Anyone else with these problems?

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PALMY
Regular Member


Date Joined Sep 2003
Total Posts : 255
   Posted 10/8/2008 6:02 PM (GMT -7)   
I was dxed with IBS years ago
but seem to be having more problems. I just had a colonostopy and Egd done. I have the colon done every 3 years due to polyps. I had 3 again that were removed. I have diverticulous like everyone else it seems.

I get terrible pain under my left rib cage that goes through my breast to the shoulder, very gassy and feel nauseated wthout vomiting but sometimes wish I could. I take metamucil every night, if I miss one night it taks 2-3 days for me to start going again.

The Egd showed a small area of inflammation, the gastro was not sure if it was inflammation or a small ulcer until the biopsy came back. He said the pain I have would not be caused by my stomach and says it is the IBS. My gall bladder was removed years ago and i swear this started my IBS.

Thanks for any help, Linda


Look toward the sun and the shadows will alway fall behind you !!!

Post Edited (PALMY) : 10/8/2008 7:07:03 PM (GMT-6)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/8/2008 6:07 PM (GMT -7)   
Maybe you should get checked for an IBD (either CD or UC---crohn's or ulcerative colitis).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


PALMY
Regular Member


Date Joined Sep 2003
Total Posts : 255
   Posted 10/8/2008 6:12 PM (GMT -7)   
This should have shown up in the colonostopy or maybe I am wrong. I know the gastro did a lot of blood work also before my tests.

It is disgusting to go through these tests and still have no definate answers.

Linda
Look toward the sun and the shadows will alway fall behind you !!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 10/8/2008 7:55 PM (GMT -7)   
Crohn's won't necessarily show up in a colonoscopy if crohn's is affecting your small intestines and not the colon, which is why an upper GI series is needed as well because crohn's can affect your entire GI tract from mouth to anus and more than one area at a time...stool and blood tests should also routinely be performed when checking for IBD or ruling out IBS.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 10/8/2008 10:19 PM (GMT -7)   
Unfortunately IBS cannot be seen. It is a diagnosis that is given when no physical abnormality is found. Neither blood work, colonscopy or endoscopy will show IBS but it will rule out everything else. That is one reason it is so hard to correct cause it is a functional disease and we all function differently.

divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 10/9/2008 4:41 AM (GMT -7)   
Hi Palmy, You should check about diverticulitls. You have diverticula, as I do. I have been having symtoms for about three weeks of stomach cramping, and constipation or diarhrea...over the weekend, I had horrible left side pain. I called the dr and she said go directly to the ER. I had a catscan and my white cells were up....They dx diverticulitis. I am on 2 antibiotics and a low residue diet. You need to get on antibiotics if you have diverticulitis. It is an infection in the diverticula in the colon. Very uncomfortable also...good luck to you. Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Waiting for activation October 21 2008


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 10/9/2008 4:44 AM (GMT -7)   
Palmy,,,,just a note...the above signature information is about my husband and prostate cancer not me! Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Waiting for activation October 21 2008


PALMY
Regular Member


Date Joined Sep 2003
Total Posts : 255
   Posted 10/9/2008 8:24 AM (GMT -7)   
When I was dxed with IBS I had a upper and lower GI with a small bowel follow through, I was actually in colon spasms at the time. That was 30 some years ago, four years ago I had another upper GI with the small bowel, everything was okay.

I have been getting the rib pain for years, but the stomach pain and nausea is new. This comes and goes along with the rib pain. My G/P and the gastro both say it is gas from the IBS and also with aging our digestive tract slows down plus not having a gall bladder makes our food harder to digest. I just had routine blood work done and all was fine, just cholestrol a little elevated.

The gastro has told me several times about diverticulitis, pain in the lower left quadrant, nausea and fever. He said to go directly to the ER if this occurs. He wants me to take metamucil every night to keep the diver clean and to help with the iBS.

Sometimes when I have this pain and have a release of gas it does subside other times not but my ribs will be sore for several day either way.

My chiro says it is muscular that he can feel the tightness in my muscles. I do have fibromyalgia, herniated cervical discs, arthritis in my neck and upper spine.

Di, I hope your husband is okay, I will keep him in my prayers. my sons neighbor was dxed wth the same and is only 35. I am his age.

Hugs and thanks everyone for the support, Linda
Look toward the sun and the shadows will alway fall behind you !!!


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 10/10/2008 5:33 AM (GMT -7)   
Dear Linda, I reread your first post, and you said that you had had your gallbladder removed, and that is when the IBS started. It sounds like gas is getting trapped in your abdomen. Are you very careful that you are avoiding a lot of fat....potato chips are the worst, or fried chicken, Nausea and stomach gas often comes when your body cannot digest any fat....without a gallbladder you may have lots of trouble with fats. If I were you, I would selectively try to cut out any fatty foods, even cheese for a few days, and see what happens....also try the same thing with gluten products (wheat) , you may have become alergic to wheat products....I think you are on the right track about the gallbladder. Fats are difficult to digest....We have to be our own investigators in this matter. We know much more about our own bodies that the doctors do.....Good luck and thanks for your words about my husband. Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Waiting for activation October 28 2008


redlightnin
New Member


Date Joined Oct 2008
Total Posts : 1
   Posted 10/13/2008 9:28 AM (GMT -7)   
Help! 2 years ago my daughter was told she had severe ibs and she would just have to live with it. She is 23 now and last week she had such horrible stomach pain she went to the er and they gave her more pain meds and sent her home as usual, but the next day she was worse so she went back the the er and they admitted her, gave her another colonoscopy and found that her colon is dying! The docs are saying that if the colon cant heal itself (with  proper diet) that the colon will have to be removed. This is a bunch of crap! For the last 8 or more years my daughter has had chronic diarrhea, stomach pain and hot flashes and every time she goes to the doc, they just give her pain killers and send her home. Over the last year or so she has become addicted to the pain meds because #1. they help her forget about the pain and#2 they help constipate her. The docs have no explanation as to why her colon is dying, but say it has nothing to do with IBS. Any body out there have any ideas???

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 10/13/2008 10:00 AM (GMT -7)   
Get thee to a teaching hospital. I know nothing about this and don't know where you live but I would investigate places like Cleveland Clinic, Mayo and the big guys before I would accept this.
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