HELLO EVERYONE

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exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 12/19/2007 8:47 PM (GMT -7)   
I just wanted to send a quick not to you all.  I sent some messages last week but don't know why you didn't get them.  We have have the most incredible two weeks.  My husband started eating good.  His energy level was so much better.  He even started drivng a little.  He wanted to go to the beach so we loaded up the car and headed out.  After two days thre things started to change again.  To make a long story short I think his amonia levels are high again.  The most frustating think about all this I have no idea why he started feeling so much better and no idea why things started getting bad again.  We're back to sleepless nights from horrible itching and weekness.  I've increased his lactalose to four times a day.  I took him to get blood work today so we will see.  Here we go again.  Hope you all have a Merry Christmas.  I will keep you posted.   JoAnn

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 12/20/2007 12:24 AM (GMT -7)   
Hello JoAnn, I know it's very frustrating. It's like you're on a merry go round. But when he has those good days enjoy them as much as possible. They truely are a gift from God. Try to remember them.... to help get you through the bad days. Hang in there.....and remember to take care of your self too. Do something nice for yourself occasionally. It's amazing....how what doing little things for yourself every now and then will recharge your batteries.
Thoughts and prayers..........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 12/20/2007 7:39 PM (GMT -7)   
JoAnn, I am sorry to hear that your husband has started having episodes with encephalopathy again. My husband does the same thing. He starts being himself for awhile then it seems like it changes overnight. I agree with Pink Grandma about enjoying the good days. That is what I keep trying to tell myself. You are in my thoughts and prayers.
Butterflythree
 
There is always hope!


1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 12/23/2007 12:21 PM (GMT -7)   
JoAnn, my thoughts are with you right now. I know it is easy to become discouraged. It seems like with liver disease there is no cut and dried remedies or solutions doesn't it? I think that we as caregivers as well as the victims have to take each day for what it is. Some are bad and some are good. It is the good days that seem to sustain us. For me, when I was at my moms trying to get thru each day I made it my mission to find something good about that day. Even if it was a smile from her or a pat on the face. Now that she is gone I try to remember those little things that I tucked away in my memory banks. Even though it has only been 6 weeks the pain she suffered as well as the illness itself seems to be diminishing a little for me. I look at a beautiful picture I have of her on my wall in my bedroom everynight and try to imagine all the good times we had. Her smile, her humor, her wit, and her never ending guidance in our lives. The only pearls of wisdom I can share is what I have already said and add that you are a wonderful loving wife who has given everything you have to give to him. Even tho he may not be able to express himself the way he used to believe me when I tell you he knows and appreciates all you are doing. Go get your nails done or get your hair done. Do something good for you. Not only do you need it and deserve it you will find out that you actually will be mentally stronger. Trust your instincts honey, they are usually 100% correct.
Shelly
PS
Never say to yourself, "I should have, or could have, or would have" because in the whole scheme of things you do the best you can at the time that you did them. So none of the could've, should've, would've really matters.

exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 12/23/2007 7:09 PM (GMT -7)   
Thanks Shelly I gave Jerry 5 doses of Lactalose last night and he's had 4 doses today. YEA his mind is clearer but he's still very week and can barely talk. He's goes to the hospital in the morning to be drained and a dose of Albumen!! I'm hopeful. Santa is coming tomorrow night for the 10 grand children. I'm looking forward to it and so is he. I pray you get through Christmas with a few smiles.

JoAnn

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 12/24/2007 10:47 AM (GMT -7)   
JoAnn, I hope everything goes well with Jerry. I also hope that you both are able to enjoy Christmas with those 10 wonderful grandchildren. I myself have one six month old grandson. He brings so much joy to my life. I really look forward to more grandchildren in the future. My prayers are with you and your family.
Butterflythree
 
There is always hope!

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