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Emily577
New Member


Date Joined Mar 2008
Total Posts : 1
   Posted 3/21/2008 7:29 AM (GMT -7)   
alright so my mom wanted me to come in to a chatroom and talk about my conditions to see if anyone can give me some advice? i really dont know where to begin or what to say so im just gonna start talkin..haha
 
so like two years ago i got really sick, like real bad flu and mono and it kinda seems like ever since then ive had a real messed up stomach. my doctors couldnt figure out what was wrong with me for the longest time, then i had a colonoscopy, and found out that i had a spastic colon?
yeahh its pretty painful i always get sharp pain and get bloated and constantly have to go to the bathroom. so now i take pills and probiotics. i have alright days and bad days, i really never feel good. i miss alot of school, and sometimes i have to leave school to run home and take medicine and go to the bathroom. and lately ive been gettin the worst pains! real real sharp i cant even move without being in horrible pain, i usually get in the bathtub when i get these pains; hopin that it will loosin my spasms (if thats even whats happening)
 
so i really dont know what to do anymore because im def. not gettin better. i have tried many different diets but none have seemed to work, but maybe its because i havent stayed on them long enough. i think my next step is goin to get a food allergy test done?
 
so thats my ibs story. ha
 
any advice you would like to give, i would appreciate. thanks =)

Gamma
Regular Member


Date Joined Feb 2008
Total Posts : 233
   Posted 3/21/2008 8:55 AM (GMT -7)   

Hi Emily,

Welcome to the wonderful world of healing well.  There are a lot of people here having the same problems.  I am so sorry to hear that you are in so much pain, it can be depressing and difficult to live with.  You said that sometimes you have to run home from school and take your meds.  Are you taking them on schedule and as prescribed by your doc?  Maybe you should keep them with you and if necessary take them at school.  Sometimes attacks can be caused by certain foods.  Things that you may have always eaten, may now be taboo for you.  I know for example that if I eat anything with corn in it or most raw fruits and veggies, I can count on living in the bathroom.  If you can find out what triggers your attacks, this will go a long way in easing your discomfort.  It isn't always easy, sometimes it's just trial and error, but you will figure it out.  Sometimes it's a simple as skipping this food or that for 3-4 days and then eating it to find out if you have a reaction.  I think the probiotics are a good idea.  From what I have been reading, I am thinking about combining the prebiotics with the probiotics.  It is supposed to set up a sort of harmony in your system to make it work better.

Keep your chin up, things will get better, take it from an old broad. tongue


Gentle hugs,
 
Gamma
 
Fibro, Osteoporosis, OA, RA, DDD, IBS, Vertigo, Tinnitus, Carpel Tunnel, Epilepsy, Hypothyroidism, Familial Tremors, Spasms, Nerve damage
 
 


gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 3/23/2008 1:01 AM (GMT -7)   
Hey Emily,

I am so sorry to hear that you are going through this too. Your story sounds a lot like mine and I am sure many others too.
Like you, I got really sick, probably viral and lost a lot of weight really fast like 10 pounds in a week. My stomach never recooperated. The doctors put me in the hospital 4 different times and that doesn't count the ER visits and all the doctor visits. After all the tests were pretty much negative - they said I had post-infectious irritable bowel syndrome. That was four years ago. I use to have diarrhea multiple times a day everyday, but now mine is more constipation and I have always had the pain and bloating, but with spasms that suddenly out of nowhere, bring on diarrhea. I am in some pain everyday and sometimes it is really, really bad. I forgot, they did take out my gallbladder early on thinking that it may be that and after the surgery I wasn't any better. The pain you are talking about to where it is so sharp that you can't move, I completely understand. I had it so bad one time my husband called the ambulance to come and get me I litterally couldn't move - it hurt to breathe and I thought I was going to die. Once again, all my tests were negative pretty much. Shortly after that, they referred me to a very large hospital where they train doctors and such and I was diagnosed with the IBS.
The spasms can be really painful and I don't know if you have anything to take for them, but my doctors gave me levisyn ( or bentyl ) and they do help some. I have the kind that melts in your mouth, so you don't have to have something to drink on you all the time to take it. I also have to take pain medicines to help me, but not everybody does. I take an antidepressant for depression and for the pain.
My doctors told me that as far as getting better, that sometimes it only lasts a very short time like weeks to months to get better and other times it may not ever go away completely. Maybe yours will or at least get better.
Certain foods do make mine worse, like red sauces, pizza, etc... and onions or spicy foods. I am sure to get sick everytime I eat those things. Finding out what foods bother you is a big help, because then you can avoid them like the plaque. Stress makes mine worse and so does loosing sleep.
One of the biggest things that helped me in the beginning especially was finding a good doctor who is sympathetic and really wants to help you and knows and understands how bad you really feel. I went through several doctors before I found the ones I liked and trusted.
Lots of people on here have lots of good advice. I suggest you try some of the things they suggest and see what works best for you. Just know that you are not alone and you can bring your thoughts and concerns to this site and the people here can sympathize with you and help you to feel better emotionally. At least they have helped me a lot - I wish I had of found this site a lot sooner, but I had been sick for 3 years or so before I looked for anything online like this.
I wish you the best of luck and I hope you feel better soon. Just try to remember that everyday will not be an awful day, you will have good days too.
I hope you have a good Easter holdiay.

IBS, Fibromyalgia, Depression, Anxiety, PTSD, Migraines, GERD:  Cymbalta, Fentanyl Patch, Oxycodone, Amitiza, Xanax, Phenergan, Levisyn:  Hysterectomy, Lap-Choley.


Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 3/23/2008 1:14 PM (GMT -7)   
Definetly keep a complete food diary and you might be able to figure it out. If you were on antibiotics when you were sick you may still be trying to get your stomach back in balance as they may have killed a lot of good bacteria. Many of us use a heating pad for the pain or there are some antispasm drugs taht work for some people. Unfortunately this is a trial and error problem and I wish you the best of luck in finding a solution. I have had times where one food (or drink) has torn my stomach up for a very long time. YOu didn't mention an endoscopy. That might be helpful.

gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 3/23/2008 5:55 PM (GMT -7)   
I had forgotten about having c-diff, which is a bacterial infection that causes a lot of gastrointestinal symptoms, such as abdominal pain and lots of diarrhea with foul smelling stools. If you have taken antibiotics before you got sick, or for something elese when you got the stomach problems, it could be that. They usually treat it with a medicine called Flagyl. It leaves a metallic taste in your mouth even if you are on it through intravenous therapy. The doctors checked me for it when I first got sick, but it was negative. The thing is sometimes they have to check several stools to find it. Later, when I still wasn't getting better, my primary doctor decided to recheck some things and this was one of them. This time it was positive and I was treated for it. I had been on an antibiotic when I got sick.

Also, my son had it when he was only about 3 or 4 years old. He had been on an antibiotic as well, that is how he got it and he was in a lot of pain and had foul smelling diarrhea, with streaks of blood in it sometimes. They treated him with medication and he got better.

I hope you get better soon.

IBS, Fibromyalgia, Depression, Anxiety, PTSD, Migraines, GERD:  Cymbalta, Fentanyl Patch, Oxycodone, Amitiza, Xanax, Phenergan, Levisyn:  Hysterectomy, Lap-Choley.

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