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nervymeg
Veteran Member


Date Joined Jul 2006
Total Posts : 2721
   Posted 7/9/2008 11:48 PM (GMT -7)   
I am just so frustrated by my IBS - I have now nick-named it Irate Bowel Syndrome...which is how I feel when I cannot sleep for three days straight and am doubled over with pain all day at work but have to be cheerful. My doctor will not give me anything for it "do some yoga or meditation" is the advice I get. I can't relax when I'm in pain! How do you get through these bad patches without tearing your hair out?
 
Sorry to vent, it's just this pain is overwhelming me and I need some sleep. Any advice would be really appreciated.
 
Meg
Co-moderator Anxiety/Panic
Panic Attack Survivor
Weekend Warrior Princess
 


Lady Frog
Regular Member


Date Joined Feb 2008
Total Posts : 139
   Posted 7/10/2008 6:14 AM (GMT -7)   
It took me three years to get a doctor that was willing to give me something. I learned to say "Excuse me I'll be right back" with a big ole' grin on my face and get in and out of the bathroom in record time. I lived on Pepto, Rolaids and Lemonheads( for the upset stomach I would get from not eating so that I wouldn't get sick at work). I used hot water bottles when at home to help with the pain. The Pepto helped with the D and some of the stomach cramping. I also liked Altoids because partly the flavor took my mind off my tummy but also the peppermint oil in them helped soothe the cramping. Starlight mints work good too. I used the Multi-Symptom Rolaids. They help with gas and heartburn. Yoga and meditation are all well and good, and does help relax you. But when the whole reason you can't relax is because your in mass amounts of pain on a daily basis, you need the drugs. Personally once I got my meds I was then able to work on the relaxation part and decrease my dependence on them. But I'm sorry, yoga and meditation aren't going to do a thing when it feels like your intestines are filled with little gremlins wearing golf shoes( the super spiky kind) doing an Irish jig in triple time. I'd start shopping around for another doctor that listens to you.

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 7/10/2008 7:08 AM (GMT -7)   
Hey Meg, yeah, it might be time for another stroll around the doctor mall if this dude is not taking you seriously. What is the pain like? Have you tried the anticholinergic drugs like hyoscyamine or dicyclomine? Those work by relaxing the gut nerves, to put it simply. It does sound like you need some drugs. And then maybe you'll be able to supplement with some relaxation techniques or even something like biofeedback.

LadyFrog, you crack me up. Gremlins in golf shoes. I love it.
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


nervymeg
Veteran Member


Date Joined Jul 2006
Total Posts : 2721
   Posted 7/10/2008 4:14 PM (GMT -7)   

Ladyfrog, Sarita thank you both for replying.

I do indeed have little golf shoe shod gremlins in my tummy, but they have invited along a really big hippo who likes to disco dance against my stomach all night. He has an alligator buddy who ocassionally drops by to do some slam dancing too..they are having a great old time!

The pain is just that I feel bloated, pregnant like my stomach is sticking out and it just gripes and cramps, occassional strong pain in right lower section like acid burn. Last night I took my BF's Zyprexa (for heartburn) for the first time and it helped a little, then 2 Ativan because I was anxious and upset and that calmed the cramping down a little. I actually got about two hours sleep.  :-)  I also took some acidophilus this morning. I have only been eating soup for the last three days so no bowel movements.

Gosh, sorry about all that info! I have doc appt tonight after work and if he doesn't do anything new (I will try the running to the loo trick!) I will search for a new one. Thanks for the advice, and thanks for the understanding. It's nice to know I'm not alone.

Meg


Co-moderator Anxiety/Panic
Panic Attack Survivor
Weekend Warrior Princess
 


nervymeg
Veteran Member


Date Joined Jul 2006
Total Posts : 2721
   Posted 7/11/2008 5:58 PM (GMT -7)   

Arggh! I saw my doctor and he told me it was my fault I have IBS. I am too anxious it seems and have to mend my ways. He prescribed me  Endep. An tri-cyclic anti-dep ???? No way! He even lied and told me that it wasn't an anti-dep (he knows I can't take the side effects). I am so angry.

I have to wait at least two months on a wait list to see another doc unless I go into ER. Why do they do this?

Frustrated, sleepless and in pain.

Meg


Co-moderator Anxiety/Panic
Panic Attack Survivor
Weekend Warrior Princess
 


Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 7/11/2008 6:53 PM (GMT -7)   
Endep is in the same group as Elavil and as well as being an old time anti is being used a great deal now for pain relief. I don't know what your side effects are and it sounds like he handled it poorly but at a low dose of say 10mg you might find it helps. It is being used for IBS by many Doctors. Sometimes there just isn't anything that can be done so different things have to be tried. Did he really say it was your fault or did you just feel this way because he gave you this med? If he did then he should be ashamed of himself. I do notice that you are a moderator in the panic attack portion of this site. What do you take for that? Amytriptaline will help with sleep, pain and anxiety so maybe a low dose might be worth a try. Some people can take one but not another Tri-cyclic.

Lady Frog
Regular Member


Date Joined Feb 2008
Total Posts : 139
   Posted 7/12/2008 6:32 PM (GMT -7)   
One the IBS is NOT your fault. How can someone say that's it's your fault when the medical community has no clue in hades what causes it in the first place! I swear your doc needs to be trapped in the bathroom with me after I cave and eat some ice cream. No air fresheners or stinky candles allowed!! No clothes pins either. I know that sometimes they don't come right out and say things. I got the impression that my first doc was brushing me off because he just told me to take fiber pills and relax. That relaxing would help control the symptoms and eventually I'd be fine. Easy for those to say who have never dealt with this. Your not alone in not being able to not handle the side effects of anti depressants. I have a notation in my medical records that I am not supposed to ever be given drugs that can be considered mood altering. I went on anti-depressants for a whopping week and I turned into a completely different person. And not in a good way. If I had continued to take them like my doctor originally wanted I know for a fact that I would have lost my husband. Not only did my guts go haywire, but I become violent and neurotic. And that was on the lowest dose of Prozac.

I have learned to meditate in the bathroom. The fan provides some nice white noise and a scented candle gives you something to focus on. Sometimes I like to imagine the pain floating away with the smoke. Mom has bowel problems too because of a surgery years ago. But they started before the surgery( she had a tumor in her stomach and when it would ulcerate she's get vicious D and pain) and she had her own little coping tricks since they were convinced it was in her head. She's place a cool washcloth on the back of her neck and imagine something nice. Mom's something nice was a beach in Spain with guys in speedos. I've tried it and it works to a point with me. My favorite place to let my mind wander is is the library( yes I am a huge bookworm). This library is filled with every book I can imagine. All in translated into English. But as much as drugs due help and are needed sometimes, non-drug coping methods will always be needed too. Try a hot bath. The heat should help the pain and some scented oils or a nice sugar body scrub can help relax. Yep, after a bad flare-up I'd crawl into the tub since my tummy was so sore I couldn't stand up to take a shower. It would relax me enough that I could walk upright to bed and then collapse in a mentally and physically drained heap.

LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 7/12/2008 7:43 PM (GMT -7)   
WOW- I can't believe your doctor said that to you. I would definitly be looking for a new doctor. Diseases are not "our fault". When someone gets cancer, its not their fault that they got it. That's just crazy!!!! I hope you find some relief soon!! ((Hugs))
Living with Crohn's Disease since Jan./2000 but had a few years prior
I'm a true Crohnie with IBS too
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Prednisone 20mg tapering  Back up to 30mg  :-(
                           Methotrexate injections once a week 25mg
                           Folic Acid 5mg once a week
                           Wellbutrin
No Surgeries
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 7/12/2008 7:55 PM (GMT -7)   
Hey Nervy - here is just a bit of perspective from a crohnie. While you DO NOT cause your IBS, your anxiety disorder may exacerbate it. I know stress and panic does not cause my crohns. Actually crohns and IBS caused my panic. But, when I feel perfectly fine and get into a situation where I get anxious my diarrhea comes in triple time. Its kind of the chicken and the egg game. I got pissed whenever someone suggested that if I dealt with my stress and anxiety my crohns would get better. Then I got prescribed xanax for fear of flying and the days I took it the crohns was so much better. So now I take it when I know I will be panicky (long car ride w/ no bathroom, etc.) Is it possible that your doc just poorly worded his point that your anxiety disorder is making it worse. Oops, I just realized I assume you have a disorder... as the co-mod of a/p I am assuming you have some anxiety/panic issue. So anyway, even though you have IBS seperate from your other issues, they really may be making it a lot worse. Please don't discard that. Is your a/p well treated? Do you find your stomach gets worse when you are experiencing a/p?

about the anti-depressant. He should not have lied to you. But, when I was first diagnosed with IBS (which I later found out was crohns) I was precribed a low dose of prozac for pain. I was told that having more serotonin would dull my pain receptors (as a non depressed person with normal serotonin levels to start with). While it was no miracle cure, it did help the pain for about 6 months. I wasn't originally told it was prozac but rather was told the generic name. My doc said that when they prescribe it as a pain med (for IBS, or chronic back pain etc.) they either call it the generic name or a third name but never prozac because people automatically get offended and defensive and yell "im not depressed, Im in pain, etc." They have a hard time believing such a stigmatized drug could be an effective pain killer. While it is scary to be deceptive (if someone has a true allergy or something) I understand the hesitance in full disclosure. Technically allergies or adverse reactions are in ones file and if a drug is prescribed under multiple names they really aren't lying right?

I hope you do find some relief soon!
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


nervymeg
Veteran Member


Date Joined Jul 2006
Total Posts : 2721
   Posted 7/12/2008 7:58 PM (GMT -7)   

Thank you all for the advice, empathy and support. It makes me feel so much better to come here and find people care and understand (((thanks all)))

Canyonbabe..they do prescribe Endep for IBS? I'm glad my doc isn't a complete nutter. Sadly I just cannot take anti-depressants. It makes my symptoms worse and turns me absolutley loopy. I'm in the same crazy boat as Lady Frog (well not crazy, just personality switch!). I have put myself on the waiting list for a new doctor, but it is generally a two month wait. I will not go back to see him again. He did say the IBS was my fault, he said I needed to change careers and calm down. ???

I usually take valium or xanax for my anxiety problems but because I was given the Endep my doc wouldn't prescribe me any valium. He said the Endep would calm me down (that's when alarm bells started ringing about the endep being an anti-dep).

I have been taking hot baths, eating light soups and getting massages from my beleaugured boyfriend! I'm getting accupuncture tommorow which often helps. I've never tried meditating in the toilet before! I think my happy place might be a beach in spain next to a big library (I'm a bookworm too) but the guys might need to be wearing boardshorts. Speedos? Ugh!

Thanks again guys, your support means the world..now off to re-heat my heat packs I go!

Meg


Co-moderator Anxiety/Panic
Panic Attack Survivor
Weekend Warrior Princess
 

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