What is it----so frustrating!!

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bpchick
Regular Member


Date Joined Nov 2006
Total Posts : 29
   Posted 6/8/2008 7:36 AM (GMT -7)   
I am soooo frustrated. I suffered from chronic C since December with significant abdominal pain, bloating, and distention. I would have chronic C for days at a time and spasms with pain so bad I would go to the ER all the time. After being disregarded by GP, an inconclusive barium enema, I asked to see a specialist. I finally saw a GI Dr and had a colonoscopy and endoscopy which looks 'pretty normal'. Now I am going D after each meal sometimes midway through. My Mom went to a function last night and our neighbours daughter has suffered from Crohns for years now. She suggested Gluten free bread. I don't know what to do anymore. I eat healthy, I feel sick. I eat junk, I feel sick. I don't know what I should eat, what I should do......
 
Any advice is appreciated....

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 6/8/2008 1:02 PM (GMT -7)   
The only suggestion I have is to try the following. Eliminate all dairy, eat chicken, fish, noodles, potatos, cooked easy to digest veggies and cooked or canned fruit and see if it helps. Sometimes I had to do that for a week to get back to normal. Not carbonated drinks either. Stick to water as much as possible.As for the constipation you do need to find something that will keep you regular as I think when you back up that is the "trigger" for worse problems for us "C" people. I eat a high fiber bread and that seems to help. It is called Double Fiber from Orowheat. It tastes good also.

7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 6/8/2008 6:04 PM (GMT -7)   
I'd also think about adding good bacteria to the gut... either via probiotic pills or a specialized yogurt.

Have you been tested for Celiac's?
Co-Moderator IBS Forum
 
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bpchick
Regular Member


Date Joined Nov 2006
Total Posts : 29
   Posted 6/9/2008 9:51 AM (GMT -7)   
Yes, I came up negative for Celiac.
 
 I just heard from Hamilton. All of my pathologies are perfectly normal. My appt is Sept 17th unless the doctor feels it is more urgent, which will probably not be the case. I am on the cancellation list but must be available immediately otherwise they will call the next person on the list... and I am 45 minutes to an hour away....


It must be all in my head........ Maybe I really am a nutjob...

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 6/9/2008 10:19 AM (GMT -7)   
<<It must be all in my head........ Maybe I really am a nutjob...>>

Welcome to IBS. Bowel problems with no known cause. Not because we're all crazy, but because medicine is still too stupid to figure out what's wrong with us. Or, as someone on here said his doctor confessed to him--"We understand how 40% of the body works, but we have to guess about the other 60%." Science still doesn't understand how a lot of the body works, including the brain, the digestive tract, and gaining and losing weight.

gutastrophe
Regular Member


Date Joined Jul 2007
Total Posts : 319
   Posted 6/11/2008 12:06 AM (GMT -7)   
bpchick said...
Yes, I came up negative for Celiac.
 
 I just heard from Hamilton. All of my pathologies are perfectly normal. My appt is Sept 17th unless the doctor feels it is more urgent, which will probably not be the case. I am on the cancellation list but must be available immediately otherwise they will call the next person on the list... and I am 45 minutes to an hour away....


It must be all in my head........ Maybe I really am a nutjob...
You are NOT a nutjob and it is NOT all in your head.  Like most of the good folks on this message board, I've been poked, prodded, scoped, doped, scanned, x-rayed, irrigated, therapized, and more.  STILL, there has never been any success with medical or naturopathic doctors.  Like Keriamon said, they simply DON'T KNOW.  The people who suffer with this miserable "syndrome" know more than the professionals because we live with it every day and use ourselves as guinea pigs.  In the desperate search for relief, most of us have tried everything to make our daily lives more manageable. 
I read your other post about your GP's apathetic response to your condition.  We've all been there.  I was dx way back in the late 70's, before the condition was called IBS.  I was told I had "lazy bowels" (is that in a medical dictionary?), colitis, spastic colon and finally, in the 90's, they decided it was going to be called IBS.  No matter what name they used, not one doctor ever had a solution or the TIME and COMPASSION to really DEAL with me.  I was given drugs (some of them worked for a brief time), recommendations (fiber, fiber, fiber - it's the only word they know), and referrals ("have you tried psychotherapy?"). Naturopathic docs wanted me to poop in jars, keep food diaries, eliminate whole food groups, eat very weird things and drink disgusting elixirs.  I did it all.  Some things help for a time, other things not at all.  Even naturopaths, who have an almost religious reverence for the bowel, don't know how to "cure" IBS. 
The crazy thing about this disorder is that it really FORCES you to think about your life in a positive way.  It makes you examine how you eat, how you interact in the world, how you allow stress to effect you.  I've had to make all kinds of changes in my lifestyle - some of them good, some unpleasant.  But it's also opened doors for me.  It's made me more compassionate with others who suffer.  It's made me look closely at my diet (which is always a good thing), my management of stress, and my relationships.  It forces you to be intimate in ways most people would never dare.  In my circle of friends, poop and pooping is a constant topic of conversation.  And once people open up about their bathroom habits, they'll talk about almost anything! 
Try not to get too discouraged.  But even when you do, it can't last long.  The constant quest for answers never leaves and propels us forward even when we feel like we can't go on.  And you always have us!

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 6/11/2008 12:23 AM (GMT -7)   
Man...there's so many things I want to say in reply to this post...rest assured that you are not alone, and that you will come through this a shining star.
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.

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