Any Suggestions??!! I'm tired of being sick all the time!!

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mommyof3+2
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/18/2009 9:34 AM (GMT -7)   
I am new to this, just signed up after reading many posts on the subject. My symptoms are very similar to the ones that I have read and I have been taking notes on different suggestions. I have had IBS alternating with severe d & c for 20 years now, but since this past December, my symptoms have gotten so bad that I have actually had to take FMLA leave from my job driving a bus for severely mentally disabled people. My employer has been very understanding, but I am so frustrated with my body not working properly. I am actually afraid to leave the house now, which is very difficult with 3 kids all different ages, wanting to go different places. I have conducted a couple experiments with Pepto Bismol, I was able to go out for dinner with my husband and actually made it back home before I needed the bathroom. But I don't dare eat all my dinner for fear of an accident, so I bring it home and finish it at home! I have tried to change my diet, but the last few months, it doesn't matter what I eat, everything bothers me. The stomach pains and gas pains are getting so unbearable. I finally decided to see a gastro dr. last month. He did a colonoscopy, found a polyp and removed it, but found no sign of colitis or crohns or anything. I've gone for a barium swallow thing and that came back ok. He has me on a prescription called donnatella (belladonna generic form). That seems to sort of help, but now I am so constipated and uncomfortable, I'm back to not going for at least a week or more. I've lost 10 pounds, but I don't look like it, my belly is so big and bloated. Dr. also suggested digestive enzymes, but I haven't dared leave the house long enough to go shopping for it!
Sorry this is so long, but I was feeling like I was the only person this was happening to, apparently not! If anyone has any suggestions, PLEASE, let me know!!! I need to go back to work in 4 weeks!

hvanvorous
New Member


Date Joined Mar 2009
Total Posts : 19
   Posted 3/18/2009 10:52 AM (GMT -7)   

Hi!

I understand you are going through a rough time right now.  I definitely suggest you check out a website called HelpforIBS.com (http://www.helpforibs.com/).  It is a patient supported website specifically for IBS and the woman who owns it has had IBS for over 30 years.  There is great information on diet, fiber, and help for IBS symptoms.  This site also sells an Acacia fiber that is great for IBS-D as well as IBS-C, so if you are going back at forth between the two it will help you out tremendously.  I strongly suggest you take a look at the Diet Page on this website (http://www.helpforibs.com/diet/). There is information on foods to eat, great recipes, and a link to their IBS Diet Cheat Sheet that lists out soluble fiber foods, insoluble fiber foods, and IBS trigger foods.  If you are feeling super sick you want to stick with only soluble fiber foods for a few days until you start to feel better then you can start to introduce the insoluble fibers.  But remember to never have insoluble fiber on an empty stomach!  If you are feeling so sick that you do not want to get out of the house, you can order her products online. She also has a great fennel tea that is specifically for relieving the symptoms of gas and bloating.  This tea helps instantly and you can drink as much as you want in a day.  I am sure you can also find the digestive enzymes online as well, I would suggest doing a Google search for nutrition stores in you area that deliver, or try HerbalRemedies.com.  Here is what HelpforIBS.com says about digestive enzymes:

Digestive Enzymes can be helpful when taken right before a meal, especially if there is more fat in that meal than is safe for IBS. Enzymes are available at all health food stores and may be of more benefit to older people, as natural digestive enzyme production declines with age.

For gassy foods such as beans, lentils, and many vegetables, there is Beano, a brand-name digestive enzyme. Beano contains the sugar-digesting enzyme that the body needs (and which some people lack) to digest the complex sugar raffinose. If you have trouble digesting raffinose the sugar will ferment in your colon, producing gas and intestinal distress. Beano breaks down raffinose into simple sugars that cause no GI discomfort. Beano is available at health food stores in either tablets or drops, and is simply taken at the beginning of a meal. There are no side effects unless you have a rare sensitivity or allergy, and the product can be used every day.

If you are able to start on a good diet for IBS, and start taking a good soluble fiber supplement, I am pretty sure you will be feeling well enough to go back to work in 4 weeks or less!  I strongly recommend taking a look at this site!!

Best of luck!

 


sadtummy
New Member


Date Joined Mar 2009
Total Posts : 13
   Posted 3/18/2009 11:13 AM (GMT -7)   
I am new to the site here too mommyof3+2. I don't have all that much to offer as I have not really done a lot of the researching of diet. But emotionally I can tell you I know just how you feel. I suddenly had the d'rhea hit and it lasted for 8 months, lost 14 lbs.

My gastro recently put me on Levsin, well, the generic for it and it stopped the d'rhea and the cramping. I had tried a medicine called Lomotil which worked at first and then it seemed to become ineffective. But the Levsin is wonderful for me. A side effect though seems to be my GERD heartburn is back, even though that is treated with prilosec successfully for several years.

Before the Levsin, I could not leave the house. I purchased a "portable" toilet lid (camping supplies) that fits over a 5-gal. bucket. Inside I carry a box of wipes and a roll of tp. At the time I simply accepted that I may have to pull over at any given time, and use that toilet in the backseat. I did not go anywhere unless I really really had to.

I also called a little extended family meeting and let everyone know how truly bad this had become for me and that family get-togethers would have to be at our house as I was too afraid to drive for the hour-and-a-half trip to their homes.

These two things alone helped me a lot. But, I am a stay-at-homer so I don't HAVE to go anywhere like to work like you do.

Don't let your doctor stop trying new things for you. Try these muscles relaxers that work on the intestinal muscles. Bentyl, Levsin are two that I know about.

I agree totally about checking other IBS sites for tips but when you are in the middle of the horrible panic, fear and pain, I think it's best to try a medicine to stop it first, as you then move over to holistic ideas, diet, etc.

Dairy seemed to be a huge trigger for me so I stopped all dairy. There was a short period of time where it seemed that was it, and then WHAM, it all came back full force.

Don't give up. And don't feel you are all alone.

mommyof3+2
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/18/2009 12:27 PM (GMT -7)   
Thank you for the insight! I will check out those web sites. I am sure I will be back on here again in the near future. Unfortunately right now I think I have the flu on top of everything! Yuck!

airila
New Member


Date Joined Nov 2007
Total Posts : 18
   Posted 3/19/2009 8:08 AM (GMT -7)   
My suggestion to you is to research doctors in your area and find THE BEST. If there is one thing I've learned over the past decade is that there are "doctors" and then there are DOCTORS. They are not created equally regardless of whether they use MD after their name. Keep going to doctor after doctor until someone finally listens to you, orders different test, does something different, and is resolved not to give up until you find relief. I know it's exhausting and expensive. But, your life is worth it. Seriously. Talk to your doctor about all of your symptoms. If the treatment he/she ordered isn't working... go back again, and again until you find something that works. I went through four doctors before I found one that actually cared enough not to stop working with me when an initial treatment didn't work or another test said there wasn't anything wrong. And boy am I glad I didn't give up.

mommyof3+2
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/19/2009 8:38 AM (GMT -7)   
Thank you. The doctor I am currently seeing is actually pretty good. He seems to be understanding and willing to work with me to try different things. So far I have tried levcin and belladonna. He wants to see me tomorrow because I am having weird side effects of the belladonna. I thought I had the flu, but I think they are severe side effects. I also ordered Heather's Tummy Care from the web site above. I'll have to discuss that with the doc tomorrow too! At this point, I am willing to try anything to make me "Normal" again!! I know what you mean though about some doctors giving up and sending you on your way. My last pcp was like that, she kept telling me to increase fiber in my diet and not listening to me at all. My new pcp, she is great! I went in with a list of everything that is bothering me and she actually photo copied it and went down the list with me in detail and ordered a slew of tests. From those tests I found out I have something auto immune going on as well. My ANA test came back positive, so they are exploring Lupus and a number of other things as well. I hopefully find out some results next week when I go see the rheumetologist.

airila
New Member


Date Joined Nov 2007
Total Posts : 18
   Posted 3/19/2009 10:03 AM (GMT -7)   
So glad to hear that! You're on the right track...just hang in there!

hvanvorous
New Member


Date Joined Mar 2009
Total Posts : 19
   Posted 3/20/2009 12:36 PM (GMT -7)   
Hello, I am so glad you ordered some of Heather's products. I know they are going to help you out a ton! Best of luck!
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