NewMember, please help! xx

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clairabelle1972
New Member


Date Joined Sep 2009
Total Posts : 6
   Posted 9/11/2009 5:50 AM (GMT -7)   
Hi there
 
I wondered if any of you could give me any help/advice or just a kind word.
 
I am 37 years old. Was bulimic from 17 to 36! Went for councelling and stopped being sick. It was hard work, but i managed it! That was last summer. Within weeks of not being sick I developed severe diareahh. I had this for 3 months and in the last month of this period I fell pregnant. (was previously told probably unable to have children without treatment as have PCOS) My diareahh stopped when I was about 3 months pregnant and started again, along with tummy pains within a month of stopping breastfeeding. That was a month ago. I have had a full blood count and apart from low iron, nothing sinister. Celiac blood test came back negtive. (I knowabout false negatives!!) I have to wait at least 10 weeks to see the specialist. Good old NHS!  I am living on codeine to get me through the day at the momement. I have no blood or pus in my toilet but have had a bad back ache and my hand joints hurt. This might be my body readjusting itself after pregnancy tho.
 
Any Ideas? I am scared to death that it is Chron's, and I have this beautiful baby boy, that i never thought i would have, to look after
 
I am currently trying Lactose free but have been on the loo all morning.
 
Am also on Blood Pressure medication. I stopped taking Ramipril when I found out I was pregnant last year, and it was about the time my runs stopped. This might have been a coincidence though?? Am on Amias now. Stopped it and reintoduced it but still have diareahh.
 
Gosh, what a load of gabble!
 
Thank you so much
 
Clair
xxx

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/11/2009 8:43 PM (GMT -7)   
The only way to know if you have crohn's is by getting the standard tests done, you'll need to see your GP to get a referall to a GI if you don't already have a GI.

I wouldn't delay it either, crohn's is a disease and you don't want to ignore it, I have it as well as IBS and it can definitely interfere with everyday life (and it does make it a little tougher when you have kids).


:)
My bum is broken....there's a big crack down the middle of it! LOL :)


clairabelle1972
New Member


Date Joined Sep 2009
Total Posts : 6
   Posted 9/12/2009 10:20 AM (GMT -7)   
Thank you for replying
 
I have read up about Chron's, Collitis, Celiac, IBS and the symptoms to cross over so much, it's so easy to believe that you have any of them.
 
I am currently waiting for an appt with a specialist but it's gonna take weeks. I don't have blood or pus in my stools, but just chronic diareahh. Am totally tired all the time but that's to be expected with diareahh i suppose. Would you mind if I asked what other symtoms you have with your Chron's? Is it possible that you can just have diareahh with IBS? My nan seems to think it is Diareahh and Constipation together.
 
Thank you
x

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/13/2009 2:47 PM (GMT -7)   
For myself my main symptoms of my crohn's is frequency and urgency (I currently don't have D or many of the other symptoms at the moment but I have had many in the past)....here's good indepth info on symptoms of crohn's disease...(keep in mind ulcerative colitis symptoms are very similar to crohn's as well)....

Signs and symptoms of Crohn's disease can range from mild to severe and may develop gradually or come on suddenly, without warning. You may also have periods of time when you have no signs or symptoms (remission). When the disease is active, signs and symptoms may include:

■Diarrhea. The inflammation that occurs in Crohn's disease causes cells in the affected areas of your intestine to secrete large amounts of water and salt. Because the colon can't completely absorb this excess fluid, you develop diarrhea. Intensified intestinal cramping also can contribute to loose stools. Diarrhea is the most common problem for people with Crohn's.
■Abdominal pain and cramping. Inflammation and ulceration may cause the walls of portions of your bowel to swell and eventually thicken with scar tissue. This affects the normal movement of contents through your digestive tract and may lead to pain and cramping. Mild Crohn's disease usually causes slight to moderate intestinal discomfort, but in more-serious cases, the pain may be severe and include nausea and vomiting.
■Blood in your stool. Food moving through your digestive tract may cause inflamed tissue to bleed, or your bowel may also bleed on its own. You might notice bright red blood in the toilet bowl or darker blood mixed with your stool. You can also have bleeding you don't see (occult blood).
■Ulcers. Crohn's disease can cause small sores on the surface of the intestine that eventually become large ulcers that penetrate deep into — and sometimes through — the intestinal walls. You may also have ulcers in your mouth similar to canker sores.
■Reduced appetite and weight loss. Abdominal pain and cramping and the inflammatory reaction in the wall of your bowel can affect both your appetite and your ability to digest and absorb food.
Other signs and symptoms
People with severe Crohn's disease may also experience:

■Fever
■Fatigue
■Arthritis
■Eye inflammation
■Skin disorders
■Inflammation of the liver or bile ducts
■Delayed growth or sexual development, in children
When to see a doctor
See your doctor if you have persistent changes in your bowel habits or if you have any of the signs and symptoms of Crohn's disease, such as:

■Abdominal pain
■Blood in your stool
■Ongoing bouts of diarrhea that don't respond to over-the-counter (OTC) medications
■Unexplained fever lasting more than a day or two


:)


My bum is broken....there's a big crack down the middle of it! LOL :)


clairabelle1972
New Member


Date Joined Sep 2009
Total Posts : 6
   Posted 9/18/2009 5:14 AM (GMT -7)   
Thank you so much for taking the time to reply. Sorry I haven't been around to thank you sooner.
 
I have spoken to the referral team and should have an appointment around the end of October.
 
I don't really have much tummy pain. Just D in the morning. Usually a few times and occasionally after my evening meal. The thing that is scaring me most of all is that the joints in my fingers ache. I am frightened of arthritis. My oh says is could be IBS and my joints ache due to constant D causing dehydration. Celiac also causes joint pains. It is a mine field as everything seems so similar.
 
Thank you again
x

finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 9/19/2009 10:12 PM (GMT -7)   
Clair,
 
You could also ask for a c diff culture; your primary can order it.  It's an intestinal infection that causes ulcerative colitis; it can last for months and become so severe that your colon can be damaged beyond repair.
 
I hope you feel better soon,
 
Judy
 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/20/2009 1:11 PM (GMT -7)   
"My oh says is could be IBS and my joints ache due to constant D causing dehydration. Celiac also causes joint pains. It is a mine field as everything seems so similar."

That is very unlikely, body aches/pains (arthritis, fibro, ect) are directly linked to IBD (inflammatory bowel disease), not IBS, dehydration wouldn't likely make your joints ache. It's possible that Celiacs can include joint pains/issues cuz it's also a chronic condidition but not IBS (irritable bowel syndrom).

Also C-diff can lead into colitis but not specficially ulcerative colitis (there are different forms of colitis and C-diff induced colitis is not exactly the same as UC).

I hope you find the answers and relief soon, keep us posted.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


clairabelle1972
New Member


Date Joined Sep 2009
Total Posts : 6
   Posted 9/21/2009 7:23 AM (GMT -7)   
Thank you again guys.
 
I have two lots of full blood count tests come back completely clear now. That I believe means no infections and nothing dubious?? If I had Colitis or Crohn's I am assuming that some levels may be raised? I have read that Crohn's is as painful as labour pain. My tummy aches when I need the loo are painful, but not excrutiating and disappear after I have been.
 
It's so difficult to speculate and that GP's here in the UK only seem to be able to help with coughs and colds etc.  The doc I saw on Thurs didn't even know that there was a connection between Celiac and joint pain! I feel like I am having to do all the investigation myself. Its so unfair.
 
I had a day of hardly eating any gluten, and the following day had toast and a big white bread roll. I was in agony! and had really bad D. Ireally want to do my own elimination diet without gluten but as I am waiting for my specalist appt, I am frightened of the tests results coming back wrong.
 
Thank you again and I hope that you are all happy and enjoying your day
xx 
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