IBS and gainful employment

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bellyachin
New Member


Date Joined Apr 2008
Total Posts : 3
   Posted 4/23/2008 12:17 PM (GMT -7)   
nono  have you ever felt that no matter what you do, you did it wrong?  For all I know, I'm not even in the right forum!
 
Over the last two months or so, I have been unable to control my bowels and have missed so much time at work because of it that I felt forced to resign so I won't have a termination on my resume.  Of course, there was zero tolerance or understanding of my particular problem, so not only did I give up my job, I probably still won't get a good reference. And if that wasn 't enough, I didn't know that my insurance would IMMEDIATELY terminate - I was under the impression that I'd have until the end of the month to complete some needed tests.
 
SO - here I am, unemployed, undiagnosed and unisured - and a single mom of a toddler.  Thank God for savings.  I read here that stress can make symptoms worse, and boy do I see the reality of that statement!
 
My question is, how do you find gainful employment when you are consistently running for the pot, or worse, can't always make it?  Not to mention the even more embarrasing inability to control "emissions". 
 
My last job was extreeeeemely unsympathetic.  I have had problems with my guts for years, but it always passed and wasn't bad enough that I felt the need to get tested.  Lately though, it's like my intestines are going to do whatever they want, no matter what I say, and this has caused me to lose quite a bit of time at work. I guess since my labs kept coming back fine that nobody believed that I had a problem. Even my boss, who I also considered a friend, told me that I needed "to get over it" and how it was inconveniencing her that I wasn't there. Well duh, I knew that!  I'd rather have been in my chair at work than the "chair" in the bathroom! 
 
Her boss, the owner, was even worse - inferring that it was all in my head and I had emotional problems, not physical ones.  I had always been a dependable and hardworking employee (I'd been there a year and a half and missed two days), so this attitude really shocked me.
 
Everything has pretty much been ruled out by routine labs, ultrasound etc. from my regular doc; not gallbladder, ulcer, liver etc...every lab or test that she had run came back fine.  She was in process of referring me to a gi, but now I don't have insurance. 
 
I am at the end of my rope here folks, I am wallowing in guilt for being sick (but not really according to labs and tests), for quitting my job, for letting down my little boy who is only two and relies on me for everything.  This problem has been going on for several months now and I could really use some (useful) advice.  In the meantime, thanks for the shoulder...

Loni123
Regular Member


Date Joined Jan 2008
Total Posts : 60
   Posted 4/23/2008 1:43 PM (GMT -7)   
I thought it was law that you were covered until the end of the month, dont rely on your ex job to tell you when your cut off date is call your insurance company if you havent already done that. My last job did the same thing to me. your job(knowing you are wanting more test) may just want to keep their cost from going up.

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 4/23/2008 3:05 PM (GMT -7)   
If you are in the United States, it is ALWAYS better to let someone fire you, because then you can collect unemployment benefits (you just need to explain to the unemployment office that the reason why you missed so much work is because of health--a doctor's letter saying yes, you have bowel problems that can make it difficult to work full-time would help).

And, besides, in the US you never put on your resume that you were fired. If anyone asks why you left your old job, you just tell them that you missed too much time due to health problems--but you be able to tell them that those problems are now fixed, or that in working part-time, or from home (or whatever) they won't interfere.

Do you not find that imodium helps stop your diarrhea?

It's a shame you don't have a GI. Now's the time to see if you could get them to help you get disability; there are a few people on here who have gotten disability because their IBS was so bad.

Lady Frog
Regular Member


Date Joined Feb 2008
Total Posts : 139
   Posted 4/23/2008 3:16 PM (GMT -7)   
By law you are covered till the end of the month. You paid the premiums right? As long as the premiums have been paid the insurance is there. Your little boy may be depending on you but you are showing him that your health is more important then another person's whim. My old boss at my last job said that she was diagnosed with IBS as well. So I thought she would understand. WRONG!! She told me to stop eating fast food and my tummy would be just fine! And when I would get sick she told me to pop a few Immodium to get my symptoms under control!! One, she's not my doctor and she shouldn't have been telling me what to do to stop my symptoms( I can't take it to start with because my tummy is hyper sensitive to anti- diarrhials and a half dose stops me up for over a week) and two, not everyone's IBS is the same so what works for her( no fast food) is not going to work for me. In the end the management made everything so hostile that I quit. They didn't even accept an excuse from the emergency room as a valid reason for missing work and said that I was not eligible for FMLA(which was a lie). There are jobs out there that will work with you. My aunt has colitis and she has found both good and bad employers.

Focus on your son right now. You are the center of his world and he is not going to see that you have no job. He is going see that mommy loves him and is home spending time with him. He's not going to care if you can't buy him as many treats. He's going to be so happy that mommy is playing with him in the yard or that you two are watching his favorite movie. Pepto may become your best friend. Keep your ear to the ground and something may turn up. I know stress tends to make things worse for me. Just keep repeating that none of this is your fault and that no matter what happens the person who matters most( your son) will love you no matter what.

Lady Frog
Regular Member


Date Joined Feb 2008
Total Posts : 139
   Posted 4/23/2008 3:48 PM (GMT -7)   
Oh Keriamon? Not all places will fire you. They made everything as miserable as possible for me but they didn't fire me. They would put on for six days in a row but only give me 24 hours a week. Or they would have me work opposite shifts like closing one day then opening the next( closing I didn't get out till 10, but then I had to be back in at 6 the next morning) basically anything to get me to quit. Alot of times I was getting minimum hours and the worst part was I wasn't even really missing much work!! I was trying to work with them by coming in early when they needed me and working late as well. I worked there for two years before I missed a day. Then I had a rough patch( landed in the ER, new meds were not working) and all of this happened over a period of a few months.

Thing is the place I worked would not fire anyone unless it came to the point of them needing to press charges against you. One girl came to work repeatedly drunk and they didn't fire her. Not until the one night she came in so drunk that she nearly puked on a customer. She never showed up on time either. Another girl they suspended her TWICE for stealing( first time for giving away free stuff and the second for purposely mis-ringing up a friend's order and giving her over a hundred dollars worth of goods for twenty bucks. It wasn't until she did it again( this time she mis-rang up several hundred dollars in stuff for about ten bucks) that they finally pressed charges and fired her. We were union( not that they did anything for us other then host a golf tournament for all the stewards) and they filed a grievance for anything and everything if they tried to fire someone. But I did make a copy of my resignation letter and I stated in it that I was leaving because the job would not work with my disability and that I was denied FMLA. And I sent it to corporate as well as giving it to my boss. The only union policy that ever benefited me was that they said the company had to keep all correspondence in my permanent file and the file is kept for ten years. Plus I have a personal copy signed and dated by the store manager and my boss.

bellyachin
New Member


Date Joined Apr 2008
Total Posts : 3
   Posted 4/23/2008 5:16 PM (GMT -7)   

thank you all for your responses so far; LadyFrog, I really appreciate the support.  As I'm sure most of you know, intestinal problems are a hard subject to open up about and it sure is a lonely feeling.  Even though this problem is fairly new to me and I haven't even been diagnosed officially, I feel better being able to talk to ya'll.

My job was M-F 8-5, but like you, they tried to make it as hard as they could by ensuring there was nobody to back me up on the phones or giving me lengthy assignments that had to be done "right now", needing errands to be run that entailed being away from the bathroom for an extended time, moving file boxes etc.  In short, things they didn't normally do they went out of their way to arrange.  It boggled my mind because up to that time I loved my job and got along quite well with the people.  Either way, I felt the worse of two evils would be to resign (In the US, most prospective employers call the last one for a reference - a termination is a guaranteed bad reference; a resignation leaves a better chance of a good one).

I didn't know unemployment would be available after a termination of any kind; I don't exactly have a lot of experience with terminations.  Maybe I should have waited to get fired but the end result is that I'm out of a job. 

My little one does love having his mommy around more often - even if we have to stay around the house he doesn't seem to notice.  Pepto seems to help occasionally, Immodium or those types of pills tend to send me the other way for at least a week and the gas persists no matter what I take.

I will call my insurance company but suspect what my employer said is true since the company paid premiums for employees.

I am continuing to do some reading on this site and am going to start a diary to help see what I'm eating when the worse symptoms happen.  Maybe if I figure out some triggers and eliminate them I can start getting this under control, but looking back, it doesn't really seem to matter what I eat.

Any other input or advice would continue to be appreciated - again, thanks for the shoulder!

 


Normal
Regular Member


Date Joined Mar 2008
Total Posts : 263
   Posted 4/23/2008 8:01 PM (GMT -7)   
bellyachin, I am so sorry you are having these problems. First of all I want to tell you that YOU ARE NOT ALONE! Ive had ibs-D for 25 yrs. Have been at this job for last 10 yrs have 24 yrs in total. Thats right I am old :-) My job now wants me gone SOOO bad. They have made my job a living he--. Even the ones who really try to understand get frustrated with me. Drs. and the majorityof people just do not understand how chronic diarreah controls your life. I was told for yrs I just needed to learn how to cope with stress. It is not your fault. Does your state have state insurance? MY state just started it. I KNOW as a single mom you can get assistance. You need to go down to state office and apply for food stamps and ask about medical and everything else. Once you have the financial and medical you can concentrate on your stomach. I have been on this site for the last month saying I was going to get fired and worried about medical. It really does help coming here to talk. I am 50 so I dont really qualify for anything but I know you can get help.Hang in there. You also can get test paid for if have no insurance. Im not sure how but go to the state office and ask. Good luck, I feel your pain.

gutastrophe
Regular Member


Date Joined Jul 2007
Total Posts : 319
   Posted 4/24/2008 1:11 AM (GMT -7)   
bellyachin,
Welcome to the forum!  You are truly among friends here!
 
What's done is done regarding your employment situation.  Best thing you can do for yourself is let it go and move on.
 
Normal had a great suggestion about applying for single-mom benefits.  They may not cover you, but they will provide coverage for your son.
 
You mentioned that you had savings.  I think it would be a good use of some of that money to see a GI immediately, get a proper dx (could be Chrons or IBD), and with your doc's cooperation, apply for Disability benefits.  If your condition is so debilitating that you are having frequent accidents, you shouldn't have any trouble convincing the doc or the disability folks that working is impossible at this point in time.
 
You didn't mention what type of work you do, but there are some resources online for finding work-at-home employment. 
 
Because of my chronic and severe symptoms, I have made it my mission to find employment only in evironments where flexibility is offered.  It is possible, with a lot of foot work on your part, to fashion a job for yourself that will provide the comforts you need to do your job.  I've been blessed so far to have fairly compassionate employers who only need to be told by me that my condition is severe and may require some special accommodations. But if I found myself in a hostile work environment, I would not hesitate to bring a doc's note to Human Resources that would compel them to make necessary adjustments.  We must advocate for ourselves because, as you have experienced first hand, there is a total lack of understanding and empathy when it comes to the disorder.  Try to remember that what others think and say about IBS is irrelevent.  As long as you know the truth about your condition, and speak with confidence, you will function more effectively as your own champion.

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 4/24/2008 7:41 AM (GMT -7)   
Unemployment is actually only for people who have been laid-off or fired without "due cause." So, if they fire you for never being at work, then you aren't going to get unemployment BUT if you show that you were missing working all that time because of illness (that's where that doctor's note comes in), then you might can wrangle unemployment. It's up to you to prove to the government that they fired you because you were missing because you were sick. Missing because you were sick is considered a legitimate excuse and you should be able to get unemployment.

You know what you and Lady Frog have described? A hostile work environment. I know Lady Frog already has her disability, but if I were you, Belly, I'd go to the unemployment office or labor bureau and say, hey, I have this intestinal problem that I have not yet gotten a firm diagnosis for, and my office got so hostile towards me when I had to miss because of being sick or going to the doctor, that I felt I had to quit. I mean, they'd stick me in positions where I could not easily go to the bathroom, KNOWING that I needed to go to the bathroom frequently because of this problem I'm having. I'd ask to go to the bathroom and they'd tell me to wait (or whatever it is they did to you).

Then see what they say. I mean, if they say, well tough, you shouldn't have quit, you're out, what, a couple of hours of your day? If they have sympathy for you, then maybe you can finagle some unemployment anyways. It's hard to prove, but it's against the law to create a hostile work environment for anyone, including people with medical problems.

Gut makes a good point: if you have secretarial skills, you might see what you can do in order to become a medical or legal transcriptionist. Almost all of that is done in-home and via e-mail and it's legit. Then you would not only have a better situation for yourself, but you'd always be at home for your son, which can cut costs if you've been needing to pay for before and/or after school care while working a "regular" job.

Can you make anything? There are places like www.etsy.com which sell nothing but handmade items that people make. It's a consignment store, basically, with really low fees. If you can make something, try selling it there (that's where a lot of ex-Ebay people have gone because the fees are much less). That might help you bring in a bit of side income.

bellyachin
New Member


Date Joined Apr 2008
Total Posts : 3
   Posted 4/24/2008 8:53 PM (GMT -7)   
Keriamon!!  I LOVE crafting but my supplies have been collecting dust!  Now that I have so much extra time, I can get going on crafts and try that web-site.  I am trying e-bay with some of my sons outgrown clothes and toys and am striking out so far, but since I'm a new person, I guess they don't trust me yet...but I'm not giving up.  THANK YOU for the idea, I sometimes can't see the obvious for worrying about other things and didn't know about that website.
 
You all have really made me feel like I'm not so alone out here, I hope you all feel that you have helped another keep on keepin on, because between my first post and now, I feel like I'm not so much a freak and feel better armed with ideas on how to approach my life with this problem - both personally and when I go job hunting.
 
My little one wants his bedtime story - will keep in touch yeah tongue

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 4/25/2008 7:50 AM (GMT -7)   
I read this really inspiring story in my bead catalog once. A lady and her husband were homeless--they lived in a school bus in a camp ground while he worked a minimum wage job to feed them. She scraped together some money one day and bought some beads from the catalog and made up a bunch of earrings--like 250 pairs of them. Her husband said she was crazy for spending their little bit of money on beads, but she took all of her earrings to the local flea market and sold them for $5 each. That got them enough money together to put a deposit down on a small apartment. That had her inspired, and when she saw some little velvet pouches at a yard sale, she bought all 120 of them for a nickel each. Then she beaded butterflies on them and attached them to beaded necklaces and sold all of them at the flea market for $20. That helped get them enough money that they were able to rent a house. Then she went to a farmer friend and picked some skulls out of his bone pile and she put beads all across them (Native American design) and sold all three for $100 each at the local flea market. They then bought the house they were renting!

I just found that story so insipring when I read it. It made me think, you know, I can make money at anything. I can bead and sew and do a lot of other things; I may end up poor, but I can always do something to feed myself. Not like we lack flea markets in TN! And there's always the internet.

Lady Frog
Regular Member


Date Joined Feb 2008
Total Posts : 139
   Posted 4/25/2008 9:06 AM (GMT -7)   
I remember that story from the other message board and it is an inspiring story. I'm seeing my disability as temporary. My husband and I still need to eat and keep a roof over our head. But I have never stopped scheming and planning so that I can have my own income. I'm looking into starting my own business. I'm not very crafty but I do have some things that I am good at. I love gardening and hubby and I are keeping an eye on the prices of homes with some land with them. The nice thing with plants as your boss is they don't care if you need to take a bathroom break every twenty minutes or dock you pay if your late because your tummy kept you up all night. Granted my grand plan hasn't been thought all the way through yet but I'm working on it. Right now the grand scheme is to grow herbs, preserve them in oils and sell them online as gourmet cooking oils. My family is great because they are more then willing to be my guinea pigs through all of this. When I wanted to open a candy store they put up with my experiments of covering everything in chocolate and the disaster with the burnt sugar after my attempt at making hard candy. When you have family ( and us) behind you anything is possible.

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 4/25/2008 9:50 AM (GMT -7)   
You can get unemployment for being fired for reason where I live. I know of people who have received it after being fired for not performing up to par and I know of people who my companies have paid it for, even though those employees were fired for good reasons. It is also up to the company on when insurance ends for termed employees. Most do it to the end of the month, but not all. If your company told you it ended on your last day, that is a possibility.

If you can afford to see a GI and get a diagnosis, many drug companies offer assistance in paying for their medications. Once your GI has prescribed something, check with those companies...you may be able to get some meds for free or at least a lot cheaper.

As far as finding a job, you may find more job protection at a large company or a company with a union. Once you've been employed for 12 months and work over 1250 hours, apply for intermittent FMLA, so you can miss work and not be penalized for it. FMLA will protect your job once you've been there long enough. It's a matter of luck on getting a supervisor who is compassionate and understanding about your situation. Just make sure that you always show you are dedicated to your job and that you aren't just making up excuses, since many people who don't understand the disease think it's in our heads. If you have to have to take a lot of bathroom breaks throughout the day, come in early or work late (assuming you can with your son) to make up the time you missed in the bathroom. I got lucky with this job and found a boss who is great whose daughter ended up being diagnosed with Crohn's disease (I also have Crohn's), so she understands. But, I still filed for intermittent FMLA to protect myself.
...rejoice in our sufferings, because we know that suffering produces perseverence; perseverence, character; and character, hope.   Romans 5:3-4


Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 4/25/2008 7:19 PM (GMT -7)   
In CA you have the right to convert to a private policy when you leave the job or at least you used to. It can be expensive but less than the tests would be for a month or two. Also, what about COBRA. I definetly would call the insurance company and not go by what they said. It seems to me that they pay these premiums in advance for a month so it is not likely that they will remove you but then the month is almost up but maybe there is some way to keep it. I have gotten unemployment when I quit a job for good reason. it is up to the employer to fight it if you apply and even then the final determination is the Unemployment board.

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 4/25/2008 7:19 PM (GMT -7)   
 double post mad

Post Edited (Canyonbabe711) : 4/26/2008 10:18:00 PM (GMT-6)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 4/26/2008 8:34 PM (GMT -7)   
Hey Belly - you have received a lot of good advice so far. I would still try to get unemployment. A coworker quit because of mental problems and she still got unemployment by claiming that our work environment was not conducive to her problems and was causing her undue stress. It can't hurt to try!! If you have the ability to COBRA your insurance I would spend your some of your savings on that just so you can get whatever tests you need like Canyon suggested. Definitly check out your states services for low income families, new moms, single moms, etc.

Next - you asked how we work with these problems. You learn to adapt. Luckily I have been blessed that my bosses have been understanding. But I also make it very clear what I can and can't do. When I worked corrections I had a doctors note that said I needed constant bathroom access so I was excused from transports. I told my coworkers about my disease and why I would need to make sure they were around to relieve me if I had to run to the bathroom. Next, I figured out what foods made it worse and avoided them at work. I did a liquid diet at one point to give my gut a break. I knew every bathroom on my route to work and would allow 2 hours for my 45 minute commute so I could stop at each one. I had a trash can with a bag and toilet paper in my car just in case. I had a change of clothes just in case. I would also take immodium but you said that does not help you. Maybe a kids dose would help stop the D without causing the C?

I think a lot of the problem is anticipatory anxiety. Once you have an accident you are always afraid of them. Having a few good days really does help. Maybe you could ask your doc for an anti-anxiety that you could take to help you when you are trying to get out. Last but not least, there are always diapers. I haven't had to resort to that yet but if it came down to being unable to work or wearing a diaper it would be a tough choice. Maybe someone with more diaper experience can explain if they are discreet and if you have an accident if it is obvious (like when a baby poops) or if you could still finish what you were doing, etc.

I feel your pain and I wish you luck!
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 


Normal
Regular Member


Date Joined Mar 2008
Total Posts : 263
   Posted 4/27/2008 11:00 AM (GMT -7)   
Hey fitz, Take it from someone who has IBS_D for 25 yrs. I have had more accidents at work and in cars then I care to think about. You CANNOT finish what you are doing. No one realizes how bad an adult BM smells without the water in a stool. The minute you go it is BAD! Then you have the pain and burning on your skin. Adults eat a different diet then babies and it will eat your skin up. And last but not least the total devastating effect. You have to go back into work and face the people that you ran past with this gaging odor! See bellyachin I told you that you were not alone. I for one simply cannot take it anymore. Im on fmla now trying to control D. My headaches got so bad at work from not eating it was ridiculous. I attempted to go to store by myself yesterday and thought I was gonna have to leave cart. I had ate 2 hours before, had 2 normal bms so thought I was ok. WRONG! I didnt make it home but at least I made it out of the car at home. I want to work too, am going crazy at home. Staying busy, building a house, but I just cannot take the accidents around others anymore. Trying new meds. Need lots of prayers. Hope you can grt some assistance bellyachin cause sounds like you deserve it>

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 4/27/2008 1:43 PM (GMT -7)   
Hey normal - thanks for answering my question. I always figured that adult diapers wouldn't really solve the problem. My family has suggested them for when my crohns is flaring. I just assumed that it would catch the mess, and I would still have to run to the bathroom. By no means is it a viable solution. Sorry you are going through so much. I was told I had IBS for years (D) before I found it was crohns. I am actually grateful it is crohns because now that I am treating it I can live close to a normal life. Again, thanks for answering my question.
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 4/27/2008 7:37 PM (GMT -7)   
PS: I was feeling a little guilty about saying "you adapt" because i felt it could be misinterpreted or taken the wrong way. I wasn't saying "its in your head get over it" or anything like that. I was saying I had to adapt and change my work environment to fit my new limitations. I also had to adapt my way of thinking and train my body to stop fearing accidents. At that point I had never had one but had come so close so many times that it was my constant fear. I understand that if you are constantly having accidents you can't work. I was just trying to answer how one does work w/ IBS and IBD and frequent urgent bathroom trips. I hope it wasn't misinterpreted.
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 


Normal
Regular Member


Date Joined Mar 2008
Total Posts : 263
   Posted 4/28/2008 11:40 AM (GMT -7)   
I didnt take it the wrong way Fitz. I have been able to adapt for 25 yrs. Well the last 5 I have had major problems. My work tried to get me fired for missing work. I was doing all the test over at the time. I had to get Drs. excuse to go to bathroom frequently, they wanted me to quit becauses of it. Its just a cut throat work place anymore. There is NO JOB SECURITY so co-workers seem to like to point point out or complain about any little thing. I am almost sure I have something else going on besides IBS-D. YesterdaY I could hardley walk because my knees hurt so bad. They already checked out my liver cause enzymes high. I go to have my kidneys checked out next week. Have frequent trips to P also. I just cant see all this being IBS. I thought it was becauses for the first time in my life I was getting overwhelmed and depressed. I lost my parents and brother and husband to terrible terminal illnesses. Sure I got depressed but I coped. I kept seeing these comercials that said "Depression hurts" I have finally started taking a antidepressant for the first time ever. It has only been a week but am hoping it will help. It is SOOOO nice to hear that someone is working and coping. You are right about one thing. They know how to prevent crhons attacks, not just treat the symptoms. Hopefully they will start working on IBS more. I have a friend with chrons and she says her attacks almost always come at the same time of day. That would be nice foe me, alot easier to work around. It has been nice talking to you ,take care. Normal

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 4/28/2008 12:16 PM (GMT -7)   
Normal, given that your knees are hurting, have you been tested for Lupus and/or Fibromyalgia. I think lupus can be detected by bloodwork, but I think the Fibro is like IBS, in that you get it by a process of elimination. The fibro, I know, has bowel problems associated with it.

Normal
Regular Member


Date Joined Mar 2008
Total Posts : 263
   Posted 4/28/2008 2:20 PM (GMT -7)   
Keriamon, I dont know,I just feel like a hyperchondriac(spell?) sometimes. I feel so bad for my loved ones I hate to always feel bad. Between the D and headaches(sinus infections, fatigue I usually dont try to hide my muscle cramps and soreness. I cant very well anymore. Even my son ask me the otherday are you limping.I could hardly walk that day. I guess I will have to address the soreness issue more with my Drs. I have had bloodwork done twice in the last month. Thanks for the suggestion. A co-workers mom has fibro and she has told me that she thought I did . I will talk to Drs. about addressing the soreness issues.

Simzee
Regular Member


Date Joined Sep 2007
Total Posts : 64
   Posted 4/30/2008 5:24 AM (GMT -7)   
Don't feel bad...my boss is always complaining about how often I go. ( with the D's I go every 15 minutes.) I am waiting till the boss writes me up. A lot of times I think I'm better off wearing the "bag" so that I can actually do something. By the way....does anyone have the bag because of IBS-D?

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 4/30/2008 8:08 AM (GMT -7)   
The problem with a colostomy bag is that it stinks. It stinks worse than regular poop because it's coming out before it's finished its complete transit of the intestines, so the product is not as digested, not as absorbed, so it stinks a lot worse. Also, you obviously have no control over it, so it comes out into the bag whenever it wants to (nice with dinner, huh?)--unless they have something more sophisiticated now than what a neighbor's elderly mother had to have about 10 years ago. You can ask over at the ostomies forum what it's like to have one, though.

Normal, you do sound a lot like someone with fibro. My mother has that. She's also having some bowel problems now. You might want to go over to the fibro forum and see what all symptoms they have and how they got diagnosed.

Also, have you been tested for allergies? And I don't just mean pollen and cat hair, but food and dyes and preservatives in particular. One, a chronic sinus infection would seem to indicate that you are allergic to something, but it doesn't necessarily have to be airborne. Secondly, there's a theory that fibro is a kind of allergic reaction where the body overreacts to stuff that it doesn't like. One thing they recommend for people with fibro is that they go on an organic diet and not have anything with artifical colors or preservatives in them. My mother did that and got some better. She quit having as bad a flare, anyways.

Normal
Regular Member


Date Joined Mar 2008
Total Posts : 263
   Posted 4/30/2008 1:24 PM (GMT -7)   
Hey Ker, you are always so good at suggesting things. I honestly think if I had came on this forum years ago I would be better diagnosed. My family Dr. suggested allergy testing for sinus infections Both fo my kids were tested at age 4 and 8. Was terrible that young but had bad allergies. They were both allergic to beef and everything else under the sun. The last 3 Gastro. Drs. said that wasa done with biopsies taken at my colonoscopy.They said I dont need it done. I have always passed off my soreness to overdoing and beino out of shape, Dehydration etc. But noe I have problems doing and really hurt to the point that I cannot hide it always. I have about 2 blood test a year to check thyroid etc. I go to urologist Friday. My problem is I cant get ONE DR. to treat me to put all together. I go to family for sinus and Derm. for schorriasis. Gastro for IBS-D and liver enzymes. Now I am going to Urologist for frequent urination. I am really ready to go off on Drs. and say ONE OF YOU TREAT ME!!!! and put it together. The time and expense is rediculous. Not to mention that I get tired of going over and over.Yesterday from 8:30 a.m. to 11:00 p.m. I was in bathroom 18 times.Only 5 BMS so good IBS day. I was at home but went 13 times by 5:00. Like work would have been happy if I was there. I just want  a diaognosis so I can get on with my life. Because this time Im going back to work and saying this is what I got and this is what I can do. If they fire me then I guess I cant work anymore and I will file for disability. But if I wasnt living with my fiance I would be in a world of hurt. I just cannot take accidents in front of others amymore. Tired of acting like it is no big deal BECAUSE IT IS! So I have new outlook now, not sure if it is good or bad, or if is this forum or the antidepressant, bit it is better then where I was. Poor poor pityful me nono I at leasat feel stronger mentally, thanks to all of you here for that. Now if I could just get my Drs. to get together and diagnos ALL OF ME. May be my fault but hopefully I will fix that. I did get on Fibro and Lupus and cronic fatigue forums. I am goin got ask Friday. Oh my I have just wrote a book. Sorry, Im not working so I get windy. Havent even ask how you have been feeling KerTake care.
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