have two brain cells to rub together. Thank-you for your help and kind thoughts. Right now I think they want us out of ICU and so we have to find another high care area. The balance is tenuous and if he doesn't recieve certain treatments he will not survive. It would mean comfort and perhaps a death through a minor neglect on our part (like his blood pressure drops and I call 911 and it doesn't work....) If we take him home we would probably have to buy a dialisis machine. Do you know anything about this?I mean - he wakes up occassionally looks me in the eye and squeezes my hand. I know that he is there (f we could just make his body better). I con't think that I can pull the plug on him (even if the doctors keep hinting at it). Ruth Ann

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/3/2007 8:33 PM (GMT -7)   
Ruth Ann, most dialysis patients receive hemodialysis (usually 3-4 x a week) at stand-alone dialysis clinics or at hospital dialysis departments. There is something called peritoneal dialysis that can be done at home. Since your father definitely doesn't seem well enough to do this treatment hiimself, this would fall to you, or another close relative. He would have a machine at home, and you would be taught how to do the treatment. PD is not as successful as hemodialysis, but you might want to look into it. Most dialysis patients opt to get treatment at a dialysis center. Your dad could go to a skilled nursing facility, if he is being pushed out of the ICU. When he has a lucid moment, ask him if he wants to fight for treatment of his kidney/liver failure.

Hugs,
Connie
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