New onset foot and toe spasms

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hep93
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Date Joined Jul 2005
Total Posts : 12014
   Posted 12/22/2007 9:41 PM (GMT -7)   
For a couple of weeks now, I've been having spasms when I'm lying in bed resting or going to sleep.  They are at the base of my toes on top of my feet, and at the sides of my instep--both feet.  When I get up and stand or walk a few steps, the cramps go away.  It's been a problem trying to keep my potassium level up in the normal range, but nothing was mentioned about it being low when I was in the hospital.  Blood work done prior to hospitalization showed potassium in the low normal range.  I haven't had leg cramps, either...just the feet. 
 
Does anyone else have this on a regular basis or have an idea of why this is happening?  It's not a big deal and doesn't interfere with my sleep, so I haven't remembered to mention it to my doctors.
 
Connie

frustrated_n_wv
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Date Joined Aug 2006
Total Posts : 469
   Posted 12/23/2007 5:29 AM (GMT -7)   
Connie

Prior to getting diagnosised with AIH i used to get cramps in my feet just like you described nightly, sometimes even going up to my calf muscles. Walking around did seem to help. I also thought it was a vitamin defiency, however did mention it my doctor. He ran full blood work and when nothing came back never really gave me an answer for what the problem was. I can tell you that they started me on my medications for AIH they seemed to go away.

I know that didn't really answer your question, but I sure can empathize with you.

Lucy

1Shelly1
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   Posted 12/23/2007 6:20 AM (GMT -7)   

 Connie, I have had foot cramps on and off for years. The only immediate remedy for me is to get up and stand on my feet and move around a little. Sometimes when it happens I can watch as my toes curl and the shape of my foot distorts some. Kind of creepy isn't it? You are right to wonder about the potassium (K+). A low K+ is one potential cause but there are other causes too. For my own cramps it was and sometimes still is a mild case of dehydration. If I drink plenty of fluids I don't seem to get them. Or if I eat potassium rich foods. Prolonged sitting, diuretics, alcohol use, and dibetes are just some of the more common causes. It might help to massage your feet before bedtime too.

On another topic, are you pinning your drain up so it doesn't hang?    Shelly


hep93
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Date Joined Jul 2005
Total Posts : 12014
   Posted 12/23/2007 8:52 PM (GMT -7)   

I will try massaging my feet/toes before going to bed, Shelly.  I'm well hydrated, so that's not it.  Could be the potassium, but the Aldactone is supposed to eliminate that problem caused by Lasix.  Yes, I have a clip on the Hemovac and clp it to the side, at or above the drain level.  The amount of drainage has diminished to practically nothing--only an ounce today.  The redness at the insertion site has diminished, too.

I slept all day today, and am going back to sleep soon.



Butterflythree
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Date Joined Oct 2007
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   Posted 12/24/2007 11:00 AM (GMT -7)   
Connie, Just wanted you to know that I am thinking of you. I hope that you are feeling well soon. Did I ever mention that I have a sister named Connie? She is one of five girls born to my mom and dad. Myself being the oldest then she the next. After my mom and dad divorced they each had more children. All together I have a total of 10 siblings ranging from the age of 40 down to 13. A couple of my kids are older than a couple of my siblings. My son is very close to one of my brothers. They have been best friends growing up. My son tells people that he is his cousin instead of his uncle. He thinks it is weird to say he is his uncle. Isn't that funny?!
Butterflythree
 
There is always hope!


CaryF
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Date Joined Nov 2007
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   Posted 12/27/2007 10:02 AM (GMT -7)   
Please have your thyroid checked - I had exact same symptoms and it turned out to be low thyroid - its a blood  test.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 12/27/2007 2:49 PM (GMT -7)   
Cary, thanks...but with my ongoing health problems I have blood work done all the time. Whenever thyroid is checked, it is always normal. So that doesn't seem to be the source of my foot spasms. Wish I knew what was/is! It was really bad last night. I even had tenderness of the skin after the spasms had ceased. I'll be going in to see my surgeon's PA on the 3rd, and will mention the problem to her.

Butterfly, I'm doing better today. In fact, I have pumpkin cranberry bread in the oven. Hadn't felt up to making it prior to Christmas.

I was an only child...but I do have 3-half sisters by my dad's 2nd marriage and one from my mom's 2nd marriage. No boys!

Connie

1Shelly1
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   Posted 12/27/2007 5:00 PM (GMT -7)   

 Connie, I am sorry to hear that you continue to have spasms. On the otherhand I am glad you are feeling well enough to do some baking. I know it is frustrating to not know the cause of the spasms. Hopefully the PA will do some blood work and find out. I was wondering if you might have a Vit D deficiency. It is only a thought but if I remember right this can cause feet and leg spasms/cramping too. Let us know what you find out. Since you are well hydrated, K+ levels are OK, you are not sedentary, your thyroid levels are Ok, then it's possible that your Vit D-Calcium levels are a little off. Just thinking outloud I guess. Hugs!!!!!!!!

                        Shelly


hep93
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Date Joined Jul 2005
Total Posts : 12014
   Posted 12/27/2007 10:57 PM (GMT -7)   
Shelly, I did a little research earlier and found that vit. D deficiency can be a cause of spasms. This is a distinct possibility, as I have not been outside for 2 weeks, so no exposure to the sun. I have a balcony with chairs, so if it is sunny tomorrow, as expected, I will make a point of getting out there for at least 15 min.

I now have another problem. My drain is leaking. The tiny tubing that is inserted in the abdomen is coming out and I'm leaking. I have taped it, but it's still leaking. I'm thinking that there's a clog, so the fluid is not draining into the tubing as it should be. I only had 1/4 ounce in the drain cup yesterday, and none today. There are a couple of stitches holding the tubing in place, but I could easily remove those. I will call Mayo tomorrow to see if I should go to the ER or just take the drain out or what. It's been in for 2 weeks...ever since hernia surgery. I'm feeling nauseous again, too.

I'll post tomorrow after I reach someone at Mayo.

Connie

1Shelly1
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Date Joined Oct 2007
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   Posted 12/28/2007 5:05 PM (GMT -7)   

Connie, the clogged drain could be from a small clot that has formed at the opening. This is not uncommon. Mayo MAY let you pull it, it is up to your surgeon. How much are you leaking? You can cut a kotex in half and paper tape it over the drain site if you want to. That way your clothes won't get stained or ruined. As far as the nausea is concerned, I am not sure why you are nauseated. It could be so many things causing it. Is that your only symptom? No fever etc? Unfortunately nausea is a nebulous complaint because it could be caused by so many things. Try to figure out what you have eaten or done prior to the onset. For example, is it food related? Before or after meals, activity (cleaning house, walking alot etc), sleep deprivation, taking meds. You get the idea. Many times patients figure out the cause on their own just by reasoning it out as to when it occurs. I want you to know I am thinking of you and send lots of hugs your way. Let me know what you find out OK?

                       Shelly

PS

Your Dr may put you on Vit D supplements if you can take them. Get a little fresh air everyday if possible.


Butterflythree
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Date Joined Oct 2007
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   Posted 12/28/2007 6:53 PM (GMT -7)   
Connie, I hope you are feeling better today and that you were able to get some sun today. It is almost impossible to get sun here in Missouri. It has been drizzling a lot here. I hate this time of the year. I am anxiously awaiting spring.
Butterflythree
 
There is always hope!


1Shelly1
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Date Joined Oct 2007
Total Posts : 502
   Posted 12/29/2007 11:53 AM (GMT -7)   

Butterflythree, I had to chuckle a little at your comment. "I hate this time of the year. I am anxiously awaiting spring." Here in the Ft Lauderdale area we are anxiously awaiting some cool weather. It has been in the high 70's low 80's all winter. I can hardly wait to leave my doors and windows  open and get some fresh-cool air in the house. tongue

                          Shelly


Butterflythree
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Date Joined Oct 2007
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   Posted 12/29/2007 1:03 PM (GMT -7)   
Shelly, That sounds like my kind of weather. We hardly ever get to leave our doors and windows open because the tempatures are either too hot or too cold. When we finally do get to open them my husband's and daughter's allergies act up. I guess I would miss the cool weather also though.
Butterflythree
 
There is always hope!


hep93
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Date Joined Jul 2005
Total Posts : 12014
   Posted 12/30/2007 11:39 AM (GMT -7)   

Hi, y'all!  I hope everyone has had a good holiday season thus far.

Well, I did call the Mayo Transplant Center, where I am treated.  I explained the problem with the drain and a doc called me back.  He said the drain could probably come out, and if I wanted to come in that he could do it.  I told him I thought I could do it myself.  He laughed, but said okay...and that if I had any problems to call back.  The only surprise was that there was about 6" of tubing in me!  :o  I thought there was only a half-inch or so, as that's all I could feel subQ.  I had watched drains removed from me twice, so I knew the routine and had no problems.  I used a panty shield over the drainage hole for a few hours, but then it stopped draining altogether.  Everything is fine...I'm watching for infection, but it's healing over and the redness is diminishing.  I feel so free now!  I hated that thing.  I'll see my P.A. on Thurs. and she can check the site then.  I have no increased ascites...always seem to have a little, despite Lasix and Aldactone.

Shelly, I used an untold number of sanitary napkins--the full length--after I came home from the lobectomy.  They really didn't leave the drain in long enough.  I thought that thing would never stop draining!

Nausea has eased up, but I can't eat much at a time.  I'm sticking mainly with soups.

We only had a little sunshine this past week.  I got out on the balcony once and brushed my cats and soaked in some vit. D.  It was 79 and cloudy yesterday and the same for today...then temp is forecast to drop to 22 on Wed. night!  Yikes!  That's N. FL for you.  I lived in Miami for 10 years and really got tired of the constant heat and humidity.  Up here, the weather is quite changeable.

Hugs,

Connie

Happy New Year, everyone!  May it be a good and healthy one for all!

P.S.  I just had one foot spasm last night.



1Shelly1
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Date Joined Oct 2007
Total Posts : 502
   Posted 12/30/2007 11:47 AM (GMT -7)   

Connie, I am sooooooooooo happy that the drain is out and you are feeling better. Every day you will get stronger. Just a word of caution tho.....don't over do! That seems to be the tendency with us women. We feel better so we do alot of extra chores. Try to plan small things for awhile. No big housecleaning jobs OK? You sure don't need a relapse. Take it slow and easy kiddo. You have made my day today. :-)

           Shelly

PS

By the way we are supposed to have some cool weather next week. Yeah..............


Butterflythree
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Date Joined Oct 2007
Total Posts : 954
   Posted 12/30/2007 2:34 PM (GMT -7)   
Connie, I am glad to hear that you are feeling better, and you finally got rid of that awful drain. Here in Missouri we are supposed to get tempatures in the 20's Monday night. I am not looking forward to it. Missouri weather is crazy. It can be in the high fifties and within an hour drop to 30's.

Have a very happy New year.
Butterflythree
 
There is always hope!


hep93
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Date Joined Jul 2005
Total Posts : 12014
   Posted 1/3/2008 1:20 PM (GMT -7)   

It was 28 when I left for my P.A. appt. this morning!  Windy, too!  I'm glad to be back home and in comfy flannel.

I mentioned the foot spasms, but she wasn't sure what could be causing them.  She asked if I take calcium, which I don't...can't swallow those big pills and the chews are too pricey.  However, because of my tummy problems, I've been taking Tums...so that probably helps.  She didn't say anything about getting a vit. D supplement.  She removed the Steri-Strips that were left and looked everything over, felt around my tummy, etc.  All was okay.  She was a little mortified that I took the drain out myself.  LOL!

Shelly, fear not--I NEVER do big housecleaning jobs.  I have someone coming in for an hour or so a week to clean.  about all I do is dust and sweep a little, and do dishes.  She's the daughter of a friend and it doesn't cost me much.

Hugs,

Connie


1Shelly1
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Date Joined Oct 2007
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   Posted 1/3/2008 1:47 PM (GMT -7)   

Hi Connie, glad your home and warming up. It's funny that you mentioned the Tums. I worked for a Rheumatologist in the early 90's. She had a lot of people on Calcium tabs. Interstingly, if they couldn't afford the tabs she had then chew 5 Tums a day. She claimed that it equalled the amount of Calcium in the tabs she RX'd. You might want to check that out. I am relieved that you are feeling better. tongue

Shelly


hep93
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Date Joined Jul 2005
Total Posts : 12014
   Posted 1/3/2008 3:48 PM (GMT -7)   
"5 Tums a day. She claimed that it equalled the amount of Calcium in the tabs she RX'd."

Shelly, my primary care doc did the same thing for me, except it was 4 a day. This was some years ago and I couldn't handle chewing up that many. Now, however, there are flavored Tums and flavored "Smoothies," which don't have the chalky taste--so I've been eating about 3 a day. I also eat a good amount of light ice cream and/or frozen yogurt, custards, cheese.
C.

Butterflythree
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Date Joined Oct 2007
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   Posted 1/3/2008 5:04 PM (GMT -7)   
Connie, I am really glad that you are doing so much better.
Shelly, I hope you are feeling better.

We have had some pretty cold weather here in Missouri also. I was surprised that Florida got that cold. I didn't realize they got those kind of temperatures. We had single digit temperatures this week, and by the weekend it is supposed to be mid 60's. Isn't that crazy. I am looking forward to those days. I can't take cold weather. If all my family wasn't here I would move somewhere warmer. Then I would probably find something else to complain about. It looks like the whole state of Florida will be receiving some cooler weather in the next few days.

As always you are both in my thoughts and prayers.
Butterflythree
 
There is always hope!


hep93
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Date Joined Jul 2005
Total Posts : 12014
   Posted 1/3/2008 9:34 PM (GMT -7)   
"I was surprised that Florida got that cold."

Florida is a big state, and not all areas are like Miami! LOL I am in the NE corner, up near the GA line, and winters here have gotten much milder since I first moved here in '86. Back then, it got cold and stayed cold all winter. Now we just have a couple of cold days here and there, and the rest of the winter is fairly mild...though not exactly beach weather up here.

Hugs,
Connie

exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 1/3/2008 9:57 PM (GMT -7)   

That is interesting about the leg cramps.  My husband starting getting them in his feet and legs.  They started when he was on the lasix and Aldactone.  His GI Dr told him in the beginning it would get better.  They did for a while but started getting horrible each time they drained him.  Still nothing worked until he went to Vanderbilt and they gave him  IV Albumin (not sure of spelling).  That really made a difference.  He had them in his entire legs, both arms and his hands.  He would scream in pain.  Also his kidney Dr. gave him a prescript of a drug they use for restless leg syndrome.  They worked also if the cramps were mild.  We are in the hospital now and I don't have the name of the drug.  If you are interested let me know and I will look it up when we get home.  Hope this helps those muscle cramps can be awful. 

Hope everyone is doing well

JoAnn 

Interesting weather we are all having.  It was 14 degrees here this morning and didn't warm up much more then that.  I'm in East Tennessee and its not uncommon here.  Its suppose to be in the 60's next week here and I love that I can open the doors. 

 


1Shelly1
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Date Joined Oct 2007
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   Posted 1/4/2008 11:47 AM (GMT -7)   

Hi everyone, we had a real cold spell..........................38 dgrees. I was so excited. It only lasted a day but it was such a relief after all the hot weather we've had this year. Our summers are not only warmer but longer than usual. Today it's 71 and I have all the doors open. That fresh air smells so good. tongue

As for the Tums, you have to be sure you are eating the regular strength and not the stronger ones. That is unless your Dr told you to take the extra strength Tums. Of course do whatever he/she says. It is certainly a cheaper way to get calcium. If you have a BJ's, Sam's. or Cosco, they are alot cheaper there and they sell them in large bottles. It sounds like everyone is doing a little better right now. I pray that is true and that there are some real miracles this year. I believe that you should never lose hope. It sounds kind of crazy but I think that we can do so much with our own minds as far as healing ourselves. Our attitudes and mind set have alot to do with our health. It's just my opinion anyway.

Shelly


hep93
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Date Joined Jul 2005
Total Posts : 12014
   Posted 1/4/2008 12:17 PM (GMT -7)   
"Our attitudes and mind set have alot to do with our health. It's just my opinion anyway."

I totally agree with you on that, Shelly. Glad you had a chance to open your doors today!

I usually take regular-strength Tums, but this last bottle my helper bought is a large, Ultra one. She said they didn't have flavored ones in regular strength.

JoAnn, I know the med you mean for restless legs, but can't recall the name right now. If you think to look for it, I'd appreciate it. I didn't have any spasms last night at all--first time in weeks.

Hugs,
Connie

1Shelly1
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Date Joined Oct 2007
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   Posted 1/4/2008 1:39 PM (GMT -7)   

 There are a couple meds for Restless Leg Syndrome that come to mind, Requip and Mirapex are 2 that I know of. Although there are probably many more.

 Shelly

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