IBS?? please help me

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taylor222
New Member


Date Joined Mar 2008
Total Posts : 4
   Posted 3/24/2008 3:50 PM (GMT -7)   
I am so confused. I need help figuring out what is wrong with me.  The two Dr's I have suck.
So here goes....
 
I'm 36, have had 4 children, had my gall bladder out 5 years ago (3 mths after having my 3rd child), had my appendix out 1 1/2 yrs ago (1 1/2 yrs after having my 4th child) and last summer, at the end of July my stomach started swelling everytime I ate.  It does not matter what I eat or how much, my stomach swells out like I'm 8 mths pregnant!  It's ridiculous and embarrassing. 
 
So 5 mths ago I stopped eating gluten because my symptoms were similar to Celiac disease.  I even got off depression meds (which I had been on for 12 yrs).  That seemed to work for about 1 1/2 mths but the swelling started back.  I still avoid gluten but no matter what I eat, even just fresh fruit or veges, baked chicken, grilled salmon, it all causes my stomach to swell all over, especially at the top.
 
I've been on WebMD and it suggested IBS....does anyone have my symptoms? 
 
~ confused thanks

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 3/24/2008 9:23 PM (GMT -7)   
I go thru periods of this. I was diagnosed with IBS Constipation. The main thing that causes the swelling is swallowed air which makes gas. Of course acid problems cause gas as well as cola's. You may have tried all the gas remedies but keep trying. The fact that it is swelling at the top makes me think this is gas related. Take a gas pill right after you eat, try some Rolaids, some Maalox max or something with Simethicone in it. I know it is terrible. I can't believe it sometimes when I look in the mirror. Fresh fruit cause gas for me as do fried foods. Try the Acidophalous as sometimes they help but take a while and can cause a little gas in the meantime. Try the Digestive Advantage IbS. There just isn't one answer. I wish you well.

Denny
Regular Member


Date Joined Jan 2003
Total Posts : 212
   Posted 3/24/2008 9:38 PM (GMT -7)   
Do you have any symptoms other than the swelling/gas?

Lady Frog
Regular Member


Date Joined Feb 2008
Total Posts : 139
   Posted 3/25/2008 8:16 AM (GMT -7)   
I like the Rolaids Multi-symptom. I used to pop those like candy when I had really bad gas. Another thing to try too is tummy massage. Go in the direction that your intestines take( can never remember clockwise or counter clockwise) and that helps move the gas along in me as well as anything else that is hanging out in there that needs to come out. It also helps me with the pain sometimes if it's not horrible bad but annoying.

taylor222
New Member


Date Joined Mar 2008
Total Posts : 4
   Posted 3/26/2008 8:04 AM (GMT -7)   
Sorry, I forgot to mention the D.  I am afraid to eat in public because of that.  I have noticed that when I was on the anti-depressant I had a hard time with BM's and in these 5 mths since I stopped the anti-depressant I have constant D.  So with that and the swelling I've been miserable, embarrassed and confused with what's wrong with my body. 
 
I am going this morning to get some Caltrate to see if the calcium will help with the D.   
 
thanks!

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 3/26/2008 9:09 AM (GMT -7)   
Ask your doctor about Welchol. I have been without a gall bladder 5 years now. After a year of having it taken out, I went back to my GI complaining of D more often than not, and that it was yellow and full of bile. He said there's this cholesterol medicine, Welchol, that absorbs bile and it seems to help people like you. So I took it. That's been 4 years ago and I'm still on it. While I'm not the way I was before my gall bladder went bad, I'm so much better than most people on this board that I practically look normal. Can't manage without it.

I also take calcium. It cured me three years ago when I irritated my intestines and could not get them straightened back out again. A lot of bile running around loose in your guts can cause that, so I definitely recommend that you take the calcium because it will at least help some; a few lucky people, like Inape, only need the calcium, but I also have to have the Welchol.

Constipation is a side-effect of anti-depressants, I hear. That's probably what's been keeping you from having D all this time (although constipation post-gall bladder removal is not unheard of either, and IBSers will tell you that you can always switch from one thing to another).

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 3/26/2008 9:13 AM (GMT -7)   
Hi Taylor, welcome to the boards!

I would definitely recommend talking to your doctor about starting on some probiotics. In time, these may help reduce the constant bloating you feel. There are many strains out there but a lot of people have had success with brands such as VSL#3 (which I take), Culturelle, Nature's Way...I think the most beneficial bacteria found in these supplements are the Bifidobacteria strains. These can be found in most "health food" stores but there's an overwhelming array of them, so make sure you get some good suggestions before diving into the multiple shelves you're sure to find :) Also, make sure when you pick one that you are keeping away from the brands that add things like sorbitol or mannitol (sugar alcohols); these can have a laxative effect. I'm not sure why anyone would use sugar alcohols in preparations for patients with IBS, but it's been done, so we have to be wary consumers!
Co-moderator - IBS Forum


taylor222
New Member


Date Joined Mar 2008
Total Posts : 4
   Posted 3/26/2008 3:31 PM (GMT -7)   
Thank you all so much...I think the best advice and "cures" come from people with the experiences.  The two Dr's I use right now have been no help at all, and I'm not one to run to the Dr for every little thing (not that there's anything wrong with that) so I don't know why they won't take me seriously when I know something's not right with MY body.  After reading so much on here I think I'll make an appt with a GI specialist and make sure there's not something seriously wrong....I'm freaking out about that though!  I've never had any procedure in that area before.  Yes, I've given birth 4 times but that's different...should I wear dark sunglasses and a hat?!  Just kidding! tongue  
 
~taylor

livng@thedrsoffice
Regular Member


Date Joined Mar 2008
Total Posts : 23
   Posted 3/29/2008 11:01 PM (GMT -7)   
I have "the most severe case of IBS.they said most people don't have pain or not to the extent that I do and that I am one of those rare cases the 1% that does.I also have the most EXTREME and I do mean extreme symptoms.if u ever wanna feel better bout your situation and experience with your ibs,then talk to me.I can tell you some stories/my experiences that have basically ruined my life and keep me from doing stuff or living the happy active life I used to have.im adhd and hyper and having my ibs get as bad as it has over last few yrs put a stop to eveything.and I've had it since I was young kid.im now 32 in june.long time of dealing with it.but def at its worst last couple yrs.and just so u know.one doc I saw said ibs seems to be common in people that have been abused.they asked me which was wierd coincidence,if I was ever abused and I said yea,severly abused and tortured as a baby/toddler.it was in the papers and was in hospital for long time and my adopt mother that did it all went to prison for 6 months.but this doc said ibs seems to run in people that have gone thru that.I won't ask if anyone was,but just so you all know for yourselfs cuz I thought that was intersting.I aslo have a list of other probs which makes me wonder.but if u wanna talk ibs let me know I've had the worst and most humiliating experiences at home and in public.I notice u all say your either diahrea or constipated.well im not that lucky.I have both and to the very most extreme.I take antispasmodics prilosec and dilaudid for the pain that is wrenching.and I will tell u u know its the worst case when ur in a vehicle freaking out cuz u have to find a bathrm fast and ur not gonna make it.when u r 1 half a sec from havn accident(which would not be fun at all.)u can't even call mine spastic cuz its even worse than that.so u ever wanna know stuff just ask.I have no prob talkn bout it.I know there's other prob in my intestines and they just haven't found it.cuz my cat scan said crohns and landed me in hospital for christmas for 5 days and then every test was fine but I looked up words in reports and basically sayd swelling and inflammation in different areas but yet they say I don't have inflammatory bowel disease when it points to it.and then pain in middle upper and he says I might have chronic pancreatitis.still waiting for test in may 5th.and also sm bowel scope.last 2 tests.and they basically brushing me off to pain clinic now cuz "they don't know why im having all this pain and I been taking dilaudud for it.so I don't know.completely sick of my doc.and if I had insurance I would change.I've also had naseau and naseau meds since dec in hosp up til present.and lost lot of weight.but I just have ibs....yeah rite!im usually right when it comes to my medical hunches and I do my reasearch.
Chronic pain,dislocated patellas in both knees with some arthritis,fibromyalgia,tendonitis,bursitis,asthma,chronic bronchitis(lung bleeds too),chronic chest pain,repeated ovarian cysts,endometriosis,anemia,chronic breast pain,severe irritable bowel syndrome,possible chronic pancreatitis,SVT(heart),Pulmonary embolism,gerd/acid reflux,many surgeries,did I forget something?I feel your pain.lets talk.


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 3/30/2008 9:19 PM (GMT -7)   
Taylor - try not to be too nervous about seeing the GI. I know it might seem a little weird talking to some random dude about your bowels, but trust me - even after just one year in med school I have no qualms about listening to people talk about any bodily function! That's what doctors are trained to do. "Diarrhea" and "constipation" and "flatulence" are probably the three most common words that will come out of your GI's mouth (and probably while s/he's at the dinner table, too)! If you've given birth four times, this will be a piece of cake!

Hi livng@thedrsoffice, welcome to the board...sorry to hear about your severe symptoms. I'm going to go ahead and make a new thread for you so that you can be properly introduced and get some other responses from our members.
Co-moderator - IBS Forum


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 3/31/2008 10:34 AM (GMT -7)   
Sarita, you didn't have qualms talking about BMs on here, LOL. Talking on this place does make it easier to talk about that sort of problem to anyone, though.

Besides, most colon procedures are done when you are asleep; you need never know. ;-)

UnderstandTheCause
New Member


Date Joined Oct 2007
Total Posts : 10
   Posted 3/31/2008 11:26 AM (GMT -7)   
Hi.

The bloating and diarrhea don't quite meet the official definition of IBS:
GASTROENTEROLOGY 2006;130:1480–1491
Definition
IBS is a functional bowel disorder in which abdominal pain or discomfort is associated with defecation or a change in bowel habit, and with features of disordered defecation.
C1. Diagnostic Criteria* for Irritable Bowel
Syndrome
Recurrent abdominal pain or discomfort** at least 3 days per month in the last 3 months associated with 2 or more of the following:
1. Improvement with defecation
2. Onset associated with a change in frequency of stool
3. Onset associated with a change in form (appearance) of stool
*Criteria fulfilled for the last 3 months with symptom onset at least 6 months prior to diagnosis.
**Discomfort means an uncomfortable sensation not described as pain. In pathophysiology research and clinical trials, a pain/discomfort frequency of at least 2 days a week during screening evaluation for subject eligibility.

That being said, you obviously have a digestive problem and your doctors so far have not been able to help you. There is a place where people with IBS and related digestive problems can go and get answers - The IBS Treatment Center in Seattle, WA. Check out their website, full of great information, at www.IBSTreatmentCenter.com. They are the premiere center in the US for treatment of IBS and related conditions and attract patients not only from across the states, but from other countries as far away as Thailand and New Zealand.

You may well have celiac disease, or another food allergy (celiac is a very specific food allergy). The only way to know for sure is to get tested by a doctor who knows this stuff inside and out. Unfortunately IBS and symptoms like bloating that don't have big warning signs are not easy to diagnose and most doctors just don't want to have to deal with them. These are hard problems and the payoff is getting hassled by the insurance company for doing more testing. It is a lose-lose for the doctor if he can't find cancer or some significant, obvious problem.

Get seen by someone who actually solves problems like yours. The IBS Treatment Center helped my wife and a number of my friends. I can't say enough about how great they are.

taylor222
New Member


Date Joined Mar 2008
Total Posts : 4
   Posted 4/1/2008 9:27 AM (GMT -7)   
living at the dr's: Bless your heart, I hope you get to find out what is wrong so you can possibly be treated correctly and have a life again.
 
Sarita & Keriamon: Thanks, that helps...I didn't think of it that way.
 
UnderstandingThe Cause: Thanks for your input..you're right, I could still have celiac, who knows? So I'm making an appt this week at a GI Specialists Clinic.  
 
Wish me luck!

UnderstandTheCause
New Member


Date Joined Oct 2007
Total Posts : 10
   Posted 4/1/2008 9:42 AM (GMT -7)   
Best of Luck!!
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