I have hep c -been thru peg interferon -2 yrs- so if you need me.....

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sablelulu
New Member


Date Joined Oct 2007
Total Posts : 6
   Posted 10/21/2007 10:19 PM (GMT -7)   
 Its along haul an i know my God is with each an every one of you
  From this moment on , I want you to know how important you are to yourself an your family -God be with you
 My name is sablelulu but its really Marylou -i have nothing to hide
 This stupid disease wont stay hid nether am i tongue   lol
  Alittle bout me - i am 48 -same partner for 16yrs -one dog one cat -beautiful apt and the love of the good Lord -
  I was diagnoised with hep c in 2002 -started on chemo -peg interferon in 2003 an i hope we attacked all the virus-So far o good I have been inremission for 1 yr an 1/2 - BUT-- i have
no thyroid on 125mg of that -took galbladder last month an i have nerve damge so i have surgery oct 23rd --this is when i am having all RNA's checked again (been sleeping alot))
 interferon eats at everything not to mention it is alot like the bird flu -- I did it --SO can you !!!
 it works!! i dont care what they say --it works~!! I took 6 pills ribrovivi somethin like that -along with the peg -
 We discovered this hep c after i kep sleepi n alot -I had open heart in 1967 when i was 9 yrs old soooo -doctor thinks i was giving a blood transfusion -it surfaced what..20 30 yers later -yep thats HEP c - 
         you will be fine --we will make it And i am here for you if you need anythin--i will cry with you laugh with you
  BEEN  there done it --Now i am willing to do with you
       NEED me ??write me --marylou ---sablelulu 

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 10/22/2007 6:11 PM (GMT -7)   
Welcome to healingwell Marylou. So glad that you found us. And that you are doing so well. Keep that positive approach. It will get you far. Thoughts and prayers,
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going!


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 10/22/2007 7:00 PM (GMT -7)   
Hi Marylou. It is good to hear that someone beat this disease. My husband went throught the treatment two times. He was in remission for six months at one time, but it came back. He now has cirrhosis. The only thing that can help him now is a transplant. That is only when he gets sick enough (near death). With cirrhosis you never no when something will happen. Thats what makes it so frustrating.

My husband developed throid problems also after the second series of treatments. It corrected itself after about a year. What type of nerve damage did you develop if you don't mind me asking? I will pray that your sugery goes smoothly and that you have a speedy recovery.

sablelulu
New Member


Date Joined Oct 2007
Total Posts : 6
   Posted 10/22/2007 11:06 PM (GMT -7)   
Thank you both ,Butterflytree an Pink grandma ,
I am up late cause surgery is at 2.pm today -What a time to go without food -Thank you for the prayers Pink, trust an believe the Power of Prayer is definitly what helped me thru this - Yes its tough -Not sure if i could do it twice ,Butterfly-you have a strong
guy there .
Well after seeing doc today he said its not carpal surgery cause he isnt going to cut at wrist but up by the elbow.He is like thinning out the nerve where the muscle is an if that seems to look ok, hes done if its thick then i guess he puts it behind the muscle ? Hes just glad i caught it in time -He said alot of people think there fingers (thats whats numb an wont move on left hand ) are asleep an ignore it an it will get worse an effect the neck an back -if its carpel tunnel i would have been in more pain instead of numb -All greek to me but thats pretty much it
I had open heart like i said an everytime they do ekg -It always shows i have something wrong with the heart but its really where they fixed it --boy it was along registration today -i smoke so the anastelogist?lol is not happy - i really do need to quit -i have no disc in back an full of arthitis -Does your husband have problems with the back?? Oh yea an they took alot of blood because i have no potassium along with the thyroid --SEE sometimes i wonder if it was all worth it - I still feel flu like symptoms alot an the headaches i never want again -they seem
to last forever -i feel like i could write forever -that this is only place someone knows how i feel an how depressed i get but .. i smile an go on --just truly wish i found this place before now but am so gratful. i feel like i have friends - thank you all so much for the prayer an back at you -
i pray for everyone in here -love sharing even if its not all good ... Its really all good
wish me luck --thanks again -God Bless you all Marylou

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 10/23/2007 7:24 PM (GMT -7)   
Marylou, It sounds like you are a pretty strong person too, to have gone through so much. I hope everything goes smoothly with the surgery.
My husband does have back problems. He has degenerative disc disease, some bulging discs, among other things. It gives him a lot of pain. He is on medication for it. I think the medication probably causes some of the encephalopathy episodes. My husband also suffers from depression and is on medication for that also. The doctors wanted to put me on Zoloft a few years ago for depression but I declined. I hate taking pills. It seems like they take care of one problem and cause another. I suppose one day I will not have a choice. I feel very depressed at times--well most of the time, but I try to remind myself of the good things I have in life. My kids and grandson keep me hanging in there.
I am glad that you found this place. I joined I guess about 3 weeks ago, and it has really been a big help to me.
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