Been through it all & have been symptom free for a really long time now.....

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rgrwfe
Regular Member


Date Joined May 2006
Total Posts : 43
   Posted 5/14/2009 11:21 PM (GMT -7)   
I came to this site over and over again looking for answers, looking for support, looking for suggestions & hoping I wasn't the only one suffering.  I have my IBS-D totally controlled now & it has been like this for quite some time now.  The reason why I am back making a post is because I was suffering so much & I came here to seek the answers, but most all of us were just asking the questions & only a handful had the answers.  Maybe I can offer a glimmer of hope or a suggestion that may help you get to where I am today.
 
My symptoms started in 2005, my gall bladder was removed that year, and I had no relief.  I had all the tests (hyda-scan, blood tests for inflammation, xrays with barium, CTscans, endoscopy, & colonoscopy - to name a few).  Nothing was clear except the fact that they couldn't find anything, nobody could.  I was so frustrated I'd get angry with the doctors & just cry.  The symptoms for me included serious bouts of diarrhea, sometimes 12 times a day, with extremely sharp cramping just below my belly button.  The only way I ever got relief was when I would force myself to fall asleep during this, I relaxed.
 
I got to the point where I decided that I'd rather not eat than suffer the pain & I got down to about 93lbs.  Who wants to live in Italy where you have to pay to use a public restroom & it's always a dire need?  I stopped leaving the house because I'd end up having to leave full grocery carts in the commissary/grocery store to go home & deal with the pain & diarrhea.
 
I bought the book called The First Year IBS & when I had a bout, I sat on the throne & read that book & it helped to ease my mind & offered some great advice.  I see a lot of other books out now, but at the time, that was the best one, so I still would recommend it.
 
It was explained to me that there is such a network of nerves in our GI systems that they have the ability to do what they want, regardless of what the brain says.  For that reason, I was reluctantly put on an antidepressant.... Prozac (fluoxetine).  I never wanted to take that route, but I am thinking now that it really saved me.  I wasn't crazy, but I was sure able to relax after that & it helped so much.  The Prozac worked it's magic on those nerve bundles.  I was also put on Bentyl (dicyclomine) 4 times a day & weaned myself off slowly, starting with the bedtime dose because it wasn't affiliated with food.  To this day I still take my Citrucel (soluble fiber) pill every day & will for the rest of my life...by choice.  It turns the contents of my large intestine into a form of a gel & keep things smooth & regular.
 
I asked to be weaned off the Prozac 2 months ago & haven't taken a Bentyl in many months.  I have not had one symptom of IBS since then.  I suffered in pain & humiliation for about 4yrs.  I am back amongst the living.
 
If I can offer any advice to help anyone, it'd be to find your comfort food, the one thing you can eat when you're really down & also, don't stop eating.  If you get sick from lack of nutrition, you are definitely not any better off than you already are.  I heeded the advice of a fellow IBS sufferer who reminded me to pay attention to what I eat & to not eat anything that is hard to digest, veggie skins, raw veggies, seeds, salads, etc.  I also stopped the coffee altogether.  I found comfort in baked potatoes - but that's just me.  I made the time to exercise & get my body into a routine.
 
It's hard, it's really hard, but you're not alone.  Maybe I can help one person with this post, maybe one bit of advice I have given hits home for you & makes it all work, finally.  I weigh a healthier 115lbs now, I eat almost anything, but I still am afraid of salads & super greasy, fried foods - creature of habit.
 
I wish you all well & I hope you can find the relief you need & deserve.  All the best to you!
 
RGRwfe
 
 

pappardelle
Regular Member


Date Joined Apr 2009
Total Posts : 26
   Posted 5/14/2009 11:58 PM (GMT -7)   
Hi, I have been diagnosed offically with IBS and ulcsers.  I have chronic diarrhia, with fairly
frequent vomiting, and daily nausea, especially after 15-20 min. aftereating a meal.  I have a
post up on this sight called gallbladder, I need help/advice I have tried a very strict bland
diet for a little over two months and my symptoms may disapear for a week or two comes
right back.  Lately, my pain level has been at a 7-10 on the scale everyday.  Please, help. Thank you. 

IBSpatient
New Member


Date Joined May 2009
Total Posts : 10
   Posted 5/18/2009 11:20 PM (GMT -7)   
RGRwfe, thank you for your thoughtful and encouraging post. I would just like to say that I was put on two selective serotonin reuptake inhibitors (SSRIs, a type of antidepressant) for the same reason - to help with my IBS as well as the accompanying anxiety and depression. A couple months ago I decided I wasn't really so anxious and depressed anymore, at least no more than the average person, and I decided to wean myself off of them (I didn't think they were helping my IBS that much because I still had some symptoms). I'm sorry to report that this was a big mistake. My IBS was back to the uncontrollable hellish symptoms I experienced several years prior. I even waited a whole month before getting back on them because my doctor said that even someone without IBS could get an upset stomach for up to two weeks just for getting off the meds. So: SSRIs really can help with IBS - I had just forgotten how horrible IBS can really be. I think I will stay on them now for a long, long, time.

rgrwfe
Regular Member


Date Joined May 2006
Total Posts : 43
   Posted 5/19/2009 6:53 AM (GMT -7)   
IBSpatient,
Glad my post could be of some help. I have been told that you can stay on an SSRI as long as you need to (even for life), as long as it isn't a hindrance. The big reason for fluoxetine for me was because of the side effect of "hunger" & it was a chance for me to not be a stick figure anymore, & that worked well. The only side effect I experienced was feeling tired, but I switched my dose to bedtime instead of morning & that alleviated the problem.
There's no shame in taking an SSRI / anti-depressant & if you have IBS & it is something that actually WORKS for you, hallelujah! My post was to encourage other to give it a try & not be embarrased because they are not "depressed". I'm sure it won't work for everyone, we're all different, but I am happy to know it worked for the both of us!
I hope you continue to live a life without IBS symptoms!!

2Hawaii
Regular Member


Date Joined May 2007
Total Posts : 82
   Posted 5/26/2009 4:12 AM (GMT -7)   
pappardelle--go to the website gallbladderattack.com and read the beet recipe for pain..it works wonders! I use it all the time...I'm never without a supply...good luck

rgrwfe---thank you...you give me renewed hope...I've been going thru this for 10 years.....I'm still working on my problem...

crampygrammy
Regular Member


Date Joined Aug 2008
Total Posts : 85
   Posted 6/1/2009 6:09 AM (GMT -7)   
I have suffered with chronic D all my adult life (and I'm old LOL). I've tried all kinds of drugs and nothing works -- oh it may work for a little while, but the D always returns. I've gone years with no drugs at all -- just watching my food intake and making sure I eat my yogurt daily. That helps for awhile (as good as the drugs) but eventually the D returns. I'm coming off a 4 or 5 month respite from the chronic D, and boy did the IBS return with a vengence this time. The cramping, diarrhea, nausea, bloating are really bad this week. When it gets this way, I have no desire to eat. But I make sure to eat yogurt and of all things white bread seems not to bother me too much. Not much nutrition there, but it's something.

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/1/2009 7:14 AM (GMT -7)   
How many mg of fluexotine did you take? I started taking 20 mg for depression (thanks to IBD); I'm wondering if bumping up the fluexotine will help the remaining IBS symptoms.

tiedinknots
Regular Member


Date Joined Jun 2009
Total Posts : 35
   Posted 6/7/2009 9:26 AM (GMT -7)   
Thanks. I have trouble eating and don't eat during the day because I can't do anything while I'm in pain from food. It's nice to know people can come back from that.

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 6/8/2009 12:44 PM (GMT -7)   
RGRwfe=  I have suffered with IBs for 15 years now.  I use to have the diahrrea but now my problem is my intestines combined with food causes me gas that is trapped and will not let me have a bowel movement without taking a full blown enema.  I am sick every day of my life with this if I eat anything but soup or dry potato or chicken.  I also am lactose intollerant and cant take the probiotics, I tried to take it along with my lactose pills and that caused me alot more distress.  My intestines feel like they are so swollen that they will explode, this along with the pain and cramping and all that goes with it, has got me so depressed.
I have lost 90 lbs in the last year from starvation, because its a choice of being sick and eating or starving and feeling better.  So my IBS with the lactose problem is driving me crazy, cant get any kind of doc to help me.  Do you know what kind of a doc I should seek out, been to my pcp and gastro doc and no help.  Is there a pill for Ibs that would help me if anyone one has any idea I would greatly appreciate it...thanks....
Leslie King


MaxieJ
Regular Member


Date Joined Jul 2009
Total Posts : 34
   Posted 7/17/2009 9:08 AM (GMT -7)   
    RGRwfe-
   
    Hi, Yes my GI prescribed SSRIs as well for my IBS: Zoloft. I am not sure if it helps. I lost my father last year and did not care about my IBS and stopped taking my medications. After your post, I think I will adhere to the prescribed dose and pay attention. MY GI just prescribed Amiitiza for me. I am only on my third day. So I don't know how I'll do yet. Any way, about that Citrucel tablet.
I use to drink the powder like every other day, but I stopped. It just makes me more bloated and gives more gas. Does the tablet cause gas and bloating. Please let me know.
 
MaxieJ
 
 
Hello - IBS Sufferers. I have alot to share


IBSGOAWAY
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 7/17/2009 11:04 AM (GMT -7)   
Huh...my mom mentioned the other day about upping the dosage on my Lexapro. I wonder if that would help. I was also thinking about starting Citrucel, but am concerned about gas and bloating. What dosage do you take and would you recommend starting out smaller? And thanks for your words of encouragement. It is so nice to hear that some people beat this stupid syndrome (they won't even let us call it a disease, even though it affects all our lives like one) and got to other side!

Show
New Member


Date Joined Aug 2009
Total Posts : 3
   Posted 8/11/2009 9:04 AM (GMT -7)   
I have all the usual symptoms of IBS, bloating, constipation, diarrhea; I have different results with the same food on different days. I do not have much pain or cramping however.

My main issue is that when I get bloated my stomach puts pressure on my diaphragm and on my lungs and I get out of breath. I can’t walk 30 ft without having to stop to catch my breath. Forget about stairs they are impossible.

When I have no IBS symptoms I can jog, run up two stairs at a time and do 90minute work outs at the gym with no problem

Does anyone else have these symptoms? I have checked my heart and lungs and they are normal.
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