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esim
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/23/2009 8:08 AM (GMT -7)   
Hi everyone

This is my first chat. I have had IBS for years. The annoying things is I can not pin point any one thing that sets it off. I can eat something today and be fine and eat the same thing tomorrow and with in 5 minutes be in such pain I'm in the bathroom several times and the rest of the day and a couple more I spend in pain. I had the upper and lower scope test last week. The dr. said everything looks good. I asked about seeing a dietitian for help with my diet. After talking to one yesterday, she said had no help to offer because there is no pattern to pin point any particular food that bothers me.

I am vegetarian, I do eat a few eggs and cheese ( I have to give that up do to high cholesterol now) I do not drink milk. I eat a lot of fiber and only wheat bread. I do not eat a lot of junk food.

I all so have some problems with acid reflux with certain fruits and greasy foods. I told the Dr this and he was very surprised because nothing showed up on the scope.

I am so tired of this. I feel like there is no help out there and no one to turn to. I talked to someone at a Health food store who suggested food allergy test. Has anyone done that?
Has anybody had luck with what foods are more apt to bother IBS? Anybody had luck withfinding a diet that helps.

I look forward to hearing from everybody hopefully I can get some help from people that have been where I am.

Thanks

IBSGOAWAY
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 7/23/2009 12:25 PM (GMT -7)   
I can tell you which foods are generally hard on IBS, but unfortunately it is different for everyone. For instance, bananas kill me in the bloating-pain dept. but are good for lots of people. But the general list for no-no's due to IBS is: raw fruits and vegetables, anything with ALOT of fiber can be horrible for an IBS person, grains can be hard, chocolate, fried food, and dairy. What's left? you may ask. That is the question I have been asking myself from the beginning. If you are supposed to avoid all of that...what are you supposed to eat? And my answer is: I have no idea. I did have a bowl of cereal with soy milk on it, which I thought would be disgusting, but wasn't. It didn't do much. You mentioned eggs...I know that is one of my trigger foods as well. I can't even eat egg beaters because there is something in them that disagrees. I know you said that the same foods set you off from one day to the next...so you might start thinking about taking a different route to your answer...such as enzymes. Your problem might not be the actual food, but the way your system is responding to eating. Good luck.

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 7/23/2009 12:40 PM (GMT -7)   
I find this frustrating too. I have my diet pretty much figured out now, what works, what doesn't. But even though I follow this diet, occasionally I'll have a bad day. Or I'll have several weeks of normal bm's then all of a sudden, several days of what I call the putty stage, a stage I can't turn around and I find it's best to let it work itself out. This is when I often wonder if my body has it's own schedule, it almost seems monthly. As if it's purging itself of something it didn't like. Yes I am female but I'm almost past menopause. I had a period back in May but it was my first one in 9 months. So I'm just about over with all of that.

One of the key things for me is to not get stressed out. If we have a very busy family schedule, I almost always have trouble. Stress/worries go hand in hand with my IBS woes.

I guess what I am trying to say is this - even if I follow a LRD, take Colace and now the nightly Nature's Way primodolphilis pill, I sometimes still have one or two days a month. I'm to the point now where I just chalk it up to my wacky body's own internal rhythm. Whatever the heck that is!
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening


KGood
Regular Member


Date Joined May 2003
Total Posts : 81
   Posted 7/23/2009 1:16 PM (GMT -7)   
I know what you mean about foods not bothering you one day, but then bothering you the next time you eat them.  I experience that, too; and it is frustrating.  There are several foods that I know without a doubt bother me.  Unfortunately, one of those foods is ice cream.  I also try to avoid anything fried or any food that is too greasy, rich, or sweet.  You mentioned that you eat wheat bread.  Whole wheat is actually a trigger for many people with IBS.  I avoid that whenever I can; white and sourdough are actually much better for IBS sufferers. 
 
The site helpforibs.com is very helpful.  It gives lists of foods that are good and foods that are bad for IBS.  The woman who has the site also sells some products that are helpful.  I take her peppermint pills faithfully - one before each meal. 
 
I hope you can find things that will work for you in dealing with your IBS.
~Karen


esim
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/23/2009 2:28 PM (GMT -7)   
Thanks everybody

I guess the problem is everybody is so different, and there is no one good answer.

The Dr. told me to eat only whole wheat and at least 7-8 grams of fiber or more a day. If is funny that one person writes that whole wheat and fiber bothers them. I guess it is one of those things that we have to deal with the best way we can. I find that if I go out to eat I do not go to far from home in case I get sick.

I think like one person said it could be what is in the food. I believe that is why I can not eat meat. It would be nice if organic food was not so expensive.

I grew up on a cattle farm. We fed our cows feed, corn, hay and turned them out in the pasture. We did not have all the junk in the food or the animal. It is scary when you start looking into what they are doing to our food.

When I move and get a house with a yard I plan to grow my own food and cann like my grandmother did. Last year hubby and I put up several different veggies from the local farmers. It was the best food.

SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 7/23/2009 3:59 PM (GMT -7)   
Greasy foods upset the works for me.........sometimes corn.
SnowyLynne


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 7/23/2009 7:02 PM (GMT -7)   
Let me give you my history when I had my temporary colostomy reversed: My doctor said to eat anything I wanted, possibly 4 to 6 small meals a day, not 3 but to live life, enjoy it, take Immodium.

WELL, that was the absolute worst advice I had ever been given!

I was having 3 bm's during one meal. As soon as I chewed, I had a bm. I could barely get to the kitchen sometimes, I joked I would take meals in the bathroom from now on. I mostly hung out in my bedroom and master bathroom. I swear but I thought that my life as I knew was over. Yes I had beat cancer but lost an important part of my colon and was forever changed.

Meanwhile I'm eating the diet I used to eat - you know, the one that we're supposed to eat! Whole wheat products - Brownberry breads, english muffins, bagels, bran cereal, brown rice, lots of fresh fruits (pineapple, strawberries, red raspberries, blueberries, kiwi) and fresh vegetables.

I was a MESS!

I went on the computer, found a colon cancer support group and forum. Someone posted my exact symptoms. Turns out they had severe D and multiple bm's, from chemo. They were pleading for help since they had to leave their home for treatments and then somehow get back into a car, without wearing depends (what I've always avoided).

Then bless this person's heart, someone posted a link for a very simple diet - the low residue diet. This person pointed out the person going thru chemo needed low residue and to avoid fiber. I looked at that list of foods and it was if a light bulb came on. It's the BRAT diet, the one you give children after they've had a severe intestinal bug go thru them. I would have never given my children whole wheat products and fresh pineapple after just experiencing D! It suddenly dawned on me I was irritating my colon - big time. So I went on this LRD and within 48 hours I was a new person. I could leave my home, I could get behind the wheel of a car and actually go to the mall with my kids. Of course I needed to know where the next bathroom was located but I could get thru an hour or two without a bm.

I thought I had died and gone to Heaven!

I saw my surgeon soon after that and told him about this diet. He paused for a long time, oh 2 minutes or more, pondering what I was saying. It was in those quiet, tense moments I had decided to lie thru my teeth if he said to go off that diet immediately. Sure doc, sure I will - NOT! Anyway, he said - you know Mary, that diet makes complete sense to me. You were probably raw from going so much and these foods calm the gut. Well, doh I wanted to say!

To sum it up, I stayed religiously on this diet for about 2 years. Then I began straying here and there. A chocolate chip cookie or fresh fruit. Now I'm on it for about 75% of the time and can sneak quite a bit in. Just not whole wheat - that is out.

Still cancer free, 10 years later and I haven't been told to go off this diet. LOL!

I am staying on it too!

That's my story....sorry, meant to make it short but got carried away. Yes, I do know how to type - the old fashioned way, "home row" and all that. You all probably knew that by now. he he
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening

Post Edited (Marsky) : 7/23/2009 8:05:26 PM (GMT-6)


KGood
Regular Member


Date Joined May 2003
Total Posts : 81
   Posted 7/25/2009 9:33 AM (GMT -7)   
Wow, Marsky; my insides almost hurt just reading what you HAD been eating!  turn    I'm glad you found a diet that works for you.  I read what some others are eating and say to myself, "No wonder they are having so many problems."  I have had IBS-D for about 15 years and have really tried to educate myself from the internet and from trial and error.  The best site I have found for dealing with IBS is www.helpforibs.com.  The woman who writes this site has so much helpful information. 
 
I wanted to add something about fiber.  The site I mentioned discusses the difference between soluble fiber and insoluble fiber better than I could possibly explain.  She also deals with the whole wheat bread vs white bread issue, and explains so well why whole wheat is simply not good for people with IBS.  I'm glad that you have realized the need to avoid whole wheat.   I do take fiber everyday myself (Citrucel) because it helps people who have IBS-C as well as IBS-D.  For people with IBS-D like me, the Citrucel helps by forming bulk in the intestines.  I tried it very reluctantly, but found that it helps me tremendously.
 
I'm so glad you are cancer-free and hope you continue to be!  tongue
~Karen


mareliza
New Member


Date Joined Aug 2009
Total Posts : 13
   Posted 8/3/2009 9:32 AM (GMT -7)   
Has anyone tried and had luck with the fennel and peppermint teas advertised on helpforibs site?

I was thinking about purchasing, but so tired of getting my hopes up for nothing.
=/

please let me know. thanks.

KGood
Regular Member


Date Joined May 2003
Total Posts : 81
   Posted 8/3/2009 9:43 AM (GMT -7)   
Hi, Mareliza,
I have not tried the teas, but I do take the peppermint pills faithfully.  I think those do help me.  I still have some of the typical IBS complaints; but I think the peppermint pills do diminish a lot of the typical annoyances that are associated with IBS. 
 
I would give the teas a try.  I have even bought fennel and chamomile capsules in vitamin and grocery stores, as well as chamomile tea in grocery stores; if those were less expensive there, maybe you could try those first.   I use those on an as-needed basis.  But I would trust anything on Heather's helpforibs site.  She has really done her research. 


~Karen


mareliza
New Member


Date Joined Aug 2009
Total Posts : 13
   Posted 8/3/2009 10:23 AM (GMT -7)   
Thank you karen. At this point, I'm willing to try anything!

KGood
Regular Member


Date Joined May 2003
Total Posts : 81
   Posted 8/3/2009 1:46 PM (GMT -7)   
You're welcome; I hope you find something that works for you!  yeah
~Karen


mca
New Member


Date Joined Aug 2009
Total Posts : 4
   Posted 8/5/2009 11:32 PM (GMT -7)   
What is everyone's take that fiber is not the cure for IBS, but perhaps flora restoration within the bowels?

How many people with IBS have taken antibiotics of any kind in the past or were forced post-surgery through IV?

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/5/2009 11:35 PM (GMT -7)   
Keep eating healthy and try cutting out all junk foods/drinks and see how that goes (even though you don't eat much of it as it is), sugar alcohols can be killer for IBS so any junky stuff you are eating/drinking may contain it which would add to your IBS grief...get on a good probiotic indefinitely and keep a food/drink journal to see what healthy foods/drinks you are consuming might be particularly bothersome to you. Try to completely avoid caffeine and animal fats as well, exercising regularly can also be a huge benefit in treating IBS symptoms.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


mareliza
New Member


Date Joined Aug 2009
Total Posts : 13
   Posted 8/7/2009 8:57 AM (GMT -7)   
Regarding probiotics:
I tried Flora Q which did nothing and now I'm trying Floragen. Still haven't noticed a difference.
I've taken lots of antibiotics in the past for respiratory probs, etc. Still, the probiotics don't seem to be helping. I guess everyone is different and they're worth a try.

Every specialist has something different to say, but they consensus seems to be (for IBS-D)-
no extra fiber, no uncooked vegetables, no fruit, no caffeine, no alcohol. I've tried this and there doesn't seem to be any change.

I've resorted to eating one or two small meals a day consisting of plain steamed rice or maybe some chicken broth and a multivitamin.

After a few rough days of being hungry all time, my appetite has decreased (thankfully).

SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 8/9/2009 6:27 PM (GMT -7)   
Been eating fresh fruite this week NOT THE THING for me to have done,lol...........
SnowyLynne


carrolld
New Member


Date Joined Aug 2009
Total Posts : 2
   Posted 8/9/2009 7:00 PM (GMT -7)   
I have a difficult time finding things to eat as well. Everything seems to hurt me. One of my doctor's thinks I may also be lactose intolerant. I also am having bladder issues and have had to cut out some foods that are hurting my bladder but some of those were the foods that actually helped with my constipation :( I also happen to be alergic to wheat. I don't know what I can eat :(

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/9/2009 11:35 PM (GMT -7)   
mareliza, maybe keep trying different probiotics until you find one that best suits you, even if you're not noticing much of a difference by taking them they are still likely helping to keep your gut flora in check especially if you often take (or any time you take) antibiotics as those tend to wipe out all bacteria good and bad so it's fairly essential to take a good probiotic daily and indefinitely.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


mareliza
New Member


Date Joined Aug 2009
Total Posts : 13
   Posted 8/17/2009 9:06 PM (GMT -7)   
Hello,

I've tried the fennel and peppermint teas and the peppermint oil tablets from the helpforibs.com website for about a week now and they do seem to be helping!! I don't care if it's real or all in my mind, but I drink a cup before work and I don't get the awful stomach cramps like I was getting every morning. I mix about half fennel and half peppermint. I probably drink 2-3/day and I don't seem to be running to the bathroom or taking immodium as much. I recommend trying them. I thought it was probably another scam. I had tried over the counter peppermint tea and no relief. Not exactly sure what is in these specific, but seems to be helping.
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