Good morning all,
Question has anybody noticed the person that has the Hep-c when they get this sick they have a strange oder to them? I don't know if it is from the lactalose or what. Any ideas?
I also wanted to appoligize for one post I left, I think I was very tired and confused. Not knowing how to forsure to deal with my mom being in this state. I can't quite understand it being a spouse. Only to the point of my partners brain tramua from falling off of our roof. But guess dealing with it being a parent is hard, because they are the ones who made things right. Hope this makes since. She is 63 years old and looks like she is 100. I have a friend here who has help me understand a little more how to deal with her not knowing how to do things. But I do thank you all for your support. Hope you have a great day.
Have a safe and Happy Halloween
Jamiesota, I know exactly how you feel. My mom was so sick and so confused we had to follow her around the house and fix what she did. She would leave water running in the faucets, food cooking on the stove, etc. It was heartbreaking for us all. She had always been such an articulate speaker and at the end she made no sense at all. She too lost weight rapidly and refused to eat most of the time. For us it was probably most sad to watch her cry because she knew she wasn't making sense and doing strange things. I was so sad when the big transition came for her and she slept the majority of the time. I still am grateful that we were able to keep her at home as long as we did. I guess in all truthfulness my father (85 yrs old) deserves all the credit. He took 100% care of her the majority of the time. My mom fought a good fight right up until the end. I was and always will be proud of her. Keep your chin up and remember all the good times you have had with her. That will sustain you during the bad times.
Hello Jamie about the odor. I noticed it with my husband also. A nurse told me that it was ammonia. When his ammonia starts getting high I give him 2 tbls Lactalose every hour. It usually takes 3 to 4 hours to start working. I have managed to keep it under control that way. The first time I had to deal with high ammonia I couldn't get my husband in the car. He just didn't want to go to the hospital. Its understandable since we had been in every other week for 3 months. I finally called an ambulance. They said they couldn't make him go unless we called the police and they assessed him to be incompentant. Well, my husband turned in to hostess with the mostess!!! Offered them coffe or anything to drink. Visited with the police like they were old buddies. To make a long story short they couldn't make him go. Clearly they knew something was wrong but you cannot force them to go. That was my first experience with high ammonia. It took me two days to get him to the hospital that time. He ended up wearing my bathrobe in to the emergency room. I didn't care was just glad to get him there. His ammonia level was in the 80's at that time and he doesn't remember anything. Another time he was hospitalized for dehydration his ammonia level was up to 140 and he was a clear headed as he could be!! I discussed this with Vanderbilt and they don't take a lot of stock in the ammonia numbers because a lot of hospitals don't get it on ice right a way and the number can be wrong. So now I just go by the way he acts. My husband is not on the transplant list yet. We go to Vanderbilt on 1/15 for two days of tests as an outpatient. After that the committee meats to determine if he is eligible. As slow as things are going it will probably be another month for that decision! My step son wants to persue a living donor transplant. Any of you have any experience with that. We haven't even determined if he is a tissue match yet. I sure hope so becasue I don't know how much longer he can hold on. I didn't know it was possible for him to get as thin as he is. He looks like a skeleton walking around. He still isn't at the stage where he wants to sleep all the time but I can see that coming. S
Shelly I envy you being able to open your doors and windows. We are in East Tn and it was 14 yesterday and 18 today. Suppose to be in the 60's next week. I can't wait. As long as the sun us shinning thats all I need. Hope the sun is shinning for all of you.
Hi, June! Thanks for posting. It really kind of amazes me that with the chronic active hep C, my liver function tests were never exceedingly high and I've never had high ammonia. Just had a huge cancerous tumor instead, and lost the right lobe of my liver. I think it is probably preferable to what most of you have been going through, either personally or as a caregiver. My only complaint now is a sensitive digestive system, since the hernia repair. I do tire easily, but I've lived with that so long that it seems normal to me.
Jamie, so sorry to hear what you and your mom are going through. I know it's emotionally exhausting for you. Please rest when you can.