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Worried_Erin
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Date Joined Jun 2008
Total Posts : 15
   Posted 6/21/2008 12:09 PM (GMT -7)   
My mother is extremely ill. The doctors aren't really helping her and she is constantly ill...
 
Here is what she is going through:
 
She is healthy for 2 or 3 weeks, then for 10 to 15 days she is in complete agony.
She has been going through cycle since August 2007.
She has massive stomach cramps that feel like "her insides are burning away".
She had irregular bowl movents, and normally it is light colored and "stringy" - but she is on meds for constipation so that may be why.
The docs have her on constipation meds, ibs meds, pain killers, and nausia supositories.
She thinks the nausia is caused by the pain in her gut during her "contraction or wave like" episodes of pain.
She has lost over 60 pounds and has a hard time eating.
Her stomach feels "overly full" like you feel when you eat to much at Thanksgiving meal, but she only ate 1/2 cup of egg noodles.
She does want to eat, and knows that she must to have straight, but she is constantly forcing the food down.
Her stomach hurts and feels bloated, and after she eats she burps up into her mouth constantly. You can hear the food/liquid/acide coming up in her throat and mouth. She also vomits, but I'm not sure if it is becuase of the acid burping up or the pain.
 
She is very depressed and wants to give up. She says she just wants to die.
No one can seem to help her.
I feel like I'm going to loose my Mom.
I don't know what to do.
I don't even know if it is IBS, but the doctors seem to think it is.
When the pain gets really bad, my dad takes her to the ER. But all they do is give her morphine and send her home and charge us 600-900 bucks.
 
Please help.
Erin

7Lil
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   Posted 6/22/2008 5:34 PM (GMT -7)   
Erin, as I asked in a separate thread, has your mom considered going to the Mayo Clinic?
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Worried_Erin
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Date Joined Jun 2008
Total Posts : 15
   Posted 6/22/2008 5:58 PM (GMT -7)   
No she hasn't. She is schedule to go to a diagnosis center in another city though. She will have to get a hotel room there, and have tests done for three days. Her Gyno sugested the place.

I've seen adverts for the Mayo Clinic, but I really don't know much about it. Is it for gastro intestinal issues?
I would have her go to any hospital/clinic if I thought it would help...
But right now, all the doctors are doing is drugging her up and shrugging their shoulders at her.
They say that they have exausted all tests and ideas . . . It is like they are giving up on her.... and it breaks my heart.

To make matter worse, my dad doesn't seem to help her much. He will take her to the doctors or ER if she needs, and he will be stirn and make her take her meds if she is being stubborn..... but he doesn't cook, clean the house, clean the cat boxes, do the laundry, shop . . . So even in the state she is in, she still has to do all of that . . . I know I can't change my dad, but I can't stand to leave her on Wednesday when I have to go back ot work 500 miles away. I feel like I'm leaving her to fend for herself . . .

7Lil
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Date Joined Apr 2005
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   Posted 6/22/2008 11:34 PM (GMT -7)   
Looks like your mom is headed in the right direction if she's going to a diagnostic center. The Mayo Clinic isn't solely GI specific, but it is notorious for their GI dept. Same as the diagnostic center you mentioned, Mayo will keep you there for a few days to run every test imaginable. Not always, but usually, they come up with something. Hopefully your mother will get some answers at the place she's going.
Maybe before you head back home you could sit your father down and explain to him your fears about leaving your mother. Ask him to be more sympathetic (and helpful!). It might go in 1 ear and out there other, but it couldn't hurt to try.
Don't give up hope... And don't let your mom give up hope either.
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Keriamon
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Date Joined Jun 2005
Total Posts : 2976
   Posted 6/23/2008 10:47 AM (GMT -7)   
Erin, can you afford to get your mother a weekly housecleaner? Depending on where she lives, there are even in-home chefs that will basically do your grocery shopping for you and then bring the food to your house, put some of it away and cook the rest into meals--however many meals you want per week. They package them all up and then all you have to do is heat them up and eat them. That way you can get made-from-scratch food without doing all the work yourself. Even if you can't find a chef, you might can find a personal errand-runner who will do her grocery shopping for her. Combined with a housecleaner, that would certainly make her life much easier.

How old is your mother? Is she going through the change? Hormones wreck havoc on the bowels and I can't help but notice you mother is on something of a regular cycle there. She has been THOUROUGHLY checked for ovarian cancer, I hope? It causes a lot of bowel problems and is more common in older women than younger ones.

Also, did they do a HIDA scan to check her gall bladder? Her symptoms are pretty general--could be from any number of things--but there's nothing there that's inconsistent with a bad gall bladder, and it should always be suspected where there is vomiting and/or a lot of nausea. Those aren't unheard of with IBS, but aren't very common. They are common with acid reflux and gall bladders and hietal hernias and stomach ulcers and a few other upper-GI tract problems. As is eating a little bit and suddenly feeling like you are stuffed. I had to have 3 HIDA scans done before they caught my bad ball bladder, so even if she's had one done in the past, she might consider getting another one done just in case.

Also, find a GI doctor that will do a breathalyzer test on her to check for bad bacteria. They are frequently the cause of bloating. And she may want to see an allergist and see if she has developed a food allergy. At the very least, have her keep a diary of EVERYTHING she eats and drinks, in good detail. Also mark when she eats. She should also record in detail (including time) when she gets sick and what kind of symptoms she has, pain or nausea on a scale of 1-5, etc. She may be able to find a link between something she's eating and when she gets sick. Don't forget to look at the less obvious things, like caffeine, carbonation, different types of real and artificial sugars--besides your typical culprits like nuts, dairy and gluten (from wheat and similar products). Yes, people can develop intolerances or out-and-out allergies at any point in their lives, even when they were perfectly fine with something for years.

Worried_Erin
New Member


Date Joined Jun 2008
Total Posts : 15
   Posted 6/23/2008 11:54 AM (GMT -7)   
Thank you for your help.
We took her to the hospital again today.
They changed her meds up a bit.
She is on another mood medication, as well as difulcan and another "swish and swallow" for the "trush" in her mouth. She has a bad yeast coating all over her mouth... They suspect that is what is causing her gut pain. Also, the hydrocodine is most likely what is causing her Constipation. As her usage of that increased, the C increased.

I think the vomitting was from the Amitiza . . . she stopped that after three days.

She has had all her reproductive orgins remove, this was about ten years ago... So no ovaries or uterous. No change... She is on hormone pills though.... she is only fifty.
She had her galbladder removed in Feb. after it crystalized...
She does have acid reflux, but that is being threated with meds. I think it is named protonix or something like that.

I am making a food and symptom diary for her, but I am not sure if she will continue with when i'm gone. I have also bought some ibs books, and again I don't think she will read them.

I hope her emotional state gets better... I really think she needs to get out of the depression before she can focus on getting control of her IBS. I noticed today that she was still having "pain" after tkaing a lot of pain killers.... But when you ask her about the pain she couldn't really pinpoint its location and/or type. So I think she was having a panic attack . . . well actually I know she was... she was hyperventalating and freaking out pretty bad.. crying and talking about the "evil thoughts" returning. I need to get in to seeing a theropist soon. I know it isn't all in her head... but it is definantly effecting her mental state. but she is afraid that they will "lock her up and forget about her" and she calls the nearest mental hospital a "bad place".

It kills me to see her in such turnoil.
Thank you all for your help.
I took a lot of your suggestions and spoke with her doctor today.

I will keep you up to date.

Thanks again

7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 6/23/2008 12:39 PM (GMT -7)   
Erin,
It is pretty uncommon for an adult to get Thrush. She must have some sort of bacterial problem. Did her doc address this? Did he prescribe and antibiotics or suggest she take probiotics? If not, that would be a great next step. Probiotics can't do anything but help your mother at this point. Maybe you could get her some probiotic yogurt or shakes (Dannon Acitivia or Active). If she can't handle the dairy, then a good ol' probiotic pill would be great.
As for her mental state, she might just need some help dealing. It isn't uncommon for people with health problems to spiral into depression. It's important to pull her out of that. She should see someone. They might be able to help her mentally and physically.

You're wonderful - hang in there still.
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Keriamon
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Date Joined Jun 2005
Total Posts : 2976
   Posted 6/23/2008 1:48 PM (GMT -7)   
Yes, pain medicines will cause constipation. I think I saw on another post that she eats bananas. These are naturally constipating, so they're not good for her when she's constipated. If she can eat prunes or drink prune juice, that should be helpful. There's also aloe vera capsules; aloe vera is a natural laxative. You might also investigate bile salts. While D is common after having the gall bladder removed, a small percentage of people develop C instead. Bile salts are supposedly an old-timey remedy for constipation. I read up on them a long while back when I was having problems with C (too low fat a diet; you need fat to stay regular), but never tried any. I guess you would have to buy them onilne or at a health food store; my pharmacy didn't carry them.

I agree with Lil that the bacteria problem in the mouth could very well be linked to a bacteria problem in her guts that is messing her up. Antibiotics are generally best to start with to clear that up, but if her doctor doesn't want to give her any, or she's got some already, then have her start hitting the probiotic pills (like Digestive Advantage or Culturelle) to see if that helps to combat it.

_woodlandsprite_
New Member


Date Joined Jun 2008
Total Posts : 11
   Posted 6/24/2008 3:45 PM (GMT -7)   
Yeast, an imbalance of it, can cause abdominal pain, changes in bowel movements, and many other symptoms, including that white coating in her mouth that was mentioned.
The book Gut Solutions, by Leonard Smith MD is really great-has chapters of many intestinal disorders/diseases/ailments.

Worried_Erin
New Member


Date Joined Jun 2008
Total Posts : 15
   Posted 6/24/2008 8:56 PM (GMT -7)   
Thank you for all your help.

We have another appointment tomorrow.
Well, we actually have two.
One with her gastro doc and another with a therapist.

She wasn't happy that I made the second appointment, but she isn't fighting me on going.

We shall see what happens, and I will keep you up to date.

Thanks again for all your wonderful help and support!

7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 6/25/2008 10:10 AM (GMT -7)   
Erin,
Weren't you supposed to be going home today? Did you extend your visit? I hope so, your mom could really use the advocate you have become and the wonderful support system you have been.
Please keep us posted on how things go.
Wishing you and your fam the best...


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Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 6/26/2008 1:40 PM (GMT -7)   
I just wanted to say good for you for being such a good advocate for her...I think it's great you've lined up a therapy appointment.  Hang in there and take care of yourself too!

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Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.

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