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Quesadilla
Regular Member


Date Joined Nov 2007
Total Posts : 26
   Posted 6/4/2008 9:25 PM (GMT -7)   
I have IBS.  At least, that's what I'm am now dx with (I was dx with Crohn's disease).  Anyways, my GI gave me some pills called Levbid that I'm supposed to try to see if that alleviates some of the disabling pain and cramping I get.  (I'm also going to be seeing a nutritionist for help with understanding food.)  But, I was wondering if anybody had tried this, had any input on it?  I've read up about it online and heard what my GI had to say, but now was just wanting to hear from someone who experienced taking it.


Dx with crohn's since Oct '04.
Dx with IBS since June 4, 2008.
Have had symptoms since 2000.
Medications: Levbid
 
About to see a nutritionist... I need help understanding food! :)

Post Edited (Quesadilla) : 6/4/2008 10:55:55 PM (GMT-6)


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 6/5/2008 12:06 PM (GMT -7)   
Hi Quesadilla, hopefully the Levbid will provide some relief for you. Lots and lots of us have taken this drug (also known as Levsin). It's generic name is hyoscyamine and it is an anti-spasmodic, which means it slows down the movement of the gut. I have used both hyoscyamine and dicyclomine in the past and had better success with the latter, but hyoscyamine worked pretty well for me too. It may have the tendency to "dry you out" a bit (it decreases mucous production) but that tends to be a pretty mild side effect. Let us know how it works out for you and best of luck!
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 6/5/2008 1:28 PM (GMT -7)   
It didn't help me, but then, it was prescribed for intestinal spasms when I was really having an inflamed gall bladder. So it might be that I didn't have a problem it could fix. But anyways, there are a number of anti-spasmodics out there, so if it doesn't work, there are more to try! Many people are on or off with anti-spasmodics. They work great or not at all. Might take a few tries to get the right one, but hopefully it will help.

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 6/6/2008 7:37 PM (GMT -7)   
I found a heating pad helped more than the Levsin and faster. They take a long time to work and dry you out, your mouth, your eyes,etc. I found the peppermint, ginger, fennel pills helped me more along with heating pad.

Quesadilla
Regular Member


Date Joined Nov 2007
Total Posts : 26
   Posted 6/10/2008 8:19 AM (GMT -7)   
Uh, Levbid just made me nauseous and way too dizzy. Going to try a different medication later today. I don't remember the name. Still feeling sick with an urgency to go. Went and saw a nutritionist but she was little help. I'm feeling really depressed at this point. Nothing is more embarrassing than sitting in a public bathroom stall on the floor, crying from pain and nausea for 45 minutes while girls walk in and out of the bathroom. I really hate being sick.

I hate the fact that tomorrow I'm turning 21, but I still have to call my mom up and ask her to pick me up and take care of me.
Dx with crohn's since Oct '04.
Dx with IBS since June 4, 2008.
Have had symptoms since 2000.
Medications: Levbid
 
About to see a nutritionist... I need help understanding food! :)


Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 6/10/2008 5:42 PM (GMT -7)   
I am really surprised it made you nauseated as they give it sometimes for nausea. There are stronger antispaz drugs like Donnatal and one other I can't remember at the moment, starts with B I think. Dang old lady memory of mine these days.

Lady Frog
Regular Member


Date Joined Feb 2008
Total Posts : 139
   Posted 6/10/2008 7:00 PM (GMT -7)   
I think the one Canyon is talking about is Bentyl. I used to call them my magic pills. They were the first pills I got put on( after a midnight visit to the ER because I was so much pain) and they worked well for me. Only got like a couple weeks supply since the ER doc prescribed them but my regular doc ended up putting me on Donnatal( I take the generic Belladonna). They work well for me too. I tried Librax but good heavens they did me in. They dried me up so much I would pass out from heat problems because I could no longer sweat. Still have some heat problems with the belladonna but not near as bad. I've been taking them for almost three years now and I think the worst side effect for me is crawling up the walls. I get nervous and when that happens I have to move.

Lady Frog
Regular Member


Date Joined Feb 2008
Total Posts : 139
   Posted 6/10/2008 7:23 PM (GMT -7)   
Oh and Quesadilla, one of my more humiliating moments with my IBS( right after having an accident in public) was in the very beginning before I knew what was wrong. They hauled my butt off the bathroom floor in Lord and Taylor. The pain, plus the severe dehydration from the severe D that I had, made it so that I couldn't move. I'd start to get up and pretty much pass out. I was asking strangers to call 911 or get security. And most of them ignored me. Finally someone got security to help me( after almost an hour) and they got me to the hospital. Now when ever I hear someone crying I ALWAYS ask what is wrong and if they are OK or need help. But I have done my share of crying in the public bathroom. Over time you figure out what works and what doesn't. I've had this since 2002 and I still have problems bringing this under control.

As for the diet thing I eat alot of rice, noodles, bread and butter. I was told by my doctor that sometimes it's not what you eat sometimes but just that you do. I try and make up for the bad days when I feeling better. But I haven't had fast food in years( not good for you anyways) and limit acidic and spicy stuff because it doesn't feel to pleasant on the way out. I'm a fan of Gatorade for staying hydrated during bad attacks, though any sports drink would work. I like the Rain kind because it's not as acidic and sits better on my tummy.

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 6/10/2008 9:19 PM (GMT -7)   
Lady Frog. I thought the Donnatal would make you sleepy since it has Pheonobarbital in it. It was Bentyl I was thinking about.

Quesadilla
Regular Member


Date Joined Nov 2007
Total Posts : 26
   Posted 6/10/2008 9:34 PM (GMT -7)   
Thanks everybody for your input. It made me feel a lot better to hear other people talk about it. I got a new prescription, dicyclomine, which I think is the generic for bentyl. So far, nothing bad yet (dizziness), but I'm a little cautious. Gotta give it a week to make sure it works for me.

Thanks for your story Lady Frog. I can't believe that nobody helped even after you asked. That seems awful. I've been to that point before and I fear I'm getting back to that point. Right now its just D with pain/bloating/urgency, etc. But I'm able to live somewhat normally. I really don't want to reach the point where I pass out by the toilet so right when I'm jerked awake by pain I'm already by it. I absolutely hated that fact that my mom had to hold me up on the toilet then. (I'm very appreciative...I just don't want to be so relient on someone.)

The nutritionist just wasn't any help. I knew to avoid certain foods (red meat, high fiber at times, etc etc) but I was hoping she'd have recipe books in mind that I could look up. Or would be more encouraging about a food journal. Instead she just sat me down, said she really didn't have anything to give me, IBS is individualized, and sent me out the door.

Anyways. I feel a bit better after talking with my counselor about everything (and reading you comments), but still a little bummed. I just use to have IBS-A, but now its become totally D which is completely frustrating.
Dx with crohn's since Oct '04.
Dx with IBS since June 4, 2008.
Have had symptoms since 2000.
Medications: Levbid
 
About to see a nutritionist... I need help understanding food! :)


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 6/11/2008 12:27 AM (GMT -7)   
Hey Quesadilla (mmm, love those things...), I found dicyclomine to be very helpful much of the time when I was taking it, and I hope you find the same goes for you! Sounds like you need a new nutritionist...there are some saint-like ones out there, I'm sure, but it takes a while to find the right professional, that's for sure!
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


Lady Frog
Regular Member


Date Joined Feb 2008
Total Posts : 139
   Posted 6/11/2008 5:52 AM (GMT -7)   
Canyon, there are days when I take a pill and end up crash landing for a few hours. Usually when I add the heating pad into the mix since it helps with the pain till the pill can kick in. But most days I can work through it. I've been taking it for three years now and in the beginning I couldn't do much after taking a pill because I was so tired. It's more my urge to move is stronger then my urge to crawl under the covers.

purdylady
Regular Member


Date Joined Jun 2006
Total Posts : 34
   Posted 6/11/2008 1:31 PM (GMT -7)   
Hi Quesadilla,
 
I have tried levbid and bentyl. Unfortunately neither helped. The GI doctor even increased benytl and I still had pain. As I said in IBS forum I am going to second GI. I do use a heating pad, sometimes it seems to hot even on lowest setting, but once my night time meds kick in I am usually ok till next morning. I have not had any sickness from either drug as others I am surprised you did. However, as we all know everyones body is different. I hope you feel better soon...hugs Lora

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 6/11/2008 2:54 PM (GMT -7)   
purdylady, what are your nightime meds. I am always looking for something to help me sleep besides a sleeping pill.

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 6/11/2008 11:11 PM (GMT -7)   
Can't drink any mild products, even lactose free ones. It is not the lactose but some other enzyme. Benedryl is too drying as are all the antihistamines with my emphysema I have to be very careful to not dry out my lung. My Doctor and I talked about the Melatonin and he has no problem with except is is not very well regulated as it is a supplement. The new Rozeram is like Melatonin and I have some samples but have heard weird things about it and the ads are enough to make you crazy. Lincoln and some beaver talking to each other. Hmmm, very strange You msut have seen them.

purdylady
Regular Member


Date Joined Jun 2006
Total Posts : 34
   Posted 6/12/2008 2:56 PM (GMT -7)   

Canyonbabe711,

I take remeron at night to help me sleep plus anti-anxiety. However, the remeron is an anti-depressant. Other sleeping pills such as ambien make me nervous n jittery kind of like nyquil does so  I can't take any of those meds. Unfortunately remeron makes you gain weight even if u dont eat anything and also makes you hungry like all of the time, however since I have IBS I haven't gained weight. I lost weight. I don't recommend this pill, however you can talk to doctor about it. It's weird the IBS is preventing me from what usually happens when I take remeron. Not that I am complaining. Of course if I didnt have IBS I dont think I would be taking remeron for the gain weight reason.. Anyway sorry I couldnt be of more help. Good luck to you..hugs Lora


Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 6/12/2008 3:14 PM (GMT -7)   
Thanks, I don't need anything that would make me gain weight. It is a struggle to keep my weight to where I want it.
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