i exhaused, my thoughts and prayers are with you. i agree with you if they have no quality of life you have to let them go. i lost my father to liver disease on december 18 2006, he was 88 but it was still horrible, i read tthe posts to help me understand more about the disease, wish i knew this much about it when he was very ill but didnt have time to research it as much. he had this disease for a very long time but we didnt find out untill july of 2006. some times the drs miss to much and think its just old age. take care and my prayers are with you. she is not in pain anymore. miss my father to. annette
Thank you all for your words of comfort. It really does help. It is so wierd for me to be on the other side of this. Usually I am trying to comfort and console others and now I am relying on others to comfort me. Sureal I guess. Anyway, as I said I will continue to read the posts as often as I can and I will add my own comments too. I have been uplifted by your words and my heart still breaks for those of you who either are going thru this or have already gone thru it. When I feel my saddest I remember my moms words, "Look at life as a big adventure." Part of every adventure we embark on ends at some point. I have discovered that her outlook on life as well as death was quite profound. At least for me. Since her life as we knew it is over, if you are a believer in God then the adventure just continues rather than ends. She was pretty smart I think. Thank you again.
Shelly, we must be online same time as I reply to you well tag your it. Okay, SunRay city is in the heartland area of the State. Where's SunCity? We are in Sebring Fl. right below Polk County.I have 4 children in all and everyone of them are special and unique in their own way's. Like you were saying about your mom and her outlook on life, my Will is the same, I've always told him to live each day as it were going to be his last. I think of my kids as my best friends and it's funny the older I get the closer we all become! I'm very blessed! I will never give up this fight and nor will he this is just another curve ball. This Friday 7th we will know if were back up to bat! Wish us luck!
Connie, thanks for your kind words. I hope I can get myself together soon. I feel like I am in a fog sometimes and unable to get my thoughts together. You and I agree that quality of life is the primary goal. I am so thankful that my mom was medicated so heavily. Some Dr's are afraid to do that as you probably already know. We were very fortunate to have recieved the care she did in Hospice. Suffering until the end is horrible.....in my experience I can tell you that nurses are the patients best advocates. Since most of us work 12 hour shifts we get to know our patients pretty well. It is usually we who call the Dr and get meds increased so the patient is not in so much distress and pain. In hospice I can say that the Dr's are very active in the patient care. (Although I have to admit I was like a hawk- evaluating every move on their part.) Her passing was a blessing but my own selfishness didn't want to let her go. I know that "This too shall pass" but it is hard. I have been blessed with a lot of support from you and others from this site. Thanks again and I will continue to keep all of you in my prayers.
I will try to keep up with the site, being informed so that people can make intelligent decisions has been one of my primary goals. Smart people make smart choices!
Shelly, from posts here and from personal experience with a friend, I know that hospice care is wonderful. The nurses are very attuned to what is happening with the patient and can recognize the signs of impending death. Hospice also believes in keeping the patient as pain free as possible through appropriate medication, and easing the patient into their passage to "the other side."
It was unselfish of you to give your mom permission to let go. Many times, as I'm sure you know, patients will not let go if they feel a child or spouse doesn't want them to, which only causes additional suffering for terminal patients.