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mommyangel
New Member


Date Joined Feb 2007
Total Posts : 14
   Posted 12/4/2007 3:30 PM (GMT -7)   
Its been awhile. my moms is still alive for now she is going down hill quicly though.
I wanted to say hi and see how everybody id doing

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 12/4/2007 4:37 PM (GMT -7)   
Hi mommyangel, I don't know you, but I am sorry that your mother is not doing well. My husband has hep c cirrhosis. He has been really tired and sleeping a lot lately. I guess that comes with the disease.

I will have you in my prayers.
Butterflythree
 
There is always hope!


mommyangel
New Member


Date Joined Feb 2007
Total Posts : 14
   Posted 12/4/2007 6:42 PM (GMT -7)   
Hello yeah my mom sleeps 15 to 19 hours a day. Hope is good and your right there is always hope. unfornatly not for my mom. Maybe some spiritual growth. She has done treatment she didn't respond and she is not a canidate for transplant. She was told 2 years ago that she needed a transplant or she was going to die. She has end-stage liver disease. Since I was 18 she has taken medicine to control the complications, Doctor told me 2 years ago that her liver is completly cirrhatic from the cirrohsis, and it was going to start to cease function he didnt no when. So she has had hep c for 37 years. and end stage liver disease for 4 1/2 years and this past year she has turned into a really sick person. She looks so bad. She has numerous problems ranging from chronic high ammonia levels portal hpyertension and mrsa a antiboitic resistent staph infection. tremours shaking and uncontrolable face movements and so forth. Docs are saying its just a matter of time Because she has succeeded the doctors expectations. So they are dueing alot of test right now because something is wrong. They wont tell me what they are testing her for. So I'm waiting to get a phone call from her doctors. hey Please what ever you due Take care of your husband for unless he get treatment and takes excellent care of himself. I hate to say this but it wont be a good outcome. I say this because I ve knwn since I was 9 and im 23 and she has managed to exceed expectations due to listening to the docs. The medicine does work. Well got to eat dinner Atlk to you later

1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 12/4/2007 6:58 PM (GMT -7)   
mommyangel, I am so sorry about your mom. I fully understand the anxiety you feel right now. My mom passed away 3 weeks ago (Nov 13). It is hell to watch them slip away from us. She slept most of the time near the end too. We had her admitted to hospice to control her pain. That was the best thing we could have done for her. This forum has the most wonderful people responding to the posts. I hope you continue to keep us all informed as to her condition. But; remember that you are important too. I've come to realize in the past day or two that it is harder on the survivors than on those that have passed. Everyone here will support you emotionally-they are marvelous!

mommyangel
New Member


Date Joined Feb 2007
Total Posts : 14
   Posted 12/4/2007 8:33 PM (GMT -7)   
:-)  Yeah its a very tough situation for me and My heart deeply feels the support in this forum and its what I need as well as everybody who has found this site. Its truly a gift to learn how to grow and heal and help heal with just some words from the heart. I'm thankful!!!!!!!!!!!! I'm going to be talkin to my moms nurse in a little while. She has so many Doctors and nurses. This one is at the assisted living home. Her home doc ordered a bunch of test to get an idea of how her liver is function. Basically a closer look. I mean she has had end stage liver for 4 and half years. They have on Oxycodone and Morphine for pain. Her shuolder is broken in three different places. They say its due to muscle wasting. They wont give her physical therapy for it but they stared for he arm because it is her right arm. She fell on the wet ramp outside the place.  Yeah and they wont even do surgery because they think she will bleed to death. So I just want them to be good to her. I wish I could take her in but she is way to sick. So what can you do. 
 
I'll write later sorry its to much. thanks for listening.

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 12/4/2007 8:57 PM (GMT -7)   
Hello Mommyangel, and welcome back. I just wanted to tell you how very sorry I am that you are going through this with your mom. My thoughts and prayers will be with you.
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 12/5/2007 4:19 PM (GMT -7)   
Mommyangel, I just want you to know that my heart goes out to you. It sounds like you had to start dealing with your mom's illness at a young age. My husband was diagnosed with cirrhosis, portal hyperstension, and varices a little over a year ago. I started noticing changes in his personality probably about a year before that. He isn't really going through any of the really bad stuff yet, and it is already almost more than I can take, so I can only imagine what you are going through. You miss the person that you loved and still love so much.

I will be here if you need anything, and I will keep you in my prayers.
Butterflythree
 
There is always hope!


mommyangel
New Member


Date Joined Feb 2007
Total Posts : 14
   Posted 12/5/2007 6:45 PM (GMT -7)   
Thanks so much for the kind words. Im going to move up where she is to help take care of her. I think they are testing her for cancer. Her liver panel test are way out of wack and they are running other test but they wont tell me what they are running. And her liver specialist request that she come in and see him. she has had him for over ten year she was diagnosed with it about 14 years ago. But she is somewhat ok she kinda can have a decent conversation but she forgets what she is saying alll the time. its hard but the way the family gets buy is by laughing about when she does says stuff that doenst make sense. She trys to get the right words out but it hard so. She has good friend in the assisted living home that has the same thing she has. Pam is her name and she hang out with my mom while she takes a shower so she doesnt fall with one working arm. She falls cause her ammonia levels are high they want to put her in a weelchair cause her muscle is practically all wasted. adn the HE is effecting
her she wants to move but her body isnt working one half says goe and the other doesnt respond. Its sad. But the great thing is that she still trys to keep her strength but her trying and the liver is working against her. well Ive got to go soory I write more. I,m soory about your husband.
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