Surely the doctor is wrong?

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LondonRed
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Date Joined Oct 2007
Total Posts : 1184
   Posted 8/10/2008 6:00 AM (GMT -7)   
He thinks I have IBS and Piles, surely not? He is the 2nd GI to tell me this and he is one of the best in the UK and a Profressor at a leading University.
 
I have my Colonoscopy tomorrow (Monday) and that will once and for all decide what is wrong as I have had every other procedure under the sun. The hope (God willing) is that my previous "Non Specific Inflammation" has disappeared and the problem is piles and IBS.
 
My symptoms are pretty clear now.
 
1. Regular diarrhoea - some soft stools, some watery - going about 3-5 times a day. I can't tell whether it's IBS or Inflammation.
 
2. Regular bright red blood but not a lot of it, sometimes in the pan, sometimes on tissue, sometimes nothing at all - usually at the end of the bowel movement or on straining - can't tell whether it's Inflammation or Piles that causes it.
 
3. However, I feel totally fine, no pain, no other symptoms and lead a normal life and if I go out I don't look for the toilet at all and have no problems waiting to go to the toilet - although the morning one is urgent but only if I decided to get out of bed, I don't need to wake up to go!
 
3. I guess the Asacol (6 a day) has stopped working for some reason or the diarrhoea means they aren't being obsorbed properly hence the inflammation. It's a shame because the diarrhoea started after treatment for a Stomach Ulcer using Omeprazole - that gave me such bad diarrhoea and it's continued. The chronic diarrhoea has brought my piles back, or it has ensured my Asacol aren't obsorbed.
 
4. Back to square one I guess - I just want the diarrhoea and blood to stop like everybody else.

Diagnosis: Oct 07 - Non Specific Colitis (possible UC or Chrohn's but biopsy not confirmed by 2 seperate GI's) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon).

Medication Still taking: 800mg Mesalazine (Asacol) 3 times a day appear to have stopped working. 

Symptoms: Jun 08 - Bleeding returns with diarrhoea after taking meds for stomach ulcer. Sigmoidoscopy in June rules out rectal inflammation, Colonoscopy planned for August. (Doctor hinting it's Piles and IBS). No pain, no other symptoms.

Procedures: 2x Sigmoidoscopy result - all slight non specific inflammation non IBD. 1x Colonoscopy result - mild non specific inflammation on right hand side - IBD not confirmed. 1x OGD result - small ulcer. Barium MRI of stomach and small bowel result - all normal.


jujub
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Date Joined Mar 2003
Total Posts : 10392
   Posted 8/10/2008 6:53 AM (GMT -7)   
Red, I'm sure you're aware that one of the possible adverse effects of Asacol is diarrhea? That's why I can't tolerate it. Perhaps discontinuing it will help the D, and then your piles will have a chance to settle down.

LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/10/2008 6:56 AM (GMT -7)   
That's what the GI thinks too and wants me to come off all meds if the scope is OK. But the Asacol stopped the bleeding last time although it could have been the Flagyl even. I didn't get diarrhoea from Asacol for 9 months so why now? The bleeding started after a number of weeks of Diarrhoea caused by another med (Omeprazole) I took for an Ulcer.  All of which makes him think the piles have been irritated. The thing is blood comes on it's own without stools after I've been a few times!



Diagnosis: Oct 07 - Non Specific Colitis (possible UC or Chrohn's but biopsy not confirmed by 2 seperate GI's) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon). 2 small Piles also diagnosed but not clear whether they are bleeding or not.

Medication Still taking: 800mg Mesalazine (Asacol) 3 times a day appear to have stopped working. 

Symptoms: Jun 08 - Bleeding returns with diarrhoea after taking meds for stomach ulcer. Sigmoidoscopy in June rules out rectal inflammation, Colonoscopy planned for August. (Doctor hinting it's Piles and IBS). No pain, no other symptoms.

Procedures: 2x Sigmoidoscopy result - all slight non specific inflammation non IBD. 1x Colonoscopy result - mild non specific inflammation on right hand side - IBD not confirmed. 1x OGD result - small ulcer. Barium MRI of stomach and small bowel result - all normal.

Post Edited (LondonRed) : 8/10/2008 8:02:35 AM (GMT-6)


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/10/2008 7:48 AM (GMT -7)   
I am currently going to the toiler regularly after taking Picolax and am not seeing blood anymore - it is becoming more watery and showing up as yellow liquid. Even when I strain no blood comes out on the tissue or the pan - so it can't be piles or they would bleed right? And if there is inflammation then where is the blood, surely it can't have just stopped bleeding?

Is there anything I am missing? Where is the blood darn it!?

Diagnosis: Oct 07 - Non Specific Colitis (possible UC or Chrohn's but biopsy not confirmed by 2 seperate GI's) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon). 2 small Piles also diagnosed but not clear whether they are bleeding or not.

Medication Still taking: 800mg Mesalazine (Asacol) 3 times a day appear to have stopped working. 

Symptoms: Jun 08 - Bleeding returns with diarrhoea after taking meds for stomach ulcer. Sigmoidoscopy in June rules out rectal inflammation, Colonoscopy planned for August. (Doctor hinting it's Piles and IBS). No pain, no other symptoms.

Procedures: 2x Sigmoidoscopy result - all slight non specific inflammation non IBD. 1x Colonoscopy result - mild non specific inflammation on right hand side - IBD not confirmed. 1x OGD result - small ulcer. Barium MRI of stomach and small bowel result - all normal.


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/10/2008 9:32 AM (GMT -7)   
I am so sorry to keep nagging about this but has anybody else just stopped bleeding while the Picolax was getting to work? I have drived up it seems and see no blood. Either it's proof that it isn't the piles, or my inflammation or whatever it is is bleeding slowing and the Picolax is working to flush it all out without allowing the blood to pool up?

Diagnosis: Oct 07 - Non Specific Colitis (possible UC or Chrohn's but biopsy not confirmed by 2 seperate GI's) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon). 2 small Piles also diagnosed but not clear whether they are bleeding or not.

Medication Still taking: 800mg Mesalazine (Asacol) 3 times a day appear to have stopped working. 

Symptoms: Jun 08 - Bleeding returns with diarrhoea after taking meds for stomach ulcer. Sigmoidoscopy in June rules out rectal inflammation, Colonoscopy planned for August. (Doctor hinting it's Piles and IBS). No pain, no other symptoms.

Procedures: 2x Sigmoidoscopy result - all slight non specific inflammation non IBD. 1x Colonoscopy result - mild non specific inflammation on right hand side - IBD not confirmed. 1x OGD result - small ulcer. Barium MRI of stomach and small bowel result - all normal.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10392
   Posted 8/10/2008 10:29 AM (GMT -7)   
I've never taken Picolax, but I have had hemmies stop bleeding. Usually they've been troublesome ones, and on one or more bathroom trips I'll have more blood, then it stops bleeding. I think what happens is they get so big they open and drain, then thrombose themselves so they're no longer a problem. Notably, I had a large external one that did this about five years ago, and no sign of it since.

And some people do develop intolerance to Mesalamine after taking it for years. If it were me, I'd stop it just to see what happens. If you have no inflammation, you shouldn't need it now anyway.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/10/2008 10:48 AM (GMT -7)   
Thanks Judy...

It says you have UC but have never taken a laxative to have a scope? My hemmies are very small and internal and it's bizarre that they have stopped bleeding as soon as I took the Picolax - especially as D is what usually get's them inflammed. Obviously, the blood is coming from inflammation and the liquid diet means that the colon isn't becoming inflammed as much and hence no blood. It's bizarre.

Diagnosis: Oct 07 - Non Specific Colitis (possible UC or Chrohn's but biopsy not confirmed by 2 seperate GI's) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon). 2 small Piles also diagnosed but not clear whether they are bleeding or not.

Medication Still taking: 800mg Mesalazine (Asacol) 3 times a day appear to have stopped working. 

Symptoms: Jun 08 - Bleeding returns with diarrhoea after taking meds for stomach ulcer. Sigmoidoscopy in June rules out rectal inflammation, Colonoscopy planned for August. (Doctor hinting it's Piles and IBS). No pain, no other symptoms.

Procedures: 2x Sigmoidoscopy result - all slight non specific inflammation non IBD. 1x Colonoscopy result - mild non specific inflammation on right hand side - IBD not confirmed. 1x OGD result - small ulcer. Barium MRI of stomach and small bowel result - all normal.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/11/2008 5:21 PM (GMT -7)   
You can have both IBD and IBS as well, I have crohn's and IBS.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

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