It is truly very difficult to manage IBS when you are among people without IBS issues. To me it seems as if the entire world can eat anything they want, hold it until they get home (wouldn't that be so nice, to those of us that struggle with urgent needs) or those that suffer from the pain of C.
I stumbled into IBS/D from having almost all of my sigmoid removed due to cancer. Along with 15 more inches of my colon. All I know is I am forever - changed. I will never go back to my old - one dump a day - mode. And also my old - eat anything I want without explosive results - either. Those days are over. I try not to get down about
it or negative. I have found that if I just say to myself, in my mind, not outloud, oh well, this is the way it is now, this type of thinking, really helps me remain as calm as I can. I basically have now accepted my situation. I used to try and educate others about
IBS or at least explain why I have so much trouble. I no longer do so. If anyone asks, I say I'm a cancer survivor, I had an important part of my colon removed and I now have to eat a specific way (very small meals, plain foods and sometimes not eating at all!) and I need a bathroom frequently (ha, if they only knew!).
I guess what I'm trying to say is the general public without IBS issues or concerns, cannot grasp or even begin to understand what we go thru. Once you face this hard fact, then you can work on your own individual approach to your situation.
I do think support and understanding is extremely helpful. So this forum is a God-send! But I get the distinct impression many of us wish the people we interacted with 24/7 - family, coworkers, bosses, friends, neighbors - understood what we struggle with. Once I let go of this dream coming true (they'll never truly understand any of this), I finally began to resolve my attitude realizing I am changed forever. This is basically the new me.
Please know I only want to help but these are the things that have helped me. I've been at this for over 9 years now. Almost 10. I haven't found a cure but a different attitude towards it all. Hope this helps. I'm sharing what works for me in the kindest, most gentlest way I know how. Not trying to judge or criticize. I'm sure others have found what works for their needs as well. Perhaps we could start a new thread asking members to share tips on "Coping with IBS/D or IBS/C"?
- Diagnosed with rectal cancer, April 1999 - Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, given temporary colostomy)
- Colostomy reversal, June 1999
- Left with IBS/D symptoms, multiple bm's every day
- On a low residue diet at least 75% of the time
- Takes Colace 50 mg each evening
All in all I do okay, I just use the bathroom A LOT! But I survived and beat cancer!
Post Edited (Marsky) : 12/19/2008 6:23:22 AM (GMT-7)