Hyperkinetic Gallbladder?

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Medlesa
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Date Joined Apr 2008
Total Posts : 6
   Posted 4/11/2008 9:04 PM (GMT -6)   
Since October 07, I have been having off and on pain in my upper right side. I've had a ultrasound, nuclear imaging scan w/CCK injection, bloodwork, colonoscopy, and endoscopy. Ultrasound showed no stones, elevated liver enzymes from bloodwork (I'm 23, and only socially drink), my scan showed a 81% ejection rate and the radiologist noted hyperkinetic gallbladder, diagnosed with diverticulous, and I have a small hernia in my stomach? I've done a little research an discovered hyperkinetic means overactive gallbladder. I haven't seen my surgeon since I had the nuclear imaging scan. I ended up picking up the results from the imaging center and reading the report myself.
I have been dealing with this for only a few months now, but its been miserable. I'm in constant pain after eating any meal that is the least bit fatty or greasy. I've been through what seems so many procedures, and at this point I'm just wanting to be through with it and have my gallbladder removed. Anyone have a similar experience, or been diagnosed with a hyperkinetic gallbladder?

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 4/11/2008 9:50 PM (GMT -6)   
Hi Medlesa, welcome to the forum. From what I understand about overactive gallbladder (also called "hyperkinetic biliary dyskinesia"), it can be aggravated by fatty or spicy meals and also pretty significantly by emotional distress. Although it might be tempting to want to just "get it out," it's possible that your symptoms would continue, or you'd develop other troubling symptoms, even after the gallbladder was removed. There are a ton of posts on this site about people experiencing chronic diarrhea, for instance, after the procedure...no fun at all.

I know it must be really frustrating to be in so much pain. But I think it's important to go back to your doctor to talk about some other non-surgery options you could try first. Do you eat regular, evenly-spaced-out meals? Have you tried any medications? One of the medications that is used for this condition is Dicetel. I think it has the overall effect of other anti-spasmodics, but has been used specifically for the condition you're talking about.

Again, welcome to the forum, and I hope we can help you start to sort this out, or at the very least provide some support!
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


Medlesa
New Member


Date Joined Apr 2008
Total Posts : 6
   Posted 4/12/2008 9:40 PM (GMT -6)   
Thanks so much for the quick response. I've been feeling quite alone dealing with this, and I was starting to think I was crazy until I received the last nuclear imaging scan. I do not eat regularly. I know its bad, but I honestly eat about only once a day. I've been trying to eat 3 meals, as well as I joined a gym for cardio. As you may have guessed I am overweight. The only medicines i am on currently are nexium, darvocet, and flexiril (muscles relaxer).
I had thought that having the gallbladder removed with fix things, but after reading your post I'll deffiantly look at other options first. Thanks so much for your response.

Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 4/13/2008 12:25 AM (GMT -6)   
Hi Medlesa,
Yes, I think the first thing to do would be to increase the increase of times you eat per day, while decreasing the actual amount of what you eat each time. This will help control your blood glucose and probably your gallbladder symptoms. Exercise, too, is INVALUABLE and I think you will find some relief from this.

Keep us updated!
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 4/15/2008 10:53 AM (GMT -6)   
My gall bladder was dysfunctional, so I'd get times when it would dump all the bile at once. That sucked! I got mine taken out, and the pain from the sudden dumping stopped, but I found that I still have a lot of bile. Maybe I had too much bile all along. Anyways, there's nothing to be done about stopping or slowing it down, although I do take a medicine that absorbs a lot of it so I can sort of regulate it that way. Most people are told they will be 100% normal after they get their gall bladder out, and after talking to lots of people, I have found that this is just not true. Yes, a few people go back to being farily normal, with only a rare episode of being sick, but more people seem to wind up with fairly regular, if not constant diarrhea, or heatburn (and some get constipated). For me, my pain was so bad, and I had diarrhea so often anyways, there wasn't anywhere to go but up, so I got mine out.

Besides fatty and greasy foods, also watch out for caffeine; that was my biggest trigger, although it took me several years to figure it out. Even now I still can't have so much as one cola.

Medlesa
New Member


Date Joined Apr 2008
Total Posts : 6
   Posted 5/3/2008 7:41 PM (GMT -6)   
Update !!!

So, the general surgeon referred me to a gastrointestial doctor before deciding on gallbladder surgery . After one visit with the dr he recommended that I have an ERCP done where he would cut my ODD E spinchter and put a stint into my pancreas. I agreed and had surgery April 23rd. Well, it didn't go so well. I woke up in extreme pain, and developed pancreatitis. I spent 4 days in the hospital, and the past week on pain meds trying to get well. As of today, I am not in the pain I was after surgery, but instead back to the same side pain that now comes with pretty much no matter what I eat salad, soup, whatever!!!! I know I still have some lingering pancreas pain bc it gets worse when I'm standing, but I'm at a loss as to what to do now. I have lost 20lbs + this past month from just not eating or vomiting. I've altered my diet, and joined a gym 3 times a week with absolutely no relief. I've been on short term disability since the surgery, but suppose to return to work tomorrow. Not going to lie when I say that I am concerned about having to work while having this now worsened tummy pain. I plan on calling the dr on Monday. I think its time to just have it removed. I've been through so much, and I'm at the point that I'm afraid to eat !

eihcet
Regular Member


Date Joined Nov 2007
Total Posts : 52
   Posted 5/5/2008 8:56 AM (GMT -6)   
Thanks for the update, I've read pancreatis is a common side effect of the ERCP, so, perhaps it's just something that takes time to heal even after the worst (pain) symptoms are gone?  One question... I'm not following on the alternative procedure that you had done, specifically, I don't understand the recommendation for the stint.  I've read about ERCP and in cases where that valve doesn't open properly (or the path to it is too small) that they put a stint in.  In your case, it sounded like it was large enough or working too well in that it was letting too much bile through?  So I'm not sure how the stint resolves that.  Well, needless to say, I'm confused so if you feel up to explaining I'd love to read more about it.
 
I wish I could offer up some advice.  You said you are on a special diet, are you following a gallbladder diet (Are you avoiding the common trigger foods Carbonated beverges, Caffeine, bad-fats, eggs, etc)? 
 
 
 
 
 

Medlesa
New Member


Date Joined Apr 2008
Total Posts : 6
   Posted 5/5/2008 10:32 AM (GMT -6)   
Goodmorning. My Dr. told me that he was putting a stint into my pancreas to lower the chances of me developing pancreatitis after surgery. Didn't quite work out as planned. I used to be a avid coke drinker, but since all my stomach issues developed I no longer drink anything with caffeine, on a rare occasion I'll drink sprite, but mostly just V8fruite juice, gatorade, or water. I try to stay away from eating fatty foods, but have been eating eggs post op as to that was what the nurse recommended I eat bc it would be easy on my pancreas. Right now if I eat its either soup, or vanilla pudding. Everyhting else makes things so much worse. I tried to go to work yesterday, but ended up leaving early due to pain. I came home and rested. Today, I took off and am waiting on the drs office to call. I made an appt for tomorrow at 3pm to see my GI dr in hopes that he can spread some info on what in the world is going on. Hopefully, he'll be able to help or recommend me back to the general surgeon to have my gallbladder removed. At this point, i'll do anything. Its that bad, and I'm miserable. sad

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 5/5/2008 1:30 PM (GMT -6)   
I can't do eggs very well, and certainly no fruit juices. Too much acid. Not sure what it is about eggs, since I can do other meats okay. But it sounds like it doesn't matter what you eat because everything makes you sick (been like that myself in the middle of a GB attack).

Misty Brown
New Member


Date Joined May 2008
Total Posts : 1
   Posted 5/9/2008 4:31 PM (GMT -6)   
Medlesa! You poor thing! I feel your pain and I am so sorry that has happend to you! I too have a hyperkenetic gallbladder, but no stones. Basically mine and your gallbladder is in production all the time and never stops making bile. I have Biliary dyskinesia. All my scans and blood work all turn out fine except for the liver, and that shows elevated levels. This can also make the HIDA scan read higher than normal as well. Stomach problems and gallbladder probems can go hand in hand, although it's hard to know what started first. 85% of people who have Biliary dyskinesia and get the gallbladder taken out feel much better although some rebound pain can arise. Most times the rebound pain is from the stomach problems that have come about before, during or after the gallbladder problems. Also, if you have ever had a EKG done on your heart (you are young) but most times some sort of sinus Tachacardia will show up due to all the pain you are having. The body is great at showing signs of illness everywhere! I hope you feel better, I'd like to know how your progressing!

Misty Brooks
New Member


Date Joined May 2008
Total Posts : 1
   Posted 5/13/2008 7:47 PM (GMT -6)   
Hi!  This is the first site that I have found that sounds like what I am going through.  My Hida Scan showed that I have hyperplastic cholecystosis.  Which, from what I can tell means the same as hyperkinetic gallbladder.  Both of them empty too quickly.  I started out 3-4 weeks ago with upper right quadrant pain with nausea, vommitting.  It gets worse when I eat or stand or sit up.  It's really hard to have a life under these conditions.  Same thing for me, it doesn't matter if it's soup or a greasy hamburger, I'm still going to get sick.  Now, my latest really fun symptom is diarrhea.  Sometimes I can't even finish a meal before it starts.  I try to only eat one meal a day.  It's just to much deal with if I eat more than that.  I'm tired, I'm weak, and weary.  My CT Scans and Ultrasound shows that I have thickening of my gallbladder walls, as well as my gallbladder is distended.  I'm not able to work either.  The pain really kicks in at night.  I sit up all night.  Last night about 2 AM my fever started rising.  I just don't know what to do.  I am meeting with the surgeon tomorrow.  I had HELLP syndrome when I was pregnant with my son and they took him by emergency c-section 8 weeks early to save my life, thank God they saved both of our lives.  Anyway, I thought that I would never have to be in that kind of pain again, but I was wrong.  HELLP stands for Hemolysis, Elevated Liver Enzymes, Low Platelets.  It was the elevated  liver enzymes that gave me such horrible pain.  Well, I am having pain like that again.  It's not fun.  As a matter of fact, I am starting to get in such pain that I am going to stop typing.  Can anyone shed some light on my situation?  I too just want him to take it out.  My situations sounds alot like  everyone elses, but just digging for any kind of information.  Does anyone's pain radiate around their back and into the rib cage?  Mine does, it's painful.  Any and all comments and suggestions will be glady taken!     

Medlesa
New Member


Date Joined Apr 2008
Total Posts : 6
   Posted 5/21/2008 6:50 PM (GMT -6)   
My GI dr finally referred me back to the general surgeon last week. I got into see the surgeon last Tuesday (May 20th), and surgery to have my gallbladder removed is scheduled for this Friday May 23rd. I have been in just terrible pain that I am ready to take the risk of surgery. Dr. says though he can't be for certain that this will take care of the pain, but is hopeful. Once I am able to I will post back and let you know how it went. I'm hoping my experience in the hospital will be better than what happened last month. Keeping fingers crossed that it can be preformed laproscopically, but Drs. preparred me for possible open. I'm hoping that this is the answer, bc I can't continue to live like this.

Medlesa
New Member


Date Joined Apr 2008
Total Posts : 6
   Posted 5/21/2008 6:52 PM (GMT -6)   
Misty Brooks said...
</b> 2 AM my fever started rising. I just don't know what to do. I am meeting with the surgeon tomorrow. I had HELLP syndrome when I was pregnant with my son and they took him by emergency c-section 8 weeks early to save my life, thank God they saved both of our lives. Anyway, I thought that I would never have to be in that kind of pain again, but I was wrong. HELLP stands for Hemolysis, Elevated Liver Enzymes, Low Platelets. It was the elevated liver enzymes that gave me such horrible pain. Well, I am having pain like that again. It's not fun. As a matter of fact, I am starting to get in such pain that I am going to stop typing. Can anyone shed some light on my situation? I too just want him to take it out. My situations sounds alot like everyone elses, but just digging for any kind of information. Does anyone's pain radiate around their back and into the rib cage? Mine does, it's painful. Any and all comments and suggestions will be glady taken!




Unfortunately, I don't have any suggestions for you. Nothing has really helped me, other than plan old rest. I try to eat earlier in the day, so that at night I can try to sleep. I've had several different meds that never really did the trick. I wish you luck. What did the surgeon say to you ?

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 5/22/2008 7:16 AM (GMT -6)   
Ugh, it sounds horrible...I am wishing you all the very best...I hope this helps you get rid of some pain! Sounds like you've been through an awful lot...hang in there!
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


disneyprincess33
New Member


Date Joined Mar 2009
Total Posts : 1
   Posted 3/3/2009 8:22 PM (GMT -6)   
Hello! I was just diagnosed with this wonderful hyperkinetic gall bladder and was told my options are a very strict diet or surgery to remove it. I'm actually surprised there was something wrong with me. I started having stomach aches about 6 months ago, but I just thought I was eating too much at certain meals. I have had NO pain in my upper ride side associated with this condition except when I had the HIDA scan. My pain is usually in my lower intestines....and I'm very gassy. I'm really thinking surgery is not an option for me especially after reading the posts in this forum. What are the long term side effects of this condition if you leave your gall bladder in?

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 3/4/2009 4:31 PM (GMT -6)   
<<What are the long term side effects of this condition if you leave your gall bladder in?>>

I had a bad gall bladder for 5 years, because doctors couldn't figure out that that was my problem.

The attacks never go away. Altering my diet, I was able to put distance between occurences, but they never went away. In fact, as time went on, they became more frequent until, at the end, I hurt all the time and had diarrhea almost every day. In short, life became unbearable. As of now, there's no cure for a bad gall bladder, so the real long-term effect that you face is never getting rid of the pain; of living with that forever. Now, for people who only have an attack once a year, that's bearable. But if you get like I did, and you hurt all the time and you can't function in normal society because your guts are tore up all the time, it's not liveable.

I have a theory that the longer you suffer from having a bad gall bladder, the less likely you are to return to normal after having it out. It seems to me, of the people I've asked, that those who got their gall bladders out soon after getting symptoms, are less likely to have GI problems afterwards. If I'm right, the longer you keep it, the more likely you are to have problems afterwards. I think the body has to learn to compensate for the irregular bile flow and it doesn't necessarily compensate in a good way. And once the GB is out, it doesn't go back to working like it did before it went bad; it keeps working as if it was still having to deal with a bad GB in there. That's my theory, anyways.

I had a straight gall bladder removal--no fooling with my Spinchter of Oddi or putting in a stint or anything like that, and I had no complications from the surgery and no pancreatitis. It seems like the doctors tried to do an alternate to Medlesa, to avoid taking her GB out, and they made her worse. But she posted a long time ago; she was supposed to get her GB out and she hasn't come back since then. Hopefully once her GB was out, she got better and didn't to come here anymore.

ouchie momma525
New Member


Date Joined Jun 2010
Total Posts : 1
   Posted 7/1/2010 10:31 PM (GMT -6)   
I have a gall bladder ejection fraction of 90 percent and have been in pain 8 years. I finally figured out that this is what was causing me so much hell because all my other tests were normal. I think it would be beneficial to post a list of doctors who treat it since so many of them waive it off as normal. Trust me, I checked myself out of the hospital today (I have pancreatitis) but since they do not recognize this condition and balked at removing my gall bladder I had had enough! They really need to start dealing with this because I have seen so many posts of people in pain and who didn't know what was going on, me included. I had gotten and ERCP with Manometry because they said everything else was "normal". How can we get the medical community to recognize this as a condition so people will stop suffering?

ncdc96
New Member


Date Joined Feb 2011
Total Posts : 1
   Posted 2/13/2011 5:01 PM (GMT -6)   
ouchie momma525 said...
I have a gall bladder ejection fraction of 90 percent and have been in pain 8 years. I finally figured out that this is what was causing me so much hell because all my other tests were normal. I think it would be beneficial to post a list of doctors who treat it since so many of them waive it off as normal. Trust me, I checked myself out of the hospital today (I have pancreatitis) but since they do not recognize this condition and balked at removing my gall bladder I had had enough! They really need to start dealing with this because I have seen so many posts of people in pain and who didn't know what was going on, me included. I had gotten and ERCP with Manometry because they said everything else was "normal". How can we get the medical community to recognize this as a condition so people will stop suffering?vin
My HIDA scan says I have a Hyperkinetic Gall Bladder  (92%) and have an appointment to see my Dr. on Wed.  I have done so much reading and found that Dr's seem to be mixed on if the gall bladder has to come out or not.  I was wondering what part of the county do you live in, as if my Dr says it needs to come out maybe if you live close you could see him. 

akiri
New Member


Date Joined Feb 2011
Total Posts : 4
   Posted 2/14/2011 11:35 AM (GMT -6)   
I am a new member. Help. I had nonfunctioning gb for years. after millions of test nuclier show 12 % ejection. I got it out laprascopicly 2 weeks ago. It is less pain but after beeng brown for few days my bm is pale again. does it mean that bile not going there? or it not enoeph of it? Sometimes I have bright yellow diarhea some times constipated. can only eat yams, potatoes, fish a little chicken zukhini and apple juice. anything else make gas cramps.
Any thoughts how long it will be after sergery? The pain is better though. I just worry about bile not going where it soppose to. sorry for my spelling.

edward1
New Member


Date Joined Jul 2011
Total Posts : 2
   Posted Today 5:01 PM (GMT -6)   
hello, this is my first time ever getting into one of these rooms but i think i qualify. 3 years ago i was completely normal , healthy, active, i smoked, i drank, i dated, i had fun. now im a wreck. first w/ heart palpitations..doctor said anxiety .so i took zanex..had unbearable heart palpitations.nausea ..lightheadeness.. panic attacks.. never had them before in my life... ever in my entire life.. i was 25.. now nearly 28 ..male was 190lbs when this started now im 230 lbs..saw a cardiologist..gave me a haltermoniter at first to see what it was. then sent to ohio state where they did EP study to ablate my heart and found cardiomyopathy (mild)..been to 4 cardiologists so far.. they all have agreed none of these symptoms are caused by the heart. so anyways..been to see neurologist..he said nothing was wrong with me except maybe anxiety. i have had 3 general docs they all say anxiety..except the one i finally found who has sent me to all these specialists..he finally sent me to a GI this past year.. they found an elevated left hemi diaphragm..so general doc sends me to thoracic surgeon.. i have major thoracic surgery done (about 4 months ago) since then i still have all the same symptoms and these are..profound fatigue all day long (wanna sit down all the time) blurry wierd vision (feels like im out of my body or something wierd).. constant movement in my stomach like bloating w/ movement that feels like heart palpitations..wierd anxiety feelings i never had before this crap started... sorry this is so long ..im really messup up.., i cant concentrate. its taking all the strength i have to write this post.. just had another test from gi.. showed I have 95 percent biliary output. from my gallbladder.. is this the cause..???? i cant eat without discomfort, i cant work (but i do. i have no choice) im miserable all the time and it never goes away..YEA im depressed.. i wasnet before this started..what is this? and no doctor has helped me yet. none of them almost 200,000 dollars later. I am an occupational therapy assistant. i work in the health field and whatever is wrong with me is ruining my life..im at wits end emotionally and physically..

edward1
New Member


Date Joined Jul 2011
Total Posts : 2
   Posted 7/24/2011 1:16 AM (GMT -6)   
back again.. the more i think about things.. its like im obsessed with feeling this way now...but the more i think about the gallbladder problem, it apears to me like thats what it was the whole time..the cardiologist says that the "feelings" i was having were not heart palpitations.. took 3 darn years but i think this is the problem..the constant movement in my chest and pressure.. not stop every day is throwing me into a constant state of anxiety and fatigue...but i dont know if ill ever be the same old me again even if it does get fixed..i should have seen a GI in the first place not the last. all the other health issues i could live with .. this is horrible... and the doctors keep feeding that BS to you like " whats ur worst fear"..or " its all in ur head" or "you need councelling".....> NO what i need is the FCKIN presure in my chest OUT.... thats what I NEED. i was a regular person before this shyt...IM SO PISSED. and no one understands the pain i go through or what its been like for me. yea just imagine pain and discomfrot that never goes away.... ever... even in ur sleep.. i had 2 sleep studies... they told me i didnt have sleep apnea but i wasnt dreaming at alll,, been tested for narcolepsy.. didnt have it.. i just want this nightmare over. does anyone out there no what i am talking about at all..??? sory if i sound crazy.. im so tired of this.

kim24
New Member


Date Joined Jul 2011
Total Posts : 15
   Posted 10/24/2011 10:07 AM (GMT -6)   
EDWARD1   I was wondering how you are feeling now,   I have had alot of the same symptoms for over 2 years now,  my ejection rate on GB test was 80%,  I have had all of the tests including heart,  I get palpitations, chest pain and pressure,  I also get pain under lower right rib and a feeling like something pushing outwards on my right rib,  this feeling never goes away, so after all of this testing my surgeon finally said he will take galbladder out, Im having it removed on Oct 31st,  I also have heartburn all of the time, and because ive had these symptoms for so long I have anxiety attacks almost everyday now, If having my galbladder out dosent help I just dont know what im gonna do,  I cant keep living like this!!! cry

butterflyAK
Regular Member


Date Joined Aug 2012
Total Posts : 43
   Posted 8/19/2012 10:51 PM (GMT -6)   
I am so thankful to find this post. I have been absolutely miserable since 6/21/12. I have had stomach problems that seemed to start one day out of nowhere and they have never stopped. On June 21 I ate a very late lunch, nothing too exciting some salad and jambalaya. Within 10-15 minutes, I felt this horrible pressure in the epigastric region and then felt queasy, and started having burning and tingling down both my arms, my heart starting beating fast, and I had pressure in my chest. I thought there was something seriously wrong with me and that I was having a heart attack or something. And as soon as the symptoms started that day I had what I think was a full blown panic attack. I have never had a panic attack before this. I had some issues with anxiety and flying, but never ever like this. It took 3-4 hours to come down from the first episode. I wrote it off that I was really stressed with work and it was an isolated incident. But unfortunately I was very wrong. Starting with my next meal, which didn't happen until lunchtime the next day I couldn't eat without having the same symptoms, nausea, pressure in epigastric region, burning and tingling down my arms, fast heartbeat not to mention I had no appetite whatsoever so eating was very challenging. I also just did not feel like myself and I knew something was not right. Keep in mind I am a health professional and I am pretty medically savvy, but I had no idea what was going on. The next 2 weeks after that, things got progressively worse. I couldn't eat without feeling awful. The pain and discomfort would subside several hours after I ate, but then over time started to be constant, just worsen when I ate. I started losing weight, and was thrown into a constant state of anxiety. I want to know what person can relax when they feel unrelenting burning and tingling in their arms and their heart is beating a mile a minute and they can’t eat. When I checked my pulse it would be 90 or so, which I know is considered a normal resting heart rate, but my normal heart rate was 65-70 before this.

Within a few days of the first episode I went to my GP, told her my symptoms and she thought maybe dyspepsia. I also asked if it may be my heart and she said “no” after doing some stethoscope listening. I know I am only 31 and in good shape, good diet overall, but this chest pressure I was having didn't seem right. I have never had problems with indigestion or heartburn before this started but I decided to try the meds she recommended. I took Pepcid AC and Prilosec, each 2x/day. I had absolutely no relief from this. On the Saturday after that appointment I was getting worse and the pain had changed from just epigastric to include the area below right ribcage. I started getting shaky like chills and shortness of breath. I went to the ER. The ER doctor said "definitely sounds like gallbaldder" so I had an ultrasound. Well the ultrasound results showed gallbladder looked fine, as well as my kidneys, liver, aorta, etc. He gave me an Rx for Cipro 500mg and Flagyl 500 mg (metronidazole) both twice a day in case it was an intestinal bug. I starting taking the antibiotics and my problem kept getting worse and worse. I could not eat anything without getting sick. At this point I couldn't sleep well, my anxiety was not helping. On July 4th, I took a huge nose dive. Because eating was such a horrible experience my diet consisted of ensure, nuts, fruit, some chicken broth here and there. The night of July 4th I was feeling worse and worse, my stomach pain was out of control (probably a 9 on the pain scale) and it was shooting through to my back, I was having diarrhea, extreme nausea, intermittent dizziness, and a horrible headache. I also felt like I was in this weird fog, and my vision wasn't right or something (kind of like what EDWARD1 mentioned in his post 7/22/11. I stayed up all night thinking the worst was happening to me...was I having an aortic aneurysm? Right kidney failure since my right back was hurting so bad? Sometimes as a medical professional I wish I didn't know so much about what can go wrong. I was in agony for 12 hours and had to have my husband take me to the doctor because I was so sick. So there I was back at my GP, I could tell by the look on her face I was looking pretty bad. My stomach pain was so bad, and I was trying not to vomit in her exam room. She gave me carafate (a medication that helps coat the stomach) and Zofran and Phenergan for the nausea. I had a CT scan of my abdomen and pelvis the following day and had to stay in the hospital for a bit after that to get some fluids via IV since my diarrhea was so bad and I could have no water before the CT scan, I was very dehydrated. Well guess what, the CT scan showed nothing, just a couple of small cysts on my ovaries, which apparently the kind I have is very common and can change from month to month. Went home after CT scan still feeling sick and could not eat hardly at all. A few days later I had an upper endoscopy because they thought I may have a bad case of gastritis. That showed nothing as well other than very over active peristalsis, but was negative for h pylori and celiac disease. They also did and EKG that day and my doc said it looked "beautiful", and that my heart was fine. He also said I would probably start feeling better in just a few days, WRONG.

After the endoscopy I was having terrible headaches (mostly on the left side of my head- weird), same stomach pain in epigastric and RUQ (right upper quadrant) area, chest pressure, increased heart rate, constantly felt like I was in a fog, my anxiety was through the roof, and I cried all time because I could get any relief whatever I did...NONE. I was so unbelievably uncomfortable all the time. During all this I had blood work several times to check for everything, kidney and liver function (amylase and lipase), liver panel, a CBC panel, metabolic panel, gluten allergy (IgA and IGG), vitamin B12 levels, D vitamin levels, mono SPOT test, thyroid function. I also had my stool checked for everything...blood, c. diff, white blood cells, shiga toxins, e coli, shigella, salmonella, campylobacter, giardia, and other parasites. All were NORMAL! At this point I was questioning whether it was all in my head, but deep down I knew something was wrong. I still felt horrible.

Back at my GP and she gave Rx for amitriptyline 10mg at bedtime in case this was related to IBS and to help with mood. She asked if I was depressed and I said yes. But I was not depressed before I got sick. I am also taking lorazepam up to 1mg daily to help with anxiety. The amitriptyline allowed me to finally sleep at night but the side effects aren't the greatest. I also started taking Buspar 10mg daily divided into 2 doses. Ok, so after being on these meds no stomach relief, still can’t eat without bad reaction, some help with my anxiety. Lorazepam would somewhat make my stomach pain tolerable, but not all the time.

At this point you are probably asking why I haven't been to a GI. Well when you live in Alaska, Seattle is the closest place. I was not going to spend all that money and time to have the GI tell me, sorry there is nothing we can do for you. I needed some sort of lead. I was getting so discouraged at this point. I had lost over 15 lbs (5’8” starting weight at 146, now at 130) and still losing. On a gluten free, dairy free, fat free diet in case all this was due to a food allergy. And my tests were normal, normal, normal…but I felt far from normal, I knew there was something that wasn’t right and all these symptoms were not due to anxiety and depression alone. I just kept saying to myself there has to be a reason I cannot eat!!

After this, I was sent for a HIDA scan, MRI of my abdomen, and MRI of my brain (due to all the burning and tingling I was having after meals). I had all 3 tests performed 8/6/12. Both MRIs came back completely normal, and my doctor said my HIDA scan was normal too. But my ejection fraction was 84%. I knew from the research I had done this was not necessarily normal. I then talked to 2 separate general surgeons and my brother-in-law who just graduated from med school. All 3 had heard about a hyperactive gallbladder and gave me some research articles showing that patients with an ejection fraction higher than 80% often have relief when the GB is removed. Meanwhile I have been prescribed Bentyl 20mg up to 4x/day. It is an antispasmodic for the GI tract and has taken me from completely and utterly miserable to just feeling sick and uncomfortable.

I am getting my gallbladder removed in the next 2 weeks. I am hopeful this will be it! I WANT MY LIFE BACK. I am very nervous, but I am willing to take a gamble and both surgeons I talked to feel pretty confident this will get rid of or significantly improve my symptoms. I know this is so long, but I wanted to share my story to all of you who are dealing with GB issues. DO NOT give up and don’t stop praying, you are not crazy. I am so sorry all of you went through or are still going through this. I will post again after surgery, I promise.

Post Edited (butterflyAK) : 9/11/2012 8:55:54 PM (GMT-6)


maddybear23
New Member


Date Joined Sep 2012
Total Posts : 2
   Posted 9/8/2012 11:22 PM (GMT -6)   
Hey Edward 1! Just wondering how you have been since your gallbladder was removed? I have the EXACT same symptoms as you and am beginning to feel crazy. My ejection rate was 96% and am being told that it is normal. This has been going on for a year and I am unable to live the life of a normal 31 year old. Please let me know how it if going. Thanks!

butterflyAK
Regular Member


Date Joined Aug 2012
Total Posts : 43
   Posted 9/11/2012 10:43 PM (GMT -6)   
Well it has been 2 1/2 weeks since I had my gallbladder removed. The surgery was no big deal, and not very painful, but made me very nauseated for about a week. BUT it wasn't the solution...the right side of abdomen still hurts all the time. I am still having a really hard time eating without PAIN, and I am still losing weight, now lost over 20 lbs. But they cannot figure out what is causing it. Only thing they can find is extreme digestive motility. So then, why are my bowels so hypermobile? No one seems concerned about it. Most evenings I get home from work, try and eat some rice or other bland food, and then put ice on my stomach. The ice seems to help with the pain, or at-least act as a diversion. I am still on anxiety and depression meds. When I take lorazepam it does help my stomach pain, maybe because it acts as a muscle relaxant as well. But obviously I cannot keep taking that. I am not giving up. I am going to the University of New Mexico hospital to see a GI and whatever other specialists I need to see. I refuse to believe this is all anxiety related. There has to be a way to manage my symptoms. I cannot live with horrendous stomach pain any longer. I used to love food...now it just seems like a job to feed myself. Everyday is a real struggle. I am determined to get my life back. Good luck to everyone and keep faith.
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