My new treatment plan

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Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 2/20/2008 11:44 PM (GMT -7)   
Gettin' started on some Lotronex! Might have started this a couple years ago, but no one had the cajones to try it until my current GI - who will be signing up for the special prescribing rights just for yours truly!

P.S. For those of you who haven't heard of this drug, it's a gut serotonin-receptor antagonist, which means it will have the tendency to constipate, and was pulled from the market years ago because it caused some nasty side effects like ischemic bowel disease - but so many diarrhea sufferers who had success with it protested, and it came back on the market with a bunch of special conditions. So your GI has to be "in the program" to be able to prescribe it, and you have to sign a waiver that you understand the risks.

P.P.S. Unless you are going 239478 times a day, the risks of the drug may outweigh the benefits. However, if you need to be hospitalized because you are losing so much fluid, it's something to consider!
Co-moderator - IBS Forum


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/21/2008 3:35 AM (GMT -7)   
Hi Sarita,
I hope this new drug works for you.
TBW
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 2/21/2008 8:35 AM (GMT -7)   
I can't imagine anything constipating you, Sarita! I think if you were constipated once, you'd be so happy you'd be telling everyone about it!

gutastrophe
Regular Member


Date Joined Jul 2007
Total Posts : 319
   Posted 2/21/2008 9:50 AM (GMT -7)   
When do you start the new drug?  Gonna keep you in my prayers!

carell
Regular Member


Date Joined May 2006
Total Posts : 105
   Posted 2/21/2008 8:02 PM (GMT -7)   
Hi Sarita- I had to respond when I saw that drug. My aunt was on it and to this day, it was the best drug she was ever on.  A quick overview of her illness- she has had the big D ongoing for many years and was diagnosed with colitis (undifferentiated?).  For years, she struggled and had so much D (not trying to scare you here) that they removed some of her lower intestine because in the MD's words, "it's rotted out".  Anyway, that was a short term fix before everything came roaring back.  She constantly struggles with D and bad stomach pain and cramping.  She is extremely thin secondary to either being unable to eat or just plain afraid to do so.  Anyway, she has been diagnosed and undiagnosed (sound familiar?  lol) multiple times- colitis, IBS, crohns-colitis, back to 'just regular' colitis back to IBS. She has been to many MD's and even to the very well known clinic in Ohio (name is escaping me) that specializes in bowel disorders.  Well, anyhow, Lotronex was her one and only and really when she was on it, she was in a better frame of mind.  However, sadly due to the mentioned issue with it, she was taken off and now the MD will not re-presribe it.  :(  At this point, she is now 64 and just too worn out from these years to fight w/anyone about it. But, I hope and pray you'll find some relief w/this. She certainly did and she misses the drug every day!!  good luck!!
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