Hi everyone. I usually post on the CD forum. 2 weeks ago I had a colonoscopy. I had been told 13 years ago by a GI that I had crohns disease after a multitude of tests. I was put on Sulfasalazine and then had to move cross country. I managed ok with the meds and had flare ups but managed them by going on a liquid diet for a couple of weeks until things settled down again. Never had a colonoscopy here because there just was no time to see to myself with all that was going on. So one month ago, I started having severe bloody diarrhea. 3 days of nothing but blood. I saw a GI who first did a sigmoidoscopy , then endoscopy , then colonoscopy.... then he says to me. " I don't see any signs of CD... I think you just have IBS. ! I was furious! He still hasn't found the source of the bleeding... tells me to stay on my CD meds...because they seem to be doing the trick.?Come see me in a couple of weeks we'll have a good long chat, he says. Well, I called his office and he is booked solid until september!
Have any of you had similar experiences? I don't know what to think. I know I still have CD from all the symptoms I have, I'd been suffering for at least 13 years before the first GI diagnosed it... that was 20 odd years ago.... how can a disease be there one minute and not the next.?
Confused old Mary
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis