does anyone have anything positive to say?

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azelf
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 1/7/2009 7:35 AM (GMT -7)   
I am scheduled for a laporascopic total colectomy from Mayo on Jan 20 due to slow transit constipation---meds, diet, exercise, etc. did not work for me.  I am well educated, well informed, extremely active with two kids,  (did I mention I am a Scorpio..just adding a little levity) and believe that I am making a reasonable decision to move forward with this elective surgery.  However, after reading many of these posts, I am concerned about the long-term effects of this surgery due to so many negative posts and is there anyone out there that would be able to give an answer to the obvious question---"would you do this surgery again if given the choice"?  "Is your life better because of your decison (holding out for the patient that is post-op over a year)"?  Thoughts?

azelf

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 1/7/2009 11:19 AM (GMT -7)   
Wow, I don't know quite what to say but that I don't think most of us come here to be negative. I think we come here for support and suggestions.

And most importantly, because here we can speak freely and honestly about what it's like for many of us, IBS/C or IBS/D, day in, day out. For so many of us, it's the only place we can be honest!

The rest of the world doesn't want to talk about IBS.

So no, I don't think of these topics and posts as negative.

Thoughts anyone?
Marsky/Mary's story.....
- Diagnosed with rectal cancer, April 1999 - Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, given temporary colostomy)
- Colostomy reversal, June 1999
- Left with IBS/D symptoms, multiple bm's every day
- On a low residue diet at least 75% of the time
- Takes Colace 50 mg each evening

All in all I do okay, I just use the bathroom A LOT! But I survived and beat cancer!


azelf
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 1/7/2009 4:32 PM (GMT -7)   
Marsky perhaps you have taken the post mistakenly personal. I too am here for honesty.  Looking for a response related to my question. 

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 1/7/2009 5:28 PM (GMT -7)   
Well, my bad then. The least I can do is keep this topic near the top of the list. My apologies.

You could also retitle the topic, asking past surgical patients if they'd do it over again, if they had a choice.

I don't quite fall into the category you're referring to - I had the lower part of my colon taken out due to rectal cancer. And I have never been the same since. For those of us that spend lots of time in the bathroom each day (I'm in that group), yes we do tend to be negative. And are very reluctant to have more surgery. I flat out refuse any more surgery, I've been told by 3 doctors that I could have had 1 of 3 approaches - the sigmoid removal approach, 15 inches of my colon removed, etc. I had. A j-pouch and the third would be an option now - an inverted colostomy, that I would irrigate once a day.

I guess if I had to give you any advice is do what you've done already - research, ask questions, get yourself ready for surgery in a healthy position as possible (good food, vitamins, exercise) - and possibly a second opinion. I probably should have had a second opinion (although I did have an excellent surgeon, I just have no where internally for stool to collect). I think the placement of my tumor presented a challenge to my surgeon. If it had been much higher in the GI tract I probably wouldn't even need this forum or suggestions. I'd be back to normal (whatever that is!).

I do wish you well with your surgery.

The ostomy forum here is very helpful. You could try posting your questions over there too.
Marsky/Mary's story.....
- Diagnosed with rectal cancer, April 1999 - Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, given temporary colostomy)
- Colostomy reversal, June 1999
- Left with IBS/D symptoms, multiple bm's every day
- On a low residue diet at least 75% of the time
- Takes Colace 50 mg each evening

All in all I do okay, I just use the bathroom A LOT! But I survived and beat cancer!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/7/2009 6:35 PM (GMT -7)   
I've never really heard of someone getting surgery to aid with their IBS actually....and I personally would have easily guessed you were a scorpio just like my mom and one of my sisters, for me it's usually easy to pick scorpios out of a crowd so to speak LOL!

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 1/7/2009 11:23 PM (GMT -7)   
Hi azelf,
Welcome to the site! :-)
As pb4 mentioned, IBSers don't ordinarily have surgery. I wonder if you might get more feedback if you visit the Ostomies forum, or maybe even Crohns or UC. As much as we all love happy tales and positive posts, I'm not sure too many people on this board can speak to this type of surgery. Of course, I could be wrong, but it can't hurt for you to visit the other forums as well.
Best of luck to you,
Lil
Co-Moderator IBS Forum
 
Please donate to help HW continue to help us... http://www.healingwell.com/donate/
 


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 1/8/2009 4:58 AM (GMT -7)   
That was my thought as well Lil, there would be more info on surgical options on the ostomy board (not that you are not welcome on this forum azelf, anytime!).....but as far as answers to your questions, that's a very active forum with kind members. Who are always willing to answer questions.
Marsky/Mary's story.....
- Diagnosed with rectal cancer, April 1999 - Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, given temporary colostomy)
- Colostomy reversal, June 1999
- Left with IBS/D symptoms, multiple bm's every day
- On a low residue diet at least 75% of the time
- Takes Colace 50 mg each evening

All in all I do okay, I just use the bathroom A LOT! But I survived and beat cancer!

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