Mixed Diagnosis

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Regular Member

Date Joined Jun 2009
Total Posts : 24
   Posted 6/24/2009 2:14 PM (GMT -6)   
This past January I had severe pain on my lower right side radiating down my leg and across my back.  I went home and took a pain pill, assuming it was maybe an ovary cyst that erupted.  My son and husband convinced me to go to the hospital in the event it was a kidney stone.  After a basic CT scan, they told me it probably was just a cyst that erupted, and sent me home asking me to follow up with GYN and GP.  Followed up with GYN and GP, they had not much to add.
Then again this month this pain began again...I could feel it coming on, each day, heaviness, back pain, hard to stand up straight, walk, etc.  It seemed to begin once again right about the spot of my ovary and radiates from there down the leg and around to my lower back.  This time I waited it out, figuring 2nd week of my cycle, it's another cyst again.  Swallowing tylenol and motrin every few hours, until the third day, where I was swallowing pills every 2 hours.  By night time, the pain was unbearable and I was no longer getting  relief from the motrin, so once again I returned to the emergency room, running a low grade fever and they were convinced it was appendicitis.  They did a fuller CT scan, using dye and making me drink all this fluid, and once again said they could not find anything, and this time they could see a cyst on the left ovary so knew that it wasn't a right side cyst erupting.  Their diagnosis by reason of elimination was IBS, assuring me that it was a very difficult thing to diagnose, and they gave me pain killers and antispasmodics, sent me home, asking me to follow up with my GP.  This was very strange to me as I didn't see anything difficult they did to come up with this diagnosis except say, well it's not your appendix and it's not your ovary, therefore it is the difficult to diagnose IBS.  Granted, bowel movements have rarely been easy to me but I've lived with this all my life. 
Two days later I followed up with my GP, not feeling a whole lot better despite the new medication, and my GP told me he thought it was a lower back muscle spasm and explained how the muscle wraps around to the front.  He told me to stop taking the pain killer because it would only cause more constipation and he didn't seem concerned that I'm a very irregular every 3-4 days or more person.  He changed all my meds to anxiety medication and an anti inflammatory and told me to take Metamucil twice a day.  Within a day and a half the pain was almost gone...just a hint of it there, if I thought about it.  No bowel movement occurred for another week, so much for the Metamucil or possible relief in the event it was IBS.  The problem is, two weeks later, everytime I try to stop taking the anti inflammatory, the pain returns.  I haven't been taking the anxiety meds.
My husband has been in the hospital with what may very well be end stage liver disease, since about the time I had the second, so I have every reason to feel stressed, anxious, etc.  I have also had 2 ectopic pregnanices earlier in my life in which they discovered and cleaned up some endometriosis.  I have since that time been on birth control pills to control the endometriosis, but stopped taking them about a year and a half agoin fvor of smoking once again...and I know I can't smoke and be on birth control pills.  Lousy choice, I know, what with these terrific anxiety meds and I'd rather have the cigarette.  Living with an alcoholic is not a picnic and everytime I start to get healthy he gets unhealthier. 
So, I'm reading all your posts and the complications and puzzles of our organs and how they all intertwine, and while I still don't have answers, maybe sharing will help you and you can share something with me.  Stress, endometriosis, muscle strain, IBS, all the above intermittently or working together or something worse.  Not sure how even with me the doctor is going to be able to trulydiagnose and correct this.  Unless I take each possible cause step by step...and truly be they hypochodriac patient.  Remove the endometriosis that may have developed in the past two years...if there is any...it could be binding my intestines um, er, my muscles?  Give me a colonscopy to make sure there's not something more serious going on.  Give me an MRI to make sure there's not some hard to detect cancer growing on my ovary.  Oh, well, I guess I have enough to worry about these days.  Maybe one day it will be time for me to look after me.
Hang in there all.

Post Edited (bessylu) : 6/24/2009 7:40:49 PM (GMT-6)

Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 6/24/2009 9:17 PM (GMT -6)   
A colonoscopy would help rule out most gastro issues (except for IBS.)

It sounds like it could be endometriosis. Mine causes me a ton of right-sided pain. I hate that the only way to check for endometriosis is with surgery. At least if you have surgery to check for and remove endo, they can check your ovaries and other organs for possible problems. If you do decide to have endo surgery, make sure you have a good doc that removes the endo, rather than just burns it off. Good luck!

Regular Member

Date Joined Jun 2009
Total Posts : 24
   Posted 6/24/2009 10:15 PM (GMT -6)   
how do they remove it without burning it off? Last time I had this surgery i was out of commission for 3 weeks. They cut a major artery by mistake, and reorgnized all my organs, and just when i was feeling well enough to go back to work, the organs began to shift back into their rightful position and the pain was worse than anything i've experienced in life...beyond the natural child birth on ptosin (sp?) pain or pass out....definitely would like to know if they could determine it before they start digging around.
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