Mayo Clinic anyone?

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Normal
Regular Member


Date Joined Mar 2008
Total Posts : 263
   Posted 3/19/2009 5:11 AM (GMT -7)   
Ok I have dealt with my IBS-D for 25 years. Now I have such joint pain I cannot stand it. They did a MRI on my shoulder and neck, where it startd. Found Bursitus and a labreal tear in my shoulder and DDD in my neck. Suggested surgery for my shoulder and therapy for my neck. But computer says should diagnos what type of DDD first and try cortizone and antiflamatory for shoulder. Now I have the same unbearable pain in my back and knee. I cannot even concentrate because of pain. Been to so many Drs. here but just keep feeling worse all the time. Maybe I should get on another forum but I feel like it has something to do with the IBS. I just have to find ONE DR. t put all this togther. Do you have to have a Drs. referal to go to Mayo? Doed anyone know? I have appointment with Internist here in town May 5th but Im not sure if I should try Mayo first. I dont know how long I can function like this. I also have schorriasis,of course, who doesnt after IBS for a long time. Liver levels go high off and on. I dont feel like going thru all of the test again and spending all of the money to hear its IBS you just have to deal cause I cannot deal anymore. Im only 51, need to feel like it and be able to do something occasionally. So anybody have any suggestions for Drs. who can correctly diagnos and treat?

mommyof3+2
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/19/2009 8:42 AM (GMT -7)   
Have they tested for rheumetoid arthritis yet? It is a simple blood test just to screen you.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 3/19/2009 4:15 PM (GMT -7)   
Have you been thoroughly evaluated to make sure you don't have inflammatory bowel disease like Crohn's or ulcerative colitis? Joint pain is one of the complications of IBD. Seeing a rheumatologist is a good idea when one has unexplained joint pain and damage. A rheumy can run all the necessary tests to determine the cause of the problem.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Normal
Regular Member


Date Joined Mar 2008
Total Posts : 263
   Posted 3/22/2009 4:31 PM (GMT -7)   
Ides, Thank you for the reply. Yes I have been checked for both Chrons and several other things. Had 2 colonoscopies, endoscopy and pillcam. Also have blood test done once or twice yearly. I would like to ask you about your DDD if you dont mind. My Dr. said therapy for DDD of neck. But I read on computer that first they need to see what type or what the cause is. Did you have that done? If so how do they determine the cause. I am going to a internist  May 5th. Have you had any experience with an internist. My daughter is 30 and having alot of the same symptoms I did at her age. I really want to find an answere for both her and I. She went to a endocronologist last Nov. and they did test then dint follow up. Most of the Drs. here do all the test then seem to just even diagnose SOME of problem but not all AND DONT TREAT THE PROBLEMS.they just send you to another DR. and I have been sent from Dr. to Dr. the last 3 years. I have left several too. My family Dr. suggested Mayo a couple of years ago but I was sure I could get help at IU medical center. Wasnt having joint pain just IBS D and schorrioasis. They would only treat IBS and sent me to a Dermotologist OUT OF TOWN of course for my skin. I am hoping this internist will help me with all. I know she cant take care of the tear in my shoulder but I talked to another lady my age who has IBS and has a tear recently from excercising. That is another question I have. Does the IBS affect your muscles? none of my Drs. have said so but Mine are a mess. Thanks all here for your support and answeres. Take care. Normal

spicynutmeg
New Member


Date Joined Apr 2009
Total Posts : 1
   Posted 4/28/2009 5:31 PM (GMT -7)   
I went to Mayo in Jacksonville, Florida last summer. I would highly recommend it. In a matter of a few days, they had me see specialists in different departments with one doctor reviewing everything in the end. From what I understand, your doctor has to refer you and send all your charts, etc. I was unable to get into the Mayo in Rochester. They said something along the lines of after reviewing my chart, they couldn't help me. So, maybe try both.
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