hepc really loves me

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New Member

Date Joined Nov 2007
Total Posts : 3
   Posted 11/18/2007 3:16 AM (GMT -6)   
 When I was diagnosed with hepc in 1992 the docs said I would die of old age before I had any of the symptoms or complications of hcv.  I spent almost 4 years just trying to get someone to listen.  People made assumptions. when I had misdiagnosed ulcers and called an ambulance, the emts made me crawl into the bus because they didn't want to touch me!!  They kept asking "when did you last drink or drug?" Which I don't. even at the er the nurse gave me a wash basin to vomit into and she said you'd better not spill it cause you'll have to lay in it.  I asked for a blanket and was told there were none available in the er anymore.  I was a nurse for 19 years and have never seen such a callous and cold-hearted response to anyone's suffering.  And now,  I have cirrhosis, ITP, and Hepatic Encephalopathy.  Take my word for it..la-la land is no fun it's very scary and confusing.  If I can help anyone out there, leave me a post.  Thanks ! nono

Pink Grandma
Veteran Member

Date Joined Nov 2006
Total Posts : 2445
   Posted 11/18/2007 11:28 AM (GMT -6)   
Hello Hepcgirl, Welcome healingwell. I can guarantee you that we won't treat you like that. Back then everyone was ignorant about the disease including alot of the doctors and nurses. Some still are. Do you drink at all now? If so you really do need to stop. Following the doctors orders about meds,diet ,rest and excercise will delay the progression of the disease but at some point you will probably need a liver transplant. My husband past away from liver cancer caused by hep C and cirrohsis this past April. So even though I myself don't have the disease I do know a bit about it. There are alot of knowledgeable people on this forum and are here to share their experiences and offer support with this horrendous disease.
So stick around and if you need any support or infomation we will be right here. My thoughts and prayers will be with you.
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.

Elite Member

Date Joined Jul 2005
Total Posts : 12014
   Posted 11/18/2007 3:11 PM (GMT -6)   
Welcome, hepCgirl. Pink G., she stated in her post that she DOES NOT drink or drug. ;)

I've had some experiences like that with a dentist and with co-workers in '93, when I was first diagnosed. I agree that such reactions are the result of ignorance and lack of information.

There is a new RN who posted here asking for information in the form of an interview/questionnaire. One of her questions involves this very thing--how hep C has affected you socially, at work, etc. I'm sure she would love your participation. Look for her post towards the top of the hepatitis section.

Please come back and let us know how you are doing.


New Member

Date Joined Nov 2007
Total Posts : 3
   Posted 11/18/2007 4:33 PM (GMT -6)   
 No I don't drink or drug.  I may have had 5 drinks since 1994.  I did have my initial appointment at IU transplant clinic.  My RNP, who is stupendous, wanted me to "get my foot in door"  to facilitate options for transplant since my hcv is now galloping right along.  I hope no one out there had to experience the encephalopathy.  That is the scariest thing.  If you are having periods of confusion, motor skills impairment, tell your md right away.  I lost hours. And my job.  the treatment is inexpensive, not unpleasant and you'll never have to buy exlax again.  Hope you all have a happy sunday!! cool

Veteran Member

Date Joined Oct 2007
Total Posts : 954
   Posted 11/18/2007 6:31 PM (GMT -6)   
Welcome hepcgirl, My husband also has hep C and cirrhosis. He had an exprerience with a Dr one time. He had a hole in his nasal passages and the doctor "in front of one of our children" told him that it was caused from snorting drugs, which he does not do. I think it was actually caused from the hep C treatment he was on. He was constantly getting sinus infections. My husband also suffers from encephalopathy. I wish I had been more knowledgeable about it when it first started happening. He suffered with it for months before I realized what was going on. Maybe he would still have his job. Lactulose has done wonders for him. At one time I felt like I was losing him forever, but he is now more himself.
I am glad that you found us and am here if you need to talk.
There is always hope!

New Member

Date Joined Nov 2007
Total Posts : 10
   Posted 11/26/2007 9:26 AM (GMT -6)   
hi hepcgirl.

people fear what they don't understand. i also had fears in the beginning because i did not want to risk giving this disease to anyone. i still don't!
the treatment from health care persons should always be with compassion and respect. for myself i have decided if i am treated otherwise that i will calmly make a stand for myself, responding that i deserve better care.
it is funny really that we accept this type of care (medically) when we would fire anyone else...car repair, etc...
as a former health care employee i apologize to you & pray that your future care is given respectfully!

lol, tld
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