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pennielane
Regular Member


Date Joined Mar 2008
Total Posts : 25
   Posted 3/29/2008 1:41 PM (GMT -7)   
So my doctor told me that I may have IBS and ive been referred to a GI doc, ive been having problems for about a year now, i thought i had HIV or something, but ive ruled that out completely...
 
My question is i dont understand how IBS causes fibromyalgia? Ive been thinking something is seriously wrong with me all this time, i have muscle pain almost every day but it comes and goes, ive exhuasted myself trying to figure out what it is, until they said i probably have IBS... i just dont understand how it causes muscle pain?

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 3/29/2008 2:52 PM (GMT -7)   
IBS doesn't cause muscle pain that I have ever heard. It can cause stomach pains, intestinal pains and cramping but never heard of it causing pains in other parts of the body. Where is most your pain. I don't think it would be fibromyalgia if it is only intestinal.

Gamma
Regular Member


Date Joined Feb 2008
Total Posts : 233
   Posted 3/30/2008 3:40 PM (GMT -7)   
IBS does not cause fibro. Many people with fibro also have IBS.  No one really knows what causes fibro, many believe it is brought on by some major trauma (physical or emotional) or a serious illness.  No one knows for sure.  Have you been diagnosed with fibro?  You really aren't clear on that point.  You have to go thru a lot of testing and rule out just about everything else and meet certain criteria before a doc can tell you that you have fibro.

Gentle hugs,
 
Gamma
 
Fibro, Osteoporosis, OA, RA, DDD, IBS, Vertigo, Tinnitus, Carpel Tunnel, Epilepsy, Hypothyroidism, Familial Tremors, Spasms, Nerve damage
 
 


Normal
Regular Member


Date Joined Mar 2008
Total Posts : 263
   Posted 3/30/2008 4:55 PM (GMT -7)   

Not sure what fibro. is really. I know I get sore to move and to the touch different parts of my body at different times. It comes and goes. I have had IBS since had my 2nd kid 25 yrs ago. Soreness started 2 yrs ago .I remember because we started building a house BY OURSELVES LIKE IDIOTS yeah

But now I dont do anything on the house for weeks and get really sore. I think it is my age and lack of proper vitamins. Do you guys ever go on chat? I talked on support chat when my husband died nd it really helped.


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 3/30/2008 9:14 PM (GMT -7)   
Hi pennielane, welcome to the board...I don't think it's likely that having fibromyalgia led to symptoms of IBS directly, but it's definitely possible to have both. What are your symptoms? It's good that you're going to see a GI and I hope that goes well for you.

Normal - there is a chat function on the site and once in a while we do have chats, but it's been a while...if you want, post a thread with some chat time suggestions and maybe we can get one going. I have a weird schedule since I'm in school but would be happy to help organize something, even if I can't join in myself.
Co-moderator - IBS Forum


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 3/31/2008 7:41 AM (GMT -7)   
My mother has fibro and now has bowel problems too sometimes; I looked up info on fibro when she was diagnosed and bowel problems are one of the symptoms.

One of my mother's doctors suggest an all-organic diet because there's some circumstanstial evidence that the chemicals, preservatives, hormones, etc. in most people's diets inflame the fibro. She switched and noticed less flares and less pain when she is flaring.

Fibromyalgia is an auto-immune disorder. A recent study found that auto-immune disorders of all types are genetically related. So, if you have/had a family member with fibro, rheumatoid arthritis, Crohn's, Ulcerative Colitis, Lupus, or anything else that's auto-immune related, then your chances of having ANY auto-immune disease goes up. Like my mother: she had two uncles with Crohn's and her sister has it too. For whatever reason, her roll of the genetic dice gave her fibro instead of Crohns.

UnderstandTheCause
New Member


Date Joined Oct 2007
Total Posts : 10
   Posted 3/31/2008 11:41 AM (GMT -7)   
IBS doesn't cause anything. It is a group of symptoms. IBS has literally hundreds of possible causes including infections, parasites, food allergies, celiac disease, bacterial imbalances, and on and on. Fybromyalgia can share a cause with IBS symptoms: food allergies.

The IBS Treatment Center in Seattle is affiliated with the Center for Food Allergies. Great info on both websites: www.IBSTreatmentCenter.com and www.CenterForFoodAllergies.com

Allergic response is basically your immune system reacting to a chemical. Food contains many chemical, including proteins, enzymes, etc. Some people have antibodies that react to the chemical in certain foods - a food allergy. The reactions can be very different and depend on many complex aspects of physiology. The good news, is that you can test for food allergies, through most allergists in the US still only use skin prick testing or RAST testing - ELISA testing is the cutting edge and has been shown to measure food allergies related to IBS and other conditions in published, peer-reveiwed research. YOu can read some of this research on the Innate Health Foundation research page at www.InnateHealthFoundation.org/5_c.htm.

Check it out.

Normal
Regular Member


Date Joined Mar 2008
Total Posts : 263
   Posted 3/31/2008 5:36 PM (GMT -7)   

Understand the cause,

Thanks for info. Will get on the sights as soon as can. Evidently after 25 years of Drs. I am going to have to do this myself now. My family Dr. is helping and Im going to try one more specialist but Im gonna KNOW before he does what we are trying.


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 3/31/2008 9:19 PM (GMT -7)   
Hey Normal, I know it's frustrating when the docs can't find a way to help you. A lot of times it's just about a TON of trial-and-error. I've had chronic diarrhea an average of 5-10 times a day for the past two years and still haven't even been diagnosed with anything - thus, no definitive treatment. I've tried just about every IBS treatment in the book. Some have worked better than others. My diarrhea is "more" controlled (i.e. now I have it 5x/day instead of over 10x) since I started taking a probiotic called VSL#3, but I tried a ton of probiotics before that; also daily Imodium, cholestyramine, Lomotil, fiber supplements, calcium supplements, lactose-free diet, sugar-alcohol-free diet, anti-spasmodics...who knows what else. Either I'm getting used to this diarrhea and my point of reference has changed, or the VSL is having at least some effect, but overall I do feel like I am in a better spot than I was any time during the past six months.

I hope you can also find relief, even if it's just with a different point of reference! Sometimes all it takes is more time...hang in there.
Co-moderator - IBS Forum


UnderstandTheCause
New Member


Date Joined Oct 2007
Total Posts : 10
   Posted 4/1/2008 8:26 AM (GMT -7)   
The big challenge is that there is no generic treatment that will work for the majority of patients. Trying, like Sarita, a bunch of different treatments without knowing the condition you are trying to treat is a little like trying to fix your car by randomly replacing parts and adding stuff to the gas.

Diagnosis for IBS, chronic fatigue, fibromyalgia and other complex conditions is really hard. Obviously the standard tests that most doctors do and are familiar with don't usually give you any information that helps actually identify the cause or causes.

But don't despair - There are doctors and researchers that are going beyond the standard, normal testing, etc. Just read all the research on the Innate Health Foundation's research page and you can see the wide range of information that has been revealed about these issues: http://www.InnateHealthFoundation.org/5_c.htm.

Unfortunately it can take a long time for doctors to change their practices, and even longer for those practices to become common. Look at how many decades went by between the discovery that H. Pylori (a bacterium originally noticed by scientists in 1875!) causes stomach ulcers (in 1981) to when it was accepted by a major leading group representing consensus opinion (1994) to when testing became widespread and easily available (some would argue that testing is still not performed often enough and many cases go undetected).

But leading clinics like the IBS Treatment Center in Seattle are providing patients with diagnosis and treatment that actually solve the problem. In the US, you have to be your own health advocate and seek out the right healthcare for you. That is one of the benefits of our free-market approach - you get to choose your source for healthcare.

kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 4/1/2008 2:21 PM (GMT -7)   
Both illnesses have been found to possibly have a fungal etiology...caused by a fungus. May be introduced into your body through antibiotics, birth control pills, fungus contaminated foods ( all grains/peanuts), mold/mildew environment. I have heard of people with FM that have had their symptoms reduced with a change in diet...following an antifungal diet. Have you ever tried that? It has helped my IBS symptoms tremendously. I also believe in the probiotics helping restore your bowels natural flora from yeast overgrowth. Worth a shotto investigate, maybe............

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 4/1/2008 2:43 PM (GMT -7)   
Hopefully you can get some help. Whereas I have no personal knowledge of the institutes in Seattle they are all owned by the same Dr. he is a naturapathic doctor and not a medical Doctor which is OK but I think it is stretching it to say he is world renowned. If you live close to Seattle it might be worth a trip since nothing else seems to work. I get real nervous when I see Doctors claiming they can help almost everything because if this were really true it would be more widely known but it can't hurt to visit there if you live close.

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 4/1/2008 4:52 PM (GMT -7)   
I couldn't even find that guy's credentials anywhere on the site...naturopaths can be very knowledgeable but at least be upfront about the kind of medicine you're practicing! That's my gripe.
Co-moderator - IBS Forum


Normal
Regular Member


Date Joined Mar 2008
Total Posts : 263
   Posted 4/2/2008 4:55 AM (GMT -7)   
Gonna change my name from Normal(cause I wanna be :-) ) to crybaby. You  all are so positive, I just have problems after so many years. Liver cat scan good no problems,redo blood test in a month.No alcohol,like I was anyway. And eat lots of fresh fruit and vegs. for a month. I said Im not suppose to do that with IBS. Their reply OH. Im so happy liver ok but IM still in same ole place.Its 7:30 am here,been up 1 hour, 4 BMs. I go to specialist new specialist tommorrow. I gotta convince him that I cannot work on correcting this anymore while working. Told my fiance about Seattle,he ask if I want to go. If I have to go back to work like this they will NOT be happy campers. A month off and still running to bathroom. I quit taking all medications, scared of liver problems. Also havent tried  to go without for a long time. Since they were not working I decided to try without. Gonna ask for allergy test at DRs tommorrow. That will cost me again. Gonna run out of money,job and everything else before long. But then I am also so grateful to JUST have Ibs. MY legs, arms,back ache so bad sometimes now. Dont know if it is dehydration or not. That gastroview put me at 20 times Monday. Well thanks for all the info. Gonna go and print some stuff for the Dr. tommorrow.
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