I answered your post on the ostomy site about the subtotal but I will give the info here too so others can see it. I had an open subtotal last July for colonic interia. My colon had dropped way down and stretched as well as had many strictures in it. I took 4 capfuls of miralax, 4 tablespoons of lactulose and 2 amitizas every day a would only produce pellet like bms every 2 weeks. After 5 different GI drs I finally found one that figured out what needed to be done and he recommeded the colectomy.
My surgery was open due to so many previous abdominal surgeries but it can be done laparoscially. I was in the hospital for 5 days, had NO complications and went back to work in 6 weeks. When I first had the surgery I had very frequent bms, 20+ a day but I was always able to control them; I just knew where every bathroom was. By the 6th week I was down to 8-10 bms a day, it took 9 mos for my system to adjust to 2-3 a day. I am still on the low residue diet that they put you on when you first have the surgery because it took my body so long to adjust and whenever I would try one of the fiber foods I would have severe diarrhea.
I tried to take metamucil and imodium to slow things down but they stopped things altogether so my dr wouldn't let me take them that's why I remain on the low residue diet.
It can be a difficult surgery but if you have had abdominal surgeries before it isn't too bad. The most important thing is to let your body heal and try not to do things too quickly. Even though I went back to work after 6 weeks, it took months for my strenth to come back and for me to really feel good.
As with any surgery there can be risks and complications but I personally did not have any and I am usually one that always has something go wrong. I have never regretted having this surgery and am always getting compliments on how healthy I look now, even from other drs.
I would recommend this to anyone who suffers from constipation; I didn't realize how sick I was until I had this surgery.
If you have any questions I will gladly get back to you.
I wish you the best,
Post Edited By Moderator (LanieG) : 2/8/2010 2:11:54 PM (GMT-7)
Kisten,did you had a barium enema or colonoscopy prior to the CT scan?
If so,did they saw the diverticulosis?
Post Edited (spasman) : 1/28/2010 2:26:04 PM (GMT-7)
Post Edited By Moderator (LanieG) : 2/8/2010 2:12:07 PM (GMT-7)
hi! im new to this site, but was looking for people i can relate to as ive been suffering from terrible constipation since i can remember. im 26 years old and after exhausting absolutely every other option am finally going in to talk to a surgeon about a subtotal colectomy. i also have pfd which is why this post caught my eye.
if its any consolation to you i personally know someone who was diagnosed with colonic inertia and pfd. she had a total colectomy 3 years ago that was completely successful and has been given a whole new life. not that her results would be typical for everyone, but i know its hard to find people with similar problems to relate to.
i understand about being scared to have surgery. especially since theres no "right" answer that anyone can give you. ive tried to avoid surgery, but the way i see it now i dont think things can get much worse. i know ive done all i can and if theres even a small chance surgery could help me then im up for it.
stay strong :)
Post Edited (johnnab123) : 12/13/2010 3:43:12 AM (GMT-7)