Need some Advice.

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KH18
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/16/2008 3:04 PM (GMT -7)   
First I want to start off by saying that im happy I found a forum like this that helps people with all sorts of conditions.
 
Ive had IBS for 2 years now, sense i was 16, and it has changed my life a TON.  Dont get out of the house as much due to it and as a result had to finish highschool at home.  My Dr never really said which IBS I have "C or D" but i have very frequent bowel movements and get progressively more urges for a bowel movement before I go to the store or even take my dog to the corner.  I had a colonoscopy almost 2 years ago and it all came out good except for some spasms, well honestly i couldnt understand a word that came out of the Lower GI dr's mouth, funny accent.  Now that ive given you my story, id like to add a few things ive tried and to ask for a few things that have worked for you guys.  I just finished a "detox" for the lack of a better term, which was just fruit and water for 4 days and had no effect except for hunger pains.  Ive been on quite a few medications and just to name a few ill say Zoloft, and beta blockers (doctors thought it was stress induced which it may be).  Then a bunch of those over the counter stomach medications like peptobismaul (sry i cant spell) and another one that i cant think of the name off the top of my head. 
 
Now id like to ask for suggestions to help with these symptoms.
 
Thanks in advance and hope to see you guys often.
 
-KH18
 
Edit: Forgot a small thing, i was tested for Ciliac about a year ago and came back negative

Post Edited (KH18) : 1/16/2008 3:14:28 PM (GMT-7)


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 1/16/2008 3:14 PM (GMT -7)   
Sounds like you probably have diarrhea-predominant IBS (IBS-D). I'll warn you about the "detox" thing; fruit generally makes IBS-D people have worse D. Apple juice and raw apples especially. They're a natural laxative (not as much as prunes, but more than other fruits). Most of us with D tend to stay away from fruits and fruit juices, unless they're cooked (which neutralizes a lot of the acid, which seems to be the source of the problem). However, bananas are good for people with D because they are naturally constipating.

Also naturally constiapting are calcium supplements. Caltrate 600 w/ Vitamin D (or it's generic equialvent) is what you want to take to help firm up stools. You can take up to three a day safely. You might also try a fiber supplement that's mostly insoluable fiber. Insoluable fiber is what gives your stools bulk (makes them more solid). You can also try a probiotic. If you can tolerate yogurt, the Activa yogurt is a really good thing to start with. There are also a lot of different types of probiotics in pill form, from Culturelle and Digestive Advantage which can be found at your local drug store, to some other kinds that people on here like that are from online or a health food store.

What exactly are your symptoms? Feel free to be graphic--we're all used to it here (we're pretty graphic ourselves). It's the best way to get useful suggestions.

KH18
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/16/2008 3:25 PM (GMT -7)   
Thanks for the quick reply!

The fruit that I had was strawberrys and banana's for the most part. A few symptoms that i have are -
I have very frequent urges for a bowel movement, not all the time would there be a "movement" (i know i can be graphic but it feels weird :D)
Doesnt wake me up at night, about the only time where i consider my day to be "normal".
My bowel movements tend to be little by little, never all at once, sometimes takes 4 or 5 trips within 2 hours to get to a point where i feel good enough for even company to come over, tends to get embarrasing having to get up and go.
Tried fiber suplements (wafers) but didnt really help, natural fiber seems to be more helpful for me.

I didnt know about apples potentually making IBS-D worse, would anyone mind giving a short list or even a link of common foods that may make it worse?

Thanks in advance
-KH18
 
One more syptom that ill add is when ever I go out of the house, no matter how many times that i use the bathroom prior to it, it always feels like its right there and just waits for me to leave, i know its not constipation.

Post Edited (KH18) : 1/16/2008 3:28:47 PM (GMT-7)


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 1/16/2008 3:43 PM (GMT -7)   
Sometimes when I'm having a really bad spell of D, I get what I call the "dry heave bowel movements"; my muscles say I need to poop NOW! but there's nothing there because I've already pooped it all out. Is that what you feel like?

Something that might help with that feeling--and reduce your trips to the bathroom--is a prescription anti-spasmodic. That keeps your intestines from spasming and making you feel that way. There are a lot out of them available and some work like a charm and some are a total sugar pill--they do nothing for you. You just have to go through them until you find one that works for you; everyone's very different.

Apple juice and raw apples are pretty much the biggest no-no, although prunes would be obvious! Many people also have problems with raw and even al dente veggies. Fatty foods, especially deep-fried/greasy stuff, is another pretty big no-no. That makes most fast food verboten. Also, some people like me have a bad time with caffeine. Others find they have problem with gluten, which is found in wheat and similar grains. You might want to try and keep a food and symptom journal and see if you are worse after eating certain foods. If you suspect a gluten problem, cut it out of your diet and then see if you get better; that's how you know. Dairy is the other thing to try eliminating. Also artifical sugars and try cutting back on real sugars as well.

And absolutely NO sugar-free products of any kind. They contain sugar alcohols which will give you diarrhea about as fast as a laxative. Make sure you are mindful not to have sugar-free gum, breath mints or even breath stips, much less diabetic candy. I've even found it hiding in ice cream that advertised that it was made from Splenda. Yeah, Splenda and sugar alcohol. Always read the labels of anything that is reduced sugar or claims to be made with artifical sugar; sugar alcohols are listed on the nurition guide under sugar content, and you can find them in an ingredients list as ending in "itol", such as sorbitol, mannitol, xylitol.

KH18
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/16/2008 3:53 PM (GMT -7)   
I cant thank you enough! Sites like these tend to be more efficent than doctors, except for the whole prescription part.

I will definatly page my doctor and ask about trying an anti-spasmodic medicine and will get Activia and Caltrate within the next two days.

I had no idea about suger-free foods, makes me want to check out all the stuff in my fridge to see if its theres something in there that is making it worse.

I will definatly post within the next day or two to post where im @ on this and every few days post how its working for me and be checking for more suggestions.

Thanks again Keriamon!

-KH18

KH18
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/18/2008 6:32 PM (GMT -7)   
Just wanted to update -
I was prescribed Bentyl (Dicyclomine) by my doctor and picked it up today, first pill i took i started to feel nausiated (even if thats a word) and cant even imagine taking it 4 TIMES A DAY. But may be one of those first time nausia pills, anyone else been on it?

Havent gotten activa or the caltrate yet because the drug store didnt have them and wasnt feeling up to going to the grocery store *grr @ IBS*

-KH18

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 1/18/2008 7:21 PM (GMT -7)   
Don't think nausea is a common side effect of Bentyl. I have been on Hyoscomine which is similar and have Donnatel but have never taken it. I don't have IBS -D but tend more toward C. I also feel spasms in my esophagous lately and the Hyoscomine is helping with that.

KH18
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/25/2008 6:26 PM (GMT -7)   
Im back again- Been almost house riden the last few weeks, ill accasionally have worse days than others but never worse than usual few weeks. Id feel almost normal (if i can even remember what normal feels like) when i dont have anything planned- my IBS gets worse a few hours before i do something out of the house, even the little things like taking the dog to the corner of the street, or if someone is coming over to watch a football game or something. I use to be very very active out of the house, always busy with either volunteering at a animal shelter or going to school/gym/friends houses and was definatly out of the house more than i was in. Now im pretty sure i have IBS-D but dont have diarrhea at all, just very frequent trips to the bathroom, first time would be a semi-normal bowel movement but every time after that within that 6 hour or so time frame would be very little or none at all of a "movement", so i guess its more of a urgency to go to the bathroom and less of actually going if that makes sense. Now with this said id like to share a few things that ive come accross and see if they have helped other people with similar situations.

Few of these may be strange and just out there but im desperate for anything-
Peppermint (tea or just peppermint) - I found a site (http://www.helpforibs.com/shop/deals/herbkit1.asp) that seems to sell peppermint tea and claiming to help with IBS, assuming that any peppermint tea would do close or equivelent id like to see if anyone has tried it.

Anti-depresents - Now ive been on 2 or 3 different anti-depresents and just found there to me more side-effects that actual good and stoped them, anyone find some to be helpful?

Anti-anxiety - I accasionally take a beta-blocker (ment for stage frieght or high blood presser) but doesnt do much of anything, anyone find them helpful?

Carbonated drinks - Now for some people it can make it worse but ive read a few people benifit from drinks like Sprite or Seirra mist.

Drinking chicken broth - sounds weird but my GI dr. said it may work- never tried it tho.

Feel free to add to anything that worked for you that seems a strange or weird.

-KH18

gutastrophe
Regular Member


Date Joined Jul 2007
Total Posts : 319
   Posted 1/25/2008 10:58 PM (GMT -7)   

Hi KH!  Glad you stopped in to give an update!  First, let me say that I believe you are "stuck" in the typical IBS anxiety cycle.  It goes like this:  a.  You have a normal life  b.  You start having "belly" problems   c.  You have a few "incidents" that are unnerving, embarrassing, and surprising  d. You start to get anxious about more incidents occurring if you leave the house.  e.  Your anxiety about leaving the house provokes belly troubles   f.  You become fearful of leaving the house and every time you try, the gut acts up.

We've all been through this.  This is the point in the IBS syndrome where the docs tell us it's all "stress" related.  While anxiety and stress does not cause the IBS, the subsequent nervousness can and will bring on attacks, unfortunately.

When I am not exhausted and worn down from days and days of pain, I will FORCE myself to go out of the house.  Yes, there have been "incidents".  Yes, I've had to tell people about my gut issues.  Yes, I've had to locate bathrooms all over the city so that I can be sure I always have a place to stop in an emergency.  However, if you cave in to your fears, you will NEVER leave your house and that will, eventually, cause depression and even more belly troubles.

Look at it this way:  What is the worst thing that might happen?  If you take your dog for a walk to the corner, you might have to race home to the toilet.  You might have a slight accident in your pants (I know, it sounds like a horror!).  But you will survive and trust me, you'll get better at knowing if that urgency you describe is actually an impending poop or just a gassy teaser.

As for the remedies you mentioned, I can share my experience.  Peppermint tea did nothing for my spasms but really irritated my acid reflux problem.  If you have any indigestion or heartburn issues, you will probably not be able to tolerate this tea.  Some have found fennel tea beneficial.  I've tried it.  Sometimes it helps a bit.  Usually not.

Anti-depressants did nothing for me.  But there are quite a few members who have found them helpful. As you said, the side effects and the overall psychological impact of these drugs are, for me, too formidable to justify taking them for any reason.

Anti-anxiety drugs were very, very helpful for me.  But I took benzodiazapines, which are extremely addictive.  Unfortunately, they are just a short term remedy.  If you don't have a predisposition to addiction, you might want to consider taking them for a brief time and only as needed.  They might help you get over the initial hump of getting out the door.

Carbonated drinks are a no-no.

Chicken broth is just good food.  I drink it when I'm having bad spasms because it goes down easy.  I also think the fat in homemade broth is really good for someone like me who tends toward C.

I would suggest some complex carbs like brown rice, barley, steel cut oats for you.  If you are leaning in the direction of D, they might help bulk up the stool.  You might also consider a fiber supplement like Benefiber.

Good luck!


Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 1/25/2008 11:35 PM (GMT -7)   
No peppermint if you have reflux. I have used the combo peppermint, fennel, ginger capsules from that site and have found they helped with nausea and spasms but even though they say the peppermint disolves in the intestines not the stomach I don't think it did cause everything tasted like peppermint for a long time. The ginger is for nausea, fennel for spasms and cramping and peppermint for upset stomach, I guess.

KH18
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 1/26/2008 8:08 AM (GMT -7)   

Thanks for the replys-

gutastrophe- u have described it better than i could have, i remember a few weeks ago stopping at a gas station about 2 minutes away from my house but as soon as I got in the gas station to use their restroom, i magically didnt have the urge to go the the bathroom, and as soon as i started again driving it came back so it seems that it acts up if i dont know where a close bathroom is and i also find it embarrasing to get up during dinner or when i have company over to use the bathroom so having to use it often just makes it worse.

Thanks you two for your help on the "remedy's" that i listed, ive had IBS for 2 years now and has just taken over my life. 

I never found myself extra nervous or anxious about anything prior to IBS but sense IBS I tend to get nervous about anything that may seem to be an every day thing.  The only thing that i can maybe link my IBS to is a move, about 4-5 months before my IBS symptoms came around i moved accross the U.S. but was making a lot of friends at school and wasnt ever picked on or anything of that nature.  Was also around the time of Finals where you are in a classroom for about 3 hours doing a test and arent allowed to leave unless emergency and that took a toll on me.

Now getting around is a little tough for me aswell because, well IBS came around when I was 16 (i know, must have been a early boomer) and didnt get my permit/licsense intime.  So going for the hour drive to the dmv would be TORTURE at this point but is something that i need to do in the near future if i want to jump start my recovery. 

Where i was @ 2 years ago was WAAAYYY worse than now, went a month and a half without leaving the house and was when i was flooded with different meds and the dreded colonoscopy (DUN DUN DUNNNNN).

Im definatly going to try a few things that you guys have said over the last 10 days to see what will work.  Hopefully I can get out of the house in the near future.

Post Edited (KH18) : 1/26/2008 8:59:53 AM (GMT-7)


gutastrophe
Regular Member


Date Joined Jul 2007
Total Posts : 319
   Posted 1/26/2008 10:55 AM (GMT -7)   
Often, when one has IBS for a few years, the symptoms can change.  When I was first dx 20 years ago, I had mostly D but in the last 10 years, it has changed, going back and forth, sometimes even within the same day!  Now I consider my IBS to be alternating so it's very difficult to treat with standard medications.  And because my experience with C is so painful and extreme, I tend to treat that more than worrying about how to handle D.  As you described, there is nothing more frustrating than constantly feeling like you "have to go" only to have your system mysteriously seize once you sit your fanny down on a toilet!  I don't mind running from bathroom to bathroom all over the city, as long as I know that there will be some relief after the tremendous inconvenience.
 
Try not to allow your fear of something "happening" to hamper your lifestyle.  I know that's easy to say (I'm sitting here in my bathrobe dreading a trip to the grocery store!) but, at this point, it really is your mind that is triggering much of this response in your gut.  Remember that you have a medical condition that is unpredictable and, unfortunately, sometimes embarrassing BUT it is not a reflection of some terrible inadequacy in you as a person. 

maychild
New Member


Date Joined Jan 2008
Total Posts : 5
   Posted 1/31/2008 6:00 PM (GMT -7)   
Hi. There is not much I can offer you in advice that everyone else hasn't already said. Keep a log of EVERYTHING you eat and every bowel movement and how it is and see if there is a trend. For me it was red sauces like sweet and sour sauce and melted butter like for crab legs :( I get flare ups for everything now and then but after a while, you tend to avoid specific foods because you know they will give you bad pains and trips to the loo....I alternate between C and D so I don't have the same condition as you and trust me, I feel for you there, but I can tell you that with the spasms, even though stress doesn't cause it, it definetely plays a serious part. Your stomache is like a second brain..it wants to think for itself sometimes...lol...it is good you dont wake up at night because that goes to show it is your intestines somewhere being inflammed or haveing other issues so to say. I can give you advice on one thing though. I was on an antidpressent called Effexor. I know that drugs work different for everyone, but for me, it helped with my anxiety and with that help my stomache a little. I wouldn't be as tense so if I had a flare up I was more likely to lay down and relax than to get nervous and anxious about it.

If you haven't tried it, you may want to read up on it. I was on Zoloft and taking Xantax at one time and stopped both and switched to effexor. I am glad I did. The only con was that after I took it for a while, if I missed a pill for even one day, I would feel kind of loopy like I was floating on a cloud....lol.....so don't forget to take any...lol.....I hope this helps if any..... Sorry about your stomache! Good Luck!!!!

KH18
New Member


Date Joined Jan 2008
Total Posts : 15
   Posted 2/1/2008 9:30 AM (GMT -7)   
Thanks for the advice! Was meaning to give an update but just never got around to it. I got Activia on monday and that seems to helping a bit, not sure how much i should eat a day... if anyone knows that would help. Now ive never been constipated (i know, lucky me) so i wouldnt know what it feels like to be constipated but the yogurt definately makes my trips to the bathroom less frequent.

Ive been on zoloft, now for me it was just side effect after side effect, been thinking of getting on another anti-depressent, may page my dr today an dask about effexor. Ive been on meds like xantax, i was on um.... (looks for the bottle) - - - ativan, but i am very cautious about getting addicted to stuff so the med just wasnt a fit for me.

Now that ive looked for the bottle and found 1387213612372164127412 other bottles, i realize i was on Wellbutrin and that had no effect.

To be honest im not a huge fan of meds, very bad with remembering to take meds (remembers to take my bentyl). just have to get in the habit of it again.

Thanks again, gunna go lay down, souldnt have eaten that taco bell last night
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