Hi all!! I'm a 23 year old woman and while I haven't been diagnosed with GERD, I'm currently going through tests for frequent heartburn. Here's a little background info...
November last year I had an endoscopy/colonoscopy and was diagnosed with IBS, having suffered from frequent abdominal cramps, diarrhea. I was put on 40mg of Prilosec a day (I'd also been getting reflux and heartburn), 10 mg of amitrypteline, and Levsin for when I had cramps. Following the diagnosis, I was told to make an appointment with the gastro doc for the following month to discuss treatment/biopsy results etc. Well, I was promoted at work, got busy and never went to the follow up appointment. In February, I went back to 20mg of Prilosec a day of my own accord. My symptoms seemed to be controlled at this point. I had changed my diet, given up caffeine, spicy foods etc.
During this time, I'd been getting frequent sore throat/swollen glands and eventually went to an ENT doc. He monitered it for a couple of months and was baffled. Eventually, he decided it was my tonsils (despite the fact that they were only mildly inflamed) and asked if I wanted them taken out. I decided against a tonsillectomy since it wasn't the definite cause and is very painful surgery as an adult.
Then, doing some research back in June, I saw that refulx can cause frequent sore throat (funny how these specialists sometimes fail to see the bigger picture). I went back on 40mg Prilosec a day. I was getting regurgitation at night but since I didn't really have heartburn, I just dealt with it. Then in July, I got agonizing cramps one evening, just below my rib cage. It was completely different to IBS cramps, raw and gnawing and happened every time I ate over the next few days. I made an appointment with my gastroenterologist but by that time the pain had subsided, it had lasted about two weeks. I went to the gastro last week and explained everything. Following this pain, my reflux/regurgitation seemed to worsen and I was occasionally getting that gnawing pain, as well as a very sore throat and that 'lump in the throat' feeling when I ate. He ordered another endoscopy and that's what I'm waiting for right now. His thoughts were that the pain was a severe esophageal ulcer that was now healing and that it may have caused inflammation or I had slowed emptying of the stomach (IBS can effect the stomach too), causing food to stay in my esophagus. Needless to say, he said that I should not be getting heartburn on a 40mg a day dosage of Prilosec. Right now I'm getting frequent regurgitation, heartburn and that raw pain below my ribs and well as that blocked feeling in my throat/difficulty swallowing.
I'm going for the endoscopy next week and am really curious to see what they find. I really don't want to have to go through any more procedures, nor does my husband want me to (he's a physician so in his eyes, no procedure done on his wife is a simple one). I think he's more worried than I am just because he knows too much. Anyway, I guess it's got to be done and the long term implications are a lot scarier if it's left untreated.
I've posted this is the GERD/heartburn board too as I don't know yet if IBS is affecting my stomach . Has anyone else experienced this? I'm still getting occasional IBS symptoms but it's not bad right now. Does anyone have IBS that affects the stomach and oesophagus?
Post Edited (eihcet) : 8/25/2008 2:55:29 PM (GMT-6)
I went for an endoscopy back in August. It was a lot harder than the first time round. I was soo nervous. The doc didn't find any strictures in my esophagus but he put a dialator through to see if that would help. He said it was probably a functional problem with my esophagus/stomach. So that means that basically none of my digestive system is functioning properly. He said to see how it goes and to come back if there wasn't any improvement and they would do a stomach emptying test.
Well, it's just over a month later and I just keep feeling worse and worse. Every meal I eat gets stuck in my throat and regurgitates back up every few minutes. It clears after a few hours, which means it eventually moves through to my stomach. This regurgitation is leaving my throat raw and very painful and I have constant swollen glands. I'm exhausted, probably a result of my body fighting the swollen glands, sore throat etc. I've also been getting chest pain after eating.
On top of all this, the IBS is still in full swing. As the IBS goes, I have good weeks and bad weeks. A bad week with these swallowing problems is hell, and I'm working full time on top of it. I'm thinking that these problems with swallowing are more severe, maybe achalasia. It seems like my doc was spot on. I was thinking all along this was GERD, that's what my husband thought too. Now I think that food is not even making it into my stomach like it should. I'm biding my time before I go back to the doc. I have one sick day left at work. I think it's a case of waiting until I just can't bare it anymore.
Thank you Canyonbabe, I think so too.
Got to say I'm pretty dowm right now. Just had an argument with my husband over all of this. I was explaining how I'm feeling worse and it's not IBS it's swallowing food etc that's difficult. He just kept going on and on about how I don't eat a balanced diet and what's the point in doing all these tests if I don't have a proper diet. Well, you know I'm eating better then I did a year ago, gave up caffeine, chocolate, greasy foods, spicy foods. I know I don't get enough fruit, veg but when you're afraid to eat because you know you'll feel like crap no matter what you eat, the last thing you think about is getting a 'balanced diet'. I'm just so upset, all I wanted was support, not a lecture. And to top it off, he's a doctor, you'd think he'd have compassion. As I said, would you tell a patient that they "eat like crap" if they told you they were feeling bad. I know for a fact that he wouldn't and he would treat them a lot different than he did me tonight. I don't know if it's that being a doc, he knows too much and can't accept the fact that this is something that won't go away with a "balanced diet". I feel like he doesn't believe me, that he thinks I'm making too much out of it. Well I wish he could walk in my shoes for a day... He keeps questioning my doctors diagnosis, saying maybe I should see another doctor. I don't know at what point I should take his advice or not. He's not a GI doc. The biggest part is, it's stopping me from going on with this other test, going back to my doctor and there's nobody else I can lean on.
hi green eyes, just a thought but have you been tested for h-pylori ? that can be very painfull and a lot of the symptoms you are describing reminds me of when i had it.