questions about AIH

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DeeMots
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/8/2007 6:40 AM (GMT -7)   
Hi I am new here and have recently been told my blood shows a low positive for AIH. What exactly that means I am still not sure, because I do not know what blood tests were done. I see my doctor today to follow up on the blood work.

One concern I have is did they take you off all medication before doing your liver biopsy?

My mom says that they should and need to. I am nervous about this because I take the medication Luvox for OCD and it is VERY hard to stop taking. I tried to slow my meds but got a massive head aches which made me research withdraw from Luvox and well I didn't realize just how difficult getting off it would be. The meds do help me with OCD but I am willing to do whatever i have to do to prolong my life. I have two kids so it isn't even about me ya know. I dream that I will be healthy enough to have another child in the future as I am not quite 28 years old and not ready to start a count down on life.

TIA
dee eyes

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 10/8/2007 8:04 PM (GMT -7)   
Hello Tia and welcome to our forum. We do have some people here that have AIH. Hopefully one of them will see your post and reply soon. Did you get any ansers from your doctor today? Don't be afraid to ask him questions. He should be able to tell you want you want or need to know about your test results. Good luck and take care.
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going!


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 10/9/2007 5:52 AM (GMT -7)   
DeeMots

Welcome to the forum. I too have AIH. I believe that a low positive means that your blood work ANA's just not in a high level. It is not unusual for doctors to rerun blood work to make sure that their were no mistakes or to run additional tests.

I believe that I was not allowed to take any medications prior to my biopsy. However I did not take any meds on a regular basis. You should talk to your doctor about your concerns regarding Luvox.

This does not have to be a count down on life by any means. Positive thoughts are very important. I know the fear of the unknown and the overwhelming feelings. I have found that educating myself has helped eleviate some of the fears and the support that I have found here has helped tremendously. There are several people on here that have had this disease for a while and have became stable with the aid of medication.

Good luck with your doctors appointment and do remember do not hesitate to ask them questions. Please keep us posted

Will keep you in my thoughts and prayers.

Lucy

Lil Miss Kathy
New Member


Date Joined Jun 2006
Total Posts : 17
   Posted 10/9/2007 10:35 PM (GMT -7)   
hello there Tia,
  Welcome to our forum. If I am understanding what you mean by AIH, then I did not take meds before mine either. She's right though your doctor is the best one to tell you. I  was diagnosed with Auto Immune Disease, and chronic liver disease, (auto immune hep included) about 5 years ago. Have had more than liver biopsy in my day, they kinda got routine to me by now. I  want to wish you all the best, I really hope things go good for you in the future. Hang in there, one thing my DR told me was this doesn't have to be a death sentance. You can live with it. Take care !!!
 
                                            Kathy

DeeMots
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/10/2007 5:57 PM (GMT -7)   
Hi and thank you for the replies! My doctor is having an ultrasound done on my liver tomorrow and he had me redo my blood work. My ANA was 1:80 ....possible autoimmune hepatitis or small chance of lupus. When I find anything out I will post again. TIA( thanks in advance)... sorry different board different lingo I will cut that out. I used to be a regular on some trying to conceive/mommy boards.
Call me Dee.

Thanks again yall are great.

Dee

Lil Miss Kathy
New Member


Date Joined Jun 2006
Total Posts : 17
   Posted 10/10/2007 8:30 PM (GMT -7)   
You're welcome Good luck !!!! lmk

DeeMots
New Member


Date Joined Oct 2007
Total Posts : 5
   Posted 10/12/2007 7:06 AM (GMT -7)   
My ultrasound was normal. My liver levels are normal. The only test I haven't got back now is the ANA. It sounds like I am ok thought, right?
hugs
dee

Lil Miss Kathy
New Member


Date Joined Jun 2006
Total Posts : 17
   Posted 10/12/2007 1:31 PM (GMT -7)   
Congrats !!! DEE wtg your doing good... keep up the good work and positive attitude.
Hugss lmk

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 10/12/2007 7:54 PM (GMT -7)   
That's marvelous news Dee, Hopefully your ANA will be fine also. Take care.
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going!


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 10/13/2007 6:08 AM (GMT -7)   
Thats wonderful news Dee. I hope you are feeling better. Will keep my fingers crossed that your AVA are in normal range.
Best of luck.

Lucy

DGinSD
Forum Moderator


Date Joined Apr 2007
Total Posts : 839
   Posted 10/17/2007 10:22 PM (GMT -7)   
Hello Dee and everyone,

I haven't been on in a while...busy! Dee...I wouldn't worry too much about your ANA levels...just make sure you have them checked regularly....and speak with the docs about checking other antibody titers for other autoimmune disorders. The first time my ANA were elevated, (2003), they were at 1:640 That was the only level that was off, they were monitoring me for connective tissue disorders. So I went in annually to a rheumatologist. In hind-sight, maybe should have looked into it more with other specialists but the rheumatologist wasn't terribly concerned since nothing else was elevated. Anyway, I was diagnosed with AIH in January of this year. I had what the doc called a severe first episode, no cirrhosis but severe cell loss. Initially, ALT was 848, AST 748 and high bilirubin (first check was at 9 but by the time I was diagnosed after having blood tests about every other day---had a steady climb to 23.3 (within a 2 week period)). Will be on meds indefinitely but once of the prednisone (only at 7.5mg/day), I'll only be on Imuran.
Definitely not a death sentence though. We, as long as our livers keep respondng to the meds, are expected to have the same life expectancy as the average Joe/Jane! With obvious higher risks but life is short and we should be enjoying it and not stressing too much. As I always say, it could be worse!
Initially, I had some issue with having a chronic illness but I haven't let it stop me yet! I'll be walking my second Breast Cancer 3-Day (60 miles) in a few weeks and have been training as much as I did last year with no problems!

So good luck Dee with solving your mystery! I hope it ends up being that you simply have an elevated ANA (the rheumatologist--and I've seen it online before---said that there is a percentage of the population with some elevation that never becomes anything)...fingers crossed.

Write back so we know how you are!

Take care all!

Dany
Dany


IALupus
Regular Member


Date Joined May 2006
Total Posts : 78
   Posted 11/7/2007 6:43 AM (GMT -7)   
I have Lupus and AIH. BOTH SUCK. But I am going to say is "Don't worry till you know there is something to worry about!!!!"
Hugs to all!!
SLE 9/99-Autoimmune Hepititis 2006- Asthma- Fibromyalgia   The list is tooo long for me to type!!  Just ask I will tell.
Methotrexate, Immuran, Singular, Protonix, Allegra-D, Combevent, Duo Neb, Lasix, Imeripex, Flexiril, Zoloft, Predisone and pain meds. There is more but not that important.


IALupus
Regular Member


Date Joined May 2006
Total Posts : 78
   Posted 11/7/2007 6:44 AM (GMT -7)   
I have Lupus and AIH. BOTH SUCK. But I am going to say is "Don't worry till you know there is something to worry about!!!!"
Hugs to all!!
Nicki
SLE 9/99-Autoimmune Hepititis 2006- Asthma- Fibromyalgia   The list is tooo long for me to type!!  Just ask I will tell.
Methotrexate, Immuran, Singular, Protonix, Allegra-D, Combevent, Duo Neb, Lasix, Imeripex, Flexiril, Zoloft, Predisone and pain meds. There is more but not that important.

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