Possible AIH and liver biopsy, I'm scared.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

pupluv
Regular Member


Date Joined May 2007
Total Posts : 256
   Posted 10/11/2007 7:15 PM (GMT -7)   
Hi, I usually post on the UC board for obvious reasons. I have UC. Last year I had a really weird virus that messed with my ALT and AST. For some reason the doc did a ASMA(I think that's right) and it was 1:360. I brought it up to the GI doc at the time, they checked my liver enzymes and said it was fine. So, I mentioned it to my current GI doc(who is great), and he was suprised that nothing else was done. He is rechecking my ASMA and said he may have to do a liver biopsy. Autoimmune Hepatitis sounds really scary. Isn't a liver biopsy risky??? Why exactly would a liver biopsy have to be done? Does a high ASMA mean AIH? I am already on Azathioprine for UC is that a problem? Any answers would be appreciated.
Thank you
Donna
Donna
Diagnosed with indeterminate colitis in 1992
current meds
4 asacol 3x's a day
Azathioprine
Rowasa enemas as needed
VSL3
Bunches of vitamins


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 10/11/2007 7:31 PM (GMT -7)   
I just want to welcome you Donna. We have several members with AIH that can probably answer your questions. Hopefully they will respond soon. I am not very knowledgeable about AIH myself. Just wanted to say hello.
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going!


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 10/13/2007 6:52 AM (GMT -7)   
Welcome pupluv,

I do have AIH which was diagnosised in 2005. I also have crohn's disease. It seems that a lot of people get several immune disorders once your system goes out of kilter. A high ANA level means that your immune system in out of whack basically but it is not the only factor that determines whether or not you would have AIH. From my understanding those levels would be elevated in connection with other immune disorders too, but your specific liver enzymes would also be highly elevated consistently. Illness's and medications will also effect liver enzyme levels. My AST and ALT's were for the most part 6 times higher than the normal range and stayed there for nearly a year after I started having problems while my doctors were trying to find the right medications. A liver biopsy is necessary to determine if you have any liver damage and can certainly pinpoint other diseases or conditions. Teh last one I had was not painful and really very quick. The only part I found difficult was approximately six hours that you have to lay still following the proceedure.
Good luck and don't hesitate to ask questions to your doctor and research all you can . I believe that knowledge takes some of the fear/power our of these disorders.
Keep us posted.

Lucy

pupluv
Regular Member


Date Joined May 2007
Total Posts : 256
   Posted 10/13/2007 11:22 AM (GMT -7)   
Lucy, thank you for your response. I know I have a high ANA and a positive ASMA. My liver enymes have been pretty normal, except for a couple of times. I had a "virus" for about a week and my liver enzymes went out of whack. But then afer the flu like symptoms were over my liver enzymes went back to normal. I know ti wasn't the flu. My GI is pretty sure I will have to have a liver biopsy. Is that really necessary if my liver enzymes are normal?(we are checking that now). Could it be something else besides AH or Lupus? Is your AH kept under control? I have some other issues going on and it just seems like there is always something. Thank you again.
Donna
Donna
Diagnosed with indeterminate colitis in 1992
current meds
4 asacol 3x's a day
Azathioprine
Rowasa enemas as needed
VSL3
Bunches of vitamins


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 10/13/2007 6:17 PM (GMT -7)   
Donna

Right now my liver enzymes are under control for now with medications, at least they were the last tests I had. I am due to go back to my gastro doc in a couple of weeks so I am hoping to get continued good news. I take prednisone, urso, and two diuretics. I took cellcept but was unable to tolerate it. A liver biopsy should be able to tell you if anything else is going on with your liver. I believe they are fairly normal when they suspect that there could be problems.

I think that rha also causes your ana to elevate and someother immune disorders. I know it is hard but try not to worry or stress too much. Stress seems to negatively effect AIH and I am sure most other disorders too.

I completely understand the feeling that something is always going on. Seems at times like it is one step forward and two backwards.

Keep us posted.

Lucy

mom's "will" to live
Regular Member


Date Joined Oct 2007
Total Posts : 111
   Posted 10/13/2007 8:29 PM (GMT -7)   
Donna, When are you having your biopsy? I have never had one but, my son Will has been thru 2. First one they put him to sleep because he was 16. Second one on Sept. 21st .He did just fine! They medicate you highly but you are awake for the process.You have to rest and no lifting,no driving and a few other don'ts for 24hrs. Sorry I couldn't be of more help everyone has different pain levels. With all the poking and proding that my Will has been threw I'm not sure I could have done it. Don't be scared Will did tell me it wasn't as bad as he feared it would be. Good luck! You will do fine I'm sure.Thoughts and prayers are with you.
           
Toni

pupluv
Regular Member


Date Joined May 2007
Total Posts : 256
   Posted 10/14/2007 10:42 AM (GMT -7)   

Toni, I don't have a biopsy scheduled yet but my GI doc said that he will probably do it. He is doing more blood work. But the fact that my ASMA was a high pos. he said that it will have to be done. I'm reading mixed reviews. Some say painful, some say it is not. I have also been reading that it could be risky. I hope your son is doing well. He's too young to go thru all of this. Thank you for taking time to respond.

Donna


Donna
Diagnosed with indeterminate colitis in 1992
current meds
4 asacol 3x's a day
Azathioprine
Rowasa enemas as needed
VSL3
Bunches of vitamins


Kaybob
New Member


Date Joined Oct 2007
Total Posts : 1
   Posted 10/16/2007 8:44 PM (GMT -7)   
I am a new member to this site, but wanted to reassure you that having a liver biopsy is not painful!! I have had two over the past five years (in fact I just had to have one last month). I have autoimmune hepatitis. First episode was in 1998 , second in 2000 and third and worst in 2002 ( took till then for a correct diagnosis) I was placed on the transplant list in 2002 and was touch and go for a while. But they put me on large doses of Prednisone and that brought my levels down (slowly) also added Imuran which I tolerate well. I was lucky and did not have to have the transplant but my recovery was slow. Good news is I have gone for 5 years before I had another episode! This last one was mild in comparison and of course the Drs. knew what to do. I am back on the Prednisone (ugh) but it works. But they will wean me off of it and leave me on the Imuran. Best of luck to you and really do not worry about the biopsy. Worst part is you have to lay on your side for several hours after the procedure but they make you very comfortable. I was not put to sleep and there was absolutely NO PAIN!!!!
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 9:22 PM (GMT -7)
There are a total of 2,736,194 posts in 301,359 threads.
View Active Threads


Who's Online
This forum has 151449 registered members. Please welcome our newest member, iwanttocry.
237 Guest(s), 5 Registered Member(s) are currently online.  Details
PDL17, RickyB, tickcheckguy, Mustard Seed, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer