colostomy for constipation/slow colon motility?

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sunshinefl
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 6/21/2008 6:08 AM (GMT -7)   
mad sad does anyone know if anyone has had a colostomy for severe constipation/Slow colon motility? I have been suffering for years and cannot seem to get any relief I have had hemohroid surgery, full hysterectomy with pelvic support repair and rectocele repair and had the starr surgery for outlet dysfunction and nothing has helped... I am still totally constipated all the time and have severe rectal pain all the time... everytime I go to the doctor they seem to know what is wrong I have surgery and when it doesn't work its like they don't want to admit that it didn't work and tell me just to take more fiber (which makes it worse) and laxatives... I have lost so much weight from this and wake up every morning puking and it is a whole chore trying to have a bm and then I have the pain I then have to go to work and struggle and by the time I get home all I want to do is take a bath and lye down to alliviate the pain and swelling in my bottom. On the weekends I can barely make the grocery shopping before I have to come home and get in the bed... I can't live my life like that its been 5 years of pure misery.. I have a wonderful husband but quite frankly he wants a wife that can go out and do things with him and the kids I can't even stand up long enough to cook for them let alone my girls need their mother not a bedridden mother.... my stomach looks like a childs from ethiopia... I would give my left leg to feel better and I would think it would be logic thinking to bypass all that with a colostomy heck I will poop in a bag to feel better and wasn't sure if they do things like that for constipation, I know they do for the opposite issue... I asked my doctor about it and he said I was too young for that and laughed but heck I am living like I am 80..... I just want my life back!

7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 6/21/2008 10:30 AM (GMT -7)   
Hi sunshinefl,
Welcome to HealingWell! :-)
I have never heard of anyone bagging it due to constipation. But, then again, most of the members that come through here have your opposite problem.
I see you've been to the Ostomies board... I think that's your best bet.

I know you said you've tried everything - but have you tried a laxative and been consistent with it? For example, as mentioned in a different "breakfast" post, Miralax is a safe laxative to take regularly. It is an osmodic laxative that isn't habit forming, and has a great history for success. Even better, it's now available OTC.

I really hope you get some relief soon...


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sunshinefl
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 6/21/2008 11:05 AM (GMT -7)   
Yes I was on miralax for about 6 months even though it stopped working after about 3 weeks I kept it up still had to use enemas at the same time... anyways I kept it up hoping something would magically change but it didn't so the doctor then told me to take amitiza and samething happened and all in all I still had the pain so I really don't know why my body doesn't rspond to these thngs.. Thank you for the reply.

spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 6/22/2008 1:41 PM (GMT -7)   
They can try something before colectomy...

Google MACE procedure or Malone procedure.



--------------------------------------------------------------------------------


-IBS induced by NSAID
-IBS-A,C with meteorism(trapped gas) and pubic burning-
 

Post Edited (spasman) : 6/26/2008 2:37:48 PM (GMT-6)


Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 6/22/2008 2:10 PM (GMT -7)   
Have they determined why you have such slow motility? do you have some sort of partial obstruction. Have they used the camera swallow pill? I don't think unless you have an obstruction they would do a colostomy. My Dad had one for inoperable tumor and he managed fine in his 90's so there are worse things. He took care of it himself which is rare for a man that age.

sunshinefl
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 6/22/2008 5:18 PM (GMT -7)   
Thanks spasman I will check it out...
Canyon~ I had a test where you swallow a pill with a radioactive egg sandwich and they take a pic like 30 min and 2 hours and 24 hours later that showed the slow motility no reason why its like that just is I guess...I feel like its a curse...

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 6/23/2008 8:00 PM (GMT -7)   
Was this motility in the stomach or the small intestine and colon? I guess you problem is more in that area where mine is more stomach motility.

sunshinefl
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 6/24/2008 2:56 AM (GMT -7)   
Mine is in the small intestine and colon I am going to order my records today so I can see the exact verbage

sunshinefl
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 6/24/2008 11:10 AM (GMT -7)   
Ok got the verbage maybe someone can help me make sense of this, btw this was a gastric emptying study,,, after 2 hours gastric emptying is 59% normal 40~76... 4hours 89% normal 84~98.... 6 hours zero entered colon normal is 46~98% it then says at 4 hours the capsule was undisolved in the mid small intestine with a colonic geometric center of 0.0 normal 0.7~1.7... at 24 hours the radioiscope was scattered from cecum to distal transverse colon with geometric center of 1.3 normal 1.6~3.8.... impression normal gastric emptying and delayed small bowel transit the latter probably explains the apparent slow colon transit.....
I do not have a clue just know I am tired of feeling punney
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