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2suns
New Member


Date Joined May 2008
Total Posts : 6
   Posted 5/28/2008 6:27 PM (GMT -7)   
So I posted this info over on the Crohn's board and some felt it might be IBS.  So I'm cutting and pasting the synopsis and questions over here.  Any words of wisdom?  Anyone have the similar symptoms?
 
In early February my 2 sons came down with the "flu", vomiting and D.  about a week later, Mom got the runs...and they have never left.  I can control them with Pepto at every meal and severly limiting my diet.  In the meantime, my dad signed himself into hospice and in Mid March passed away.  (I'm a daddy's girl)  During his first several weeks in hospice, while having D constantly, I started having panic attacks.  PCP put me on Xanax, never did take a full dose only half of the smallest dose possible.  I've never taken more than 3  one half doses (total of 1 and 1/2 regular dose) in a day --- the day we buried daddy.  PCP says I've got a panic disorder and to go the mental health clinic.  I don't "need" the xanax unless I get really stressed out and have an attack.  In the meantime, I've lost 32 pounds and still have the runs.  Finally found a Gastro doc, who would listen and had my 1st appt on the 19th of May. 
 
Since then I've had an EGD with biopsies, colonoscopy, gallbladder sonogram, SBFT, stool tests and bloodwork.  The EGD showed "red spots with white halos with no bleeding", erythematous gastropahty and said spots in the duodenum.  He claims to have never seen those "spots" before, called in a 2nd doc who said he'd never seen them before.  The colonoscopy shows colonic angioectasias.  The terminal ileum was normal.  The cbc and cmp were low normal in late February (PCP said because I was sick) and the celiac bloodwork was negative.  Stool testing was negative.  No results on the SBFT as of yet.
 
I have almost constant D, certain foods will go through and look almost identical as when I ate them.  The fatigue is unbelievable, my knees, wrists and elbows will ache.  The stomach ulcer meds, zantac, prevacid, etc. didn't help, and Immodium doesn't help
 
My follow up appt with the gastro is on June 10th and he has put me on Bentyl 2x a day.  I am extremely medicine sensitive and my first dose of Bentyl was not pretty.  I would go from hot to cold to awake to "zoning", lots of D, etc.
 
The stool testing was negative for cdiff, parasite, etc
 
The "pain" is usually below my rib cage on the right and then "spreads" or will start right at the tip of my breastbone. My stomach will visually roll and you can hear it gurgling (sorry wish I had better "words"). My D is mainly in the mornings, from the time my feet hit the floor until about noon.
 
Anyone?
 

7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 6/3/2008 10:21 PM (GMT -7)   
Hi 2suns,
Sorry it took so long for a reply... I don't know how I missed your post.

How are you feeling as of late? Have you kept up the Bentyl? If it is still bothering you, you might talk to your doc about another anti-spasmodic.
Are you taking any probitics or trying a yogurt regimine (like Dannon Activia)?
Do you eat healthy (low fat, no junk)?
Do you exercise daily?
All these can help with your digestive issues,even stress related GI issues.

This may be a sensitive subject for you, but... anti-anxiety meds and/or anti-depressants can help with IBS symptoms. It could be something to consider if nothing else seems to be working for you.

I truly hope you start feeling better soon. Please keep us posted.
Co-Moderator IBS Forum
 
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Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 6/3/2008 10:36 PM (GMT -7)   
Oh dear, 2suns...sounds like you've been through quite a lot. I'm sorry I missed your post too. It really sounds like you need to be aggressive with your diagnostic tests and treatment because you've lost a significant amount of weight (it's not a good sign, although not necessarily always indicative of a worst-case scenario). I'll be the first one to say a big work-up won't necessarily reveal anything too specific, but it's important to get a good work-up regardless.

Lil had some good questions for you that I'd also be interested in hearing the answers to - hang in there and keep us updated, and best of luck at your follow-up next week.
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 6/4/2008 8:20 AM (GMT -7)   
There have been a lot of people who come on here who got some sort of stomach flu that never seems to go away.

Have you tried probiotics? Sometimes a stomach flu can upset the balance of good bacteria in our guts and our bodies can't reestablish that balance without outside help. A daily yogurt is an easy place to start if you can eat yogurt, but you may want to start with something stronger, like a pill of Digestive Advantage or Culturelle (there are many other probiotics, but those two are easily found in any drug store). If you drink milk, switch to acidophillus milk because that's a single type of probiotic. It isn't enough alone for a cure (if that is indeed your problem), but it's good maintenance. If you are drinking the milk anyways, go ahead and drink the acidophillus milk.

miwoman1
New Member


Date Joined Dec 2006
Total Posts : 17
   Posted 6/4/2008 1:39 PM (GMT -7)   
2suns,
 
I know this is a little late as a response but thought it might come in handy.  A couple of years ago the same thing happened to me.  I lost over 50 pounds (11 in one week) and my doctor was sort of lost.  All my tests came back fine.  In the end it was what they called a dumping syndrome.  Basically the food goes through you so fast that your body cannot pull any nutrients from it which of course is one of the reasons you lose so much weight and fell lousy.  I am  sorry I can't help with any kind of medication that will help as there weren't really any...the typical ones didn't work for me either.  My doctors suggestion was to drink a clear liquid soda, at least giving you some sugar and sodium through the day.  And I ate very small amounts all the time, sometimes hourly.  Again, I am sorry I don't have more to offer but in the up side after about a year it went away for me, I still have issues now and again but nothing that doesn't clear up in a few days.  Good luck.
 
MIwoman
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